Since the introduction of effective antiretroviral therapy (ART) in the late 1990s, the prognosis... more Since the introduction of effective antiretroviral therapy (ART) in the late 1990s, the prognosis for people living with human immunodeficiency virus (HIV) (PLWH) has dramatically improved. High-income countries like South Korea have had rapid declines in HIV-related deaths. Scientific advancements including pre-exposure prophylaxis (PrEP) and "undetectable equals untransmittable (U = U)" knowledge have contributed progress towards the goal of ending the acquired immune deficiency syndrome epidemic by 2030. However, the application of these advancements has been limited in South Korea. Evidence shows that HIV-related stigma and discrimination in healthcare settings remain strong in this region. We review key principles for stigma reduction and people-centered approaches in the era of U = U and identify three priorities: 1) immediate intervention in HIV stigma drivers in healthcare settings; 2) social stigma reduction on multiple levels; and 3) collaboration with key populations.
s)and Nurimedia does not guarantee contents of the literary work or assume responsibility for the... more s)and Nurimedia does not guarantee contents of the literary work or assume responsibility for the same. In addition, the literary works provided by DBpia may only be used by the users affiliated to the institutions which executed a subscription agreement with DBpia or the individual purchasers of the literary work(s)for non-commercial purposes. Therefore, any person who illegally uses the literary works provided by DBpia by means of reproduction or transmission shall assume civil and criminal responsibility according to applicable laws and regulations. 연세대학교 165.132.99.***
본 논문은 장기 입원을 한 적이 있는 HIV 감염인들과 그들 가족의 경험을 통해 HIV의 낙인화와 그에 따른 돌봄 부재의 상황이 만들어낸 다각적 위기에 주목한다. 한국의 HI... more 본 논문은 장기 입원을 한 적이 있는 HIV 감염인들과 그들 가족의 경험을 통해 HIV의 낙인화와 그에 따른 돌봄 부재의 상황이 만들어낸 다각적 위기에 주목한다. 한국의 HIV 정책은 항레트로바이러스 치료의 보편적 보장을 비교적 일찍 달성한 바 있지만, 질병에 대한 사회적 낙인과 차별을 해소하는 데에는 크게 실패한 바 있다. 감염인들은 여러 의료 기관에서 진료 및 입원 거부의 대상이 되어 왔으며, 특히 요양 병원에서의 입원 거부는 당사자와 가족 모두에게 심각한 고통을 안겨주고 있다. 본 논문은 장기 입원이 필요한 HIV 감염인들과 그 가족들이 어떻게 이 만성적 위기 상태를 살아왔는지를 살펴보고, 이를 통해 장기 요양 병상의 과잉 공급에도 불구하고 입원할 곳을 쉽게 찾을 수 없는 상황이 지속되는 구조적 요인을 규명한다. HIV 감염인과 그 가족들이 감내하고 있는 사회적 고통은 소수자에 대한 배제의 문제와 더불어 한국의 HIV 정책과 장기 요양 체계가 내포하고 있는 핵심적인 모순을 드러낸다. 현재의 위기 상황을 타개하기 위해서는 의료 기관 내에서 차별 금지의 원칙이 지켜져야 하며, 장기 요양 서비스의 공공성 확보가 시급히 이뤄져야 한다.
This article focuses on the long-term crisis of care that people living with HIV and their family members have endured. South Korea has achieved universal access to antiretroviral treatment from the early stage of the global HIV epidemic, yet its public policies have been largely unsuccessful in dealing with stigma and discrimination against people living with HIV. Discriminatory denial of treatment based on HIV status has been widely allowed, and especially it has been extremely difficult to find long-term care hospitals that accept HIV positive patients for admissions. This article sheds light on how HIV positive people who need long-term care services have survived this structural exclusion. The social suffering inflicted on them and their family members reveals not only the structural exclusion of minority groups in Korean society but also speaks to the fundamental limitations of current HIV policies and long-term care system. This article argues that to solve this lingering crisis of care: (1) anti-discrimination principles have to be fully implemented in medical procedures, and (2) long-term care services have to be distributed as a public good that must be provided to every citizen.
In this article, I explore the ways in which political subjectivities take shape through populist... more In this article, I explore the ways in which political subjectivities take shape through populist mobilization and dissipation. While the rise and increasing electoral success of populist movements across the world are largely attributed to charismatic leadership that conjures the will of "the people," much less known is how people become populist subjects at a particular historical juncture. By attending to personal accounts of participation and detachment in a mass movement known as the Red Shirts in Thailand, I explore how the politics of becoming that emerges from this movement obfuscates the conventional distinction between populist and democratic identification. The articulation of populist subjects' aspiration and affliction provides a window into the undetermined aspects of political mobilization from the realm of the ordinary. [political subjectivity; mass mobilization; affliction; populism; becoming; Red Shirts; Thailand] บทคั ดย่ อ ในบทความนี / ข ้าพเจ ้ามุ ่ งศึ กษาแนวทางการก่ อร่ างสร ้างอั ตวิ สั ยทางการเมื อง ผ่ านการมี ส่ วนร่ วมในการเคลื C อนไหวแบบประชานิ ยมตลอดจนการสลายตั วของการเคลื C อนไหวดั งกล่
사회과학 내에서는 물론 전 지구적 사회 운동의 지형에서 역량강화(empowerment)는 유익한 목표이자 비판적 의심의 대상으로 여겨진다. 이 글에서 나는 HIV 감염인 당사... more 사회과학 내에서는 물론 전 지구적 사회 운동의 지형에서 역량강화(empowerment)는 유익한 목표이자 비판적 의심의 대상으로 여겨진다. 이 글에서 나는 HIV 감염인 당사자들의 주도적 참여와 역량강화를 주요 목표로 내세운 ｢한국 HIV 낙인 지표 조사｣의 경험을 중심으로 역량강화 개념을 비판적으로 재구성한다. HIV 감염인을 연구의 대상이 아닌 주체로 서게 한다는 목표 아래 이 연구는 조사원의 구성 및 훈련, 자료 수집 및 분석, 최종 보고서 작성에 이르기까지 감염인 당사자와 관련 분야 인권활동가들과의 광범위한 협업을 일구었다. 이 과정에서 감염인 조사원의 어떤 경험이 역량으로 부각되었는지를 복기하고, 이 기획의 성취와 한계를 살펴보고자 한다. 사회과학의 비전으로 역량강화는 단순히 차별과 소외, 억압 아래에 있는 이들을 위한 연구를 해야 한다는 당위의 차원을 넘어서서 어떻게 지식 생산의 과정을 통해 연구 대상이 되는 집단에 특정한 힘을 부여할 수 있을 것인가를 적극적으로 고민하게 한다. 경험의 담지자들과 함께 사고하고, 해석하고, 이론을 정교화시키는 협업적 분석론의 가능성을 탐색하고, 이를 통해 사회과학적 지식 생산의 기반을 이루는 상호의존성의 윤리와 정치를 강조하고자 한다.
‘Empowerment’ has been considered as a necessary but suspicious goal within academic discourses and globalized social movement agendas. In this article, I critically engage with ideas about empowerment by drawing on experiences from a collaborative research project called Korean People Living with HIV Stigma Index. This project is intended to empower people living with HIV by encouraging their active participation in measuring the stigma and discrimination that they experienced. In this project, people living with HIV are not merely research objects but researcher themselves who take part in the whole research process including survey team organization, re-modification and implementation of the survey, and data analysis. By tracing their involvement in this research, I carefully examine how their senses and aspirations of empowerment are emphasized, developed, and reaches a certain limit. I suggest that the empowerment of research participants can be reconsidered as a particular vision of social science research in a sense that it makes a collaborative analytic possible. In this time of social science research explicitly conceived in terms of collaboration, collaborative analytics sheds light on the politics and ethics of interdependence by revealing the dialogic and relational base of knowledge production.
For transnational migrant populations, securing birth documents of newly born children has crucia... more For transnational migrant populations, securing birth documents of newly born children has crucial importance in avoiding statelessness for new generations. Drawing on discussions of sovereignty and political subjectivization, I ask how the fact of birth is constituted in the context of transnational migration. Based on ethnographic data collected from an antenatal clinic in Thailand, this article describes how Shan migrant women from Burma (Myanmar) utilize reproductive health services as a way of assuring a safe birth while acquiring identification documents. Paying close attention to technologies of inscription adopted for maternal care and birth registration, I argue that enacting bureaucratic documents offers a chance for migrant women to bridge the interstice between human and citizen. Birth certificates for migrant children, while embodying legal ambiguity and uncertainty, epitomize non-citizen subjects' assertion of their political relationship with the state.
Drawing on fieldwork in Chiang Mai during 2010 and 2012, I examine poor Thais’ and Shan migrants’... more Drawing on fieldwork in Chiang Mai during 2010 and 2012, I examine poor Thais’ and Shan migrants’ experiences of receiving healthcare from a public hospital, and, in parallel, care from the state. While universal health coverage has become a way in which the state finds legitimacy in people's lives through giving care, being a recipient of state aid is implicated in the emotive domain of waiting. By focusing on how people feel and think of a gift and debt of care, I suggest that flows of affects that loom large in social interactions within the public hospital denote not only poor people's subordinate position but also their effort to achieve a sense of mutuality and moral autonomy. This study contributes to a broader understanding of experiences of paternalism, inequality, and dependence by illuminating people's agentive submission into relations of care.
Patients en attente : soins, don et dette dans le système de santé thaïlandais Résumé Sur la base d'un travail de terrain mené à Chiang Mai en 2010 et 2012, l'auteure examine comment des Thaïs pauvres et des migrants shan vivent les soins de santé dispensés dans un hôpital public et, parallèlement, leur prise en charge par l’État. Bien que la couverture universelle par l'assurance maladie soit devenue un moyen par lequel l’État trouve sa légitimité dans la vie des citoyens en leur dispensant des soins, le fait d’être le bénéficiaire de l'aide de l’État s'inscrit dans le domaine émotionnel de l'attente. En se concentrant sur ce que ressentent les gens et la façon dont ils envisagent le don et la dette des soins, l'auteure suggère que les flux d'affects considérables marquant les interactions sociales au sein des hôpitaux publics dénotent non seulement la position subordonnée des pauvres mais aussi leur effort de parvenir à un sens de mutualité et d'autonomie morale. Cette étude contribue à une plus large compréhension des expériences du paternalisme, de l'inégalité et de la dépendance en éclairant la soumission agentique des personnes dans les relations de soins.
s current democratic crisis sits in stark contrast with its greatest achievement this century: un... more s current democratic crisis sits in stark contrast with its greatest achievement this century: universal health coverage. This achievement is also a prime example of the ideological disagreements on the value of populism in Thai politics.
Free online access for people who do not have university library access
http://www.tandfonline.c... more Free online access for people who do not have university library access
Since the introduction of effective antiretroviral therapy (ART) in the late 1990s, the prognosis... more Since the introduction of effective antiretroviral therapy (ART) in the late 1990s, the prognosis for people living with human immunodeficiency virus (HIV) (PLWH) has dramatically improved. High-income countries like South Korea have had rapid declines in HIV-related deaths. Scientific advancements including pre-exposure prophylaxis (PrEP) and "undetectable equals untransmittable (U = U)" knowledge have contributed progress towards the goal of ending the acquired immune deficiency syndrome epidemic by 2030. However, the application of these advancements has been limited in South Korea. Evidence shows that HIV-related stigma and discrimination in healthcare settings remain strong in this region. We review key principles for stigma reduction and people-centered approaches in the era of U = U and identify three priorities: 1) immediate intervention in HIV stigma drivers in healthcare settings; 2) social stigma reduction on multiple levels; and 3) collaboration with key populations.
s)and Nurimedia does not guarantee contents of the literary work or assume responsibility for the... more s)and Nurimedia does not guarantee contents of the literary work or assume responsibility for the same. In addition, the literary works provided by DBpia may only be used by the users affiliated to the institutions which executed a subscription agreement with DBpia or the individual purchasers of the literary work(s)for non-commercial purposes. Therefore, any person who illegally uses the literary works provided by DBpia by means of reproduction or transmission shall assume civil and criminal responsibility according to applicable laws and regulations. 연세대학교 165.132.99.***
본 논문은 장기 입원을 한 적이 있는 HIV 감염인들과 그들 가족의 경험을 통해 HIV의 낙인화와 그에 따른 돌봄 부재의 상황이 만들어낸 다각적 위기에 주목한다. 한국의 HI... more 본 논문은 장기 입원을 한 적이 있는 HIV 감염인들과 그들 가족의 경험을 통해 HIV의 낙인화와 그에 따른 돌봄 부재의 상황이 만들어낸 다각적 위기에 주목한다. 한국의 HIV 정책은 항레트로바이러스 치료의 보편적 보장을 비교적 일찍 달성한 바 있지만, 질병에 대한 사회적 낙인과 차별을 해소하는 데에는 크게 실패한 바 있다. 감염인들은 여러 의료 기관에서 진료 및 입원 거부의 대상이 되어 왔으며, 특히 요양 병원에서의 입원 거부는 당사자와 가족 모두에게 심각한 고통을 안겨주고 있다. 본 논문은 장기 입원이 필요한 HIV 감염인들과 그 가족들이 어떻게 이 만성적 위기 상태를 살아왔는지를 살펴보고, 이를 통해 장기 요양 병상의 과잉 공급에도 불구하고 입원할 곳을 쉽게 찾을 수 없는 상황이 지속되는 구조적 요인을 규명한다. HIV 감염인과 그 가족들이 감내하고 있는 사회적 고통은 소수자에 대한 배제의 문제와 더불어 한국의 HIV 정책과 장기 요양 체계가 내포하고 있는 핵심적인 모순을 드러낸다. 현재의 위기 상황을 타개하기 위해서는 의료 기관 내에서 차별 금지의 원칙이 지켜져야 하며, 장기 요양 서비스의 공공성 확보가 시급히 이뤄져야 한다.
This article focuses on the long-term crisis of care that people living with HIV and their family members have endured. South Korea has achieved universal access to antiretroviral treatment from the early stage of the global HIV epidemic, yet its public policies have been largely unsuccessful in dealing with stigma and discrimination against people living with HIV. Discriminatory denial of treatment based on HIV status has been widely allowed, and especially it has been extremely difficult to find long-term care hospitals that accept HIV positive patients for admissions. This article sheds light on how HIV positive people who need long-term care services have survived this structural exclusion. The social suffering inflicted on them and their family members reveals not only the structural exclusion of minority groups in Korean society but also speaks to the fundamental limitations of current HIV policies and long-term care system. This article argues that to solve this lingering crisis of care: (1) anti-discrimination principles have to be fully implemented in medical procedures, and (2) long-term care services have to be distributed as a public good that must be provided to every citizen.
In this article, I explore the ways in which political subjectivities take shape through populist... more In this article, I explore the ways in which political subjectivities take shape through populist mobilization and dissipation. While the rise and increasing electoral success of populist movements across the world are largely attributed to charismatic leadership that conjures the will of "the people," much less known is how people become populist subjects at a particular historical juncture. By attending to personal accounts of participation and detachment in a mass movement known as the Red Shirts in Thailand, I explore how the politics of becoming that emerges from this movement obfuscates the conventional distinction between populist and democratic identification. The articulation of populist subjects' aspiration and affliction provides a window into the undetermined aspects of political mobilization from the realm of the ordinary. [political subjectivity; mass mobilization; affliction; populism; becoming; Red Shirts; Thailand] บทคั ดย่ อ ในบทความนี / ข ้าพเจ ้ามุ ่ งศึ กษาแนวทางการก่ อร่ างสร ้างอั ตวิ สั ยทางการเมื อง ผ่ านการมี ส่ วนร่ วมในการเคลื C อนไหวแบบประชานิ ยมตลอดจนการสลายตั วของการเคลื C อนไหวดั งกล่
사회과학 내에서는 물론 전 지구적 사회 운동의 지형에서 역량강화(empowerment)는 유익한 목표이자 비판적 의심의 대상으로 여겨진다. 이 글에서 나는 HIV 감염인 당사... more 사회과학 내에서는 물론 전 지구적 사회 운동의 지형에서 역량강화(empowerment)는 유익한 목표이자 비판적 의심의 대상으로 여겨진다. 이 글에서 나는 HIV 감염인 당사자들의 주도적 참여와 역량강화를 주요 목표로 내세운 ｢한국 HIV 낙인 지표 조사｣의 경험을 중심으로 역량강화 개념을 비판적으로 재구성한다. HIV 감염인을 연구의 대상이 아닌 주체로 서게 한다는 목표 아래 이 연구는 조사원의 구성 및 훈련, 자료 수집 및 분석, 최종 보고서 작성에 이르기까지 감염인 당사자와 관련 분야 인권활동가들과의 광범위한 협업을 일구었다. 이 과정에서 감염인 조사원의 어떤 경험이 역량으로 부각되었는지를 복기하고, 이 기획의 성취와 한계를 살펴보고자 한다. 사회과학의 비전으로 역량강화는 단순히 차별과 소외, 억압 아래에 있는 이들을 위한 연구를 해야 한다는 당위의 차원을 넘어서서 어떻게 지식 생산의 과정을 통해 연구 대상이 되는 집단에 특정한 힘을 부여할 수 있을 것인가를 적극적으로 고민하게 한다. 경험의 담지자들과 함께 사고하고, 해석하고, 이론을 정교화시키는 협업적 분석론의 가능성을 탐색하고, 이를 통해 사회과학적 지식 생산의 기반을 이루는 상호의존성의 윤리와 정치를 강조하고자 한다.
‘Empowerment’ has been considered as a necessary but suspicious goal within academic discourses and globalized social movement agendas. In this article, I critically engage with ideas about empowerment by drawing on experiences from a collaborative research project called Korean People Living with HIV Stigma Index. This project is intended to empower people living with HIV by encouraging their active participation in measuring the stigma and discrimination that they experienced. In this project, people living with HIV are not merely research objects but researcher themselves who take part in the whole research process including survey team organization, re-modification and implementation of the survey, and data analysis. By tracing their involvement in this research, I carefully examine how their senses and aspirations of empowerment are emphasized, developed, and reaches a certain limit. I suggest that the empowerment of research participants can be reconsidered as a particular vision of social science research in a sense that it makes a collaborative analytic possible. In this time of social science research explicitly conceived in terms of collaboration, collaborative analytics sheds light on the politics and ethics of interdependence by revealing the dialogic and relational base of knowledge production.
For transnational migrant populations, securing birth documents of newly born children has crucia... more For transnational migrant populations, securing birth documents of newly born children has crucial importance in avoiding statelessness for new generations. Drawing on discussions of sovereignty and political subjectivization, I ask how the fact of birth is constituted in the context of transnational migration. Based on ethnographic data collected from an antenatal clinic in Thailand, this article describes how Shan migrant women from Burma (Myanmar) utilize reproductive health services as a way of assuring a safe birth while acquiring identification documents. Paying close attention to technologies of inscription adopted for maternal care and birth registration, I argue that enacting bureaucratic documents offers a chance for migrant women to bridge the interstice between human and citizen. Birth certificates for migrant children, while embodying legal ambiguity and uncertainty, epitomize non-citizen subjects' assertion of their political relationship with the state.
Drawing on fieldwork in Chiang Mai during 2010 and 2012, I examine poor Thais’ and Shan migrants’... more Drawing on fieldwork in Chiang Mai during 2010 and 2012, I examine poor Thais’ and Shan migrants’ experiences of receiving healthcare from a public hospital, and, in parallel, care from the state. While universal health coverage has become a way in which the state finds legitimacy in people's lives through giving care, being a recipient of state aid is implicated in the emotive domain of waiting. By focusing on how people feel and think of a gift and debt of care, I suggest that flows of affects that loom large in social interactions within the public hospital denote not only poor people's subordinate position but also their effort to achieve a sense of mutuality and moral autonomy. This study contributes to a broader understanding of experiences of paternalism, inequality, and dependence by illuminating people's agentive submission into relations of care.
Patients en attente : soins, don et dette dans le système de santé thaïlandais Résumé Sur la base d'un travail de terrain mené à Chiang Mai en 2010 et 2012, l'auteure examine comment des Thaïs pauvres et des migrants shan vivent les soins de santé dispensés dans un hôpital public et, parallèlement, leur prise en charge par l’État. Bien que la couverture universelle par l'assurance maladie soit devenue un moyen par lequel l’État trouve sa légitimité dans la vie des citoyens en leur dispensant des soins, le fait d’être le bénéficiaire de l'aide de l’État s'inscrit dans le domaine émotionnel de l'attente. En se concentrant sur ce que ressentent les gens et la façon dont ils envisagent le don et la dette des soins, l'auteure suggère que les flux d'affects considérables marquant les interactions sociales au sein des hôpitaux publics dénotent non seulement la position subordonnée des pauvres mais aussi leur effort de parvenir à un sens de mutualité et d'autonomie morale. Cette étude contribue à une plus large compréhension des expériences du paternalisme, de l'inégalité et de la dépendance en éclairant la soumission agentique des personnes dans les relations de soins.
s current democratic crisis sits in stark contrast with its greatest achievement this century: un... more s current democratic crisis sits in stark contrast with its greatest achievement this century: universal health coverage. This achievement is also a prime example of the ideological disagreements on the value of populism in Thai politics.
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Papers by Bo Kyeong Seo
This article focuses on the long-term crisis of care that people living with HIV and their family members have endured. South Korea has achieved universal access to antiretroviral treatment from the early stage of the global HIV epidemic, yet its public policies have been largely unsuccessful in dealing with stigma and discrimination against people living with HIV. Discriminatory denial of treatment based on HIV status has been widely allowed, and especially it has been extremely difficult to find long-term care hospitals that accept HIV positive patients for admissions. This article sheds light on how HIV positive people who need long-term care services have survived this structural exclusion. The social suffering inflicted on them and their family members reveals not only the structural exclusion of minority groups in Korean society but also speaks to the fundamental limitations of current HIV policies and long-term care system. This article argues that to solve this lingering crisis of care: (1) anti-discrimination principles have to be fully implemented in medical procedures, and (2) long-term care services have to be distributed as a public good that must be provided to every citizen.
‘Empowerment’ has been considered as a necessary but suspicious goal within academic discourses and globalized social movement agendas. In this article, I critically engage with ideas about empowerment by drawing on experiences from a collaborative research project called Korean People Living with HIV Stigma Index. This project is intended to empower people living with HIV by encouraging their active participation in measuring the stigma and discrimination that they experienced. In this project, people living with HIV are not merely research objects but researcher themselves who take part in the whole research process including survey team organization, re-modification and implementation of the survey, and data analysis. By tracing their involvement in this research, I carefully examine how their senses and aspirations of empowerment are emphasized, developed, and reaches a certain limit. I suggest that the empowerment of research participants can be reconsidered as a particular vision of social science research in a sense that it makes a collaborative analytic possible. In this time of social science research explicitly conceived in terms of collaboration, collaborative analytics sheds light on the politics and ethics of interdependence by revealing the dialogic and relational base of knowledge production.
http://www.medizinethnologie.net/renal-dialysis-in-thailand/
Patients en attente : soins, don et dette dans le système de santé thaïlandais
Résumé
Sur la base d'un travail de terrain mené à Chiang Mai en 2010 et 2012, l'auteure examine comment des Thaïs pauvres et des migrants shan vivent les soins de santé dispensés dans un hôpital public et, parallèlement, leur prise en charge par l’État. Bien que la couverture universelle par l'assurance maladie soit devenue un moyen par lequel l’État trouve sa légitimité dans la vie des citoyens en leur dispensant des soins, le fait d’être le bénéficiaire de l'aide de l’État s'inscrit dans le domaine émotionnel de l'attente. En se concentrant sur ce que ressentent les gens et la façon dont ils envisagent le don et la dette des soins, l'auteure suggère que les flux d'affects considérables marquant les interactions sociales au sein des hôpitaux publics dénotent non seulement la position subordonnée des pauvres mais aussi leur effort de parvenir à un sens de mutualité et d'autonomie morale. Cette étude contribue à une plus large compréhension des expériences du paternalisme, de l'inégalité et de la dépendance en éclairant la soumission agentique des personnes dans les relations de soins.
http://www.tandfonline.com/eprint/dWR2ZVqK6qTERDysX43w/full
Drafts by Bo Kyeong Seo
This article focuses on the long-term crisis of care that people living with HIV and their family members have endured. South Korea has achieved universal access to antiretroviral treatment from the early stage of the global HIV epidemic, yet its public policies have been largely unsuccessful in dealing with stigma and discrimination against people living with HIV. Discriminatory denial of treatment based on HIV status has been widely allowed, and especially it has been extremely difficult to find long-term care hospitals that accept HIV positive patients for admissions. This article sheds light on how HIV positive people who need long-term care services have survived this structural exclusion. The social suffering inflicted on them and their family members reveals not only the structural exclusion of minority groups in Korean society but also speaks to the fundamental limitations of current HIV policies and long-term care system. This article argues that to solve this lingering crisis of care: (1) anti-discrimination principles have to be fully implemented in medical procedures, and (2) long-term care services have to be distributed as a public good that must be provided to every citizen.
‘Empowerment’ has been considered as a necessary but suspicious goal within academic discourses and globalized social movement agendas. In this article, I critically engage with ideas about empowerment by drawing on experiences from a collaborative research project called Korean People Living with HIV Stigma Index. This project is intended to empower people living with HIV by encouraging their active participation in measuring the stigma and discrimination that they experienced. In this project, people living with HIV are not merely research objects but researcher themselves who take part in the whole research process including survey team organization, re-modification and implementation of the survey, and data analysis. By tracing their involvement in this research, I carefully examine how their senses and aspirations of empowerment are emphasized, developed, and reaches a certain limit. I suggest that the empowerment of research participants can be reconsidered as a particular vision of social science research in a sense that it makes a collaborative analytic possible. In this time of social science research explicitly conceived in terms of collaboration, collaborative analytics sheds light on the politics and ethics of interdependence by revealing the dialogic and relational base of knowledge production.
http://www.medizinethnologie.net/renal-dialysis-in-thailand/
Patients en attente : soins, don et dette dans le système de santé thaïlandais
Résumé
Sur la base d'un travail de terrain mené à Chiang Mai en 2010 et 2012, l'auteure examine comment des Thaïs pauvres et des migrants shan vivent les soins de santé dispensés dans un hôpital public et, parallèlement, leur prise en charge par l’État. Bien que la couverture universelle par l'assurance maladie soit devenue un moyen par lequel l’État trouve sa légitimité dans la vie des citoyens en leur dispensant des soins, le fait d’être le bénéficiaire de l'aide de l’État s'inscrit dans le domaine émotionnel de l'attente. En se concentrant sur ce que ressentent les gens et la façon dont ils envisagent le don et la dette des soins, l'auteure suggère que les flux d'affects considérables marquant les interactions sociales au sein des hôpitaux publics dénotent non seulement la position subordonnée des pauvres mais aussi leur effort de parvenir à un sens de mutualité et d'autonomie morale. Cette étude contribue à une plus large compréhension des expériences du paternalisme, de l'inégalité et de la dépendance en éclairant la soumission agentique des personnes dans les relations de soins.
http://www.tandfonline.com/eprint/dWR2ZVqK6qTERDysX43w/full