Sandra Abrevaya
3,328 posts
user avatar
Sandra Abrevaya
@sabrevaya
Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
Chicago, IL
synapticure.com
Joined August 2010
3,636
Following
21.3K
Followers
  • Pinned
    user avatar
    Sandra Abrevaya
    @sabrevaya
    Oct 29, 2025
    Thank you @melindagates and the team at @PivotalVentures for believing in our dream to build better care for families with ALS, Parkinson's and Alzheimer's!
    user avatar
    Synapticure
    @synapticure
    Oct 29, 2025
    When co-founders @sabrevaya and @bsw5020 received a life-altering diagnosis, they built a cost-effective, accessible neurology care network across the U.S. Thanks to @melindagates @PivotalVentures for supporting our vision.
    00:00
    7K
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Sep 7, 2023
    The girls just got home, saw the chair lift and started shrieking with excitement “Dad is sleeping upstairs tonight!!!!!!” I don’t think I’ve ever heard anything better. ❤️
    user avatar
    Brian Wallach
    @bsw5020
    Sep 7, 2023
    The chair lift is in. The wall mount is up. And tonight, for the first time in two years, I will see the second floor of our house. Not today ALS. Not today.
    318K
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Sep 17, 2022
    Wearing my heart on my back. ALS you will be gone. Soon. Thank you for the birthday love friends, it was a great day ❤️❤️
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Feb 29, 2024
    Last night I burst into tears when I saw that Brian posted this picture. There is so much grief in what has already been lost. Before we fell asleep I told Brian how sad I was and he said, "don't be, I'm still here." I am anchored by my husband's hope ❤️
    user avatar
    Brian Wallach
    @bsw5020
    Feb 29, 2024
    Just a dad holding up one of his daughters. Something which I took for granted, but now never will. Good night moon.
    466K
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Mar 6, 2022
    This weekend was going to be my first girls trip in 2 years. Because of caregiver life, I cancelled. So my friends changed their tickets to come to see me for one night. We covid tested, snuggled and watched movies. It was all I needed. I hope every caregiver has a love squad.
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Oct 9, 2024
    For Brian’s 44th birthday, and 7 years into surviving ALS, I cleared the calendar so we could do whatever @bsw5020 wanted to celebrate. He asked to spend the day taking his caregiving team shopping to get them each something they wanted. Happy birthday sweet Bri ❤️
    65K
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Oct 30, 2022
    I ache for this version of life.
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Feb 11, 2024
    Replying to @sabrevaya
    I lifted his hand and put it on mine as I lay beside him and I put my head on his chest as our girls took in one of my favorite childhood movies, commenting loudly throughout. And at that moment I couldn't be more grateful that I asked for help and that I fought for this joy. ❤️
    35K
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Dec 8, 2020
    I am just one of the forty million Americans who are caregivers at home on a daily basis. Every time you set up an IV bag in your pjs, help your partner sit up in bed, help them pick up pills they dropped on the floor... I am right there with you. You are not alone.
  • user avatar
    Sandra Abrevaya
    @sabrevaya
    Mar 8, 2024
    If you read about a failed drug trial please get that this is what that news feels like to families dying from these diseases. We are the faces of grief and suffering behind those headlines.
    246K

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