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PoTS UK
4,864 posts
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PoTS UK
@UKPoTS
A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.
UK
linktr.ee/potsuk
Joined May 2014
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  • Pinned
    user avatar
    PoTS UK
    @UKPoTS
    Apr 6
    1/4 IT'S HERE ๐ŸŽ‰ POTS UK's Educational Video Series is officially LIVE! After months behind the scenes, we're so excited to bring you 13 bite-sized videos designed to support, empower, and guide you. ๐ŸŽฌ Todayโ€™s video: potsuk.org/managingpots/eโ€ฆ #PoTS #MECFS #EDS #LongCovid
    1.2K
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 25, 2024
    ๐Ÿ’œ๐ŸŒŸ#PoTSAwarenessDay๐ŸŒŸ๐Ÿ’œ #PoTS is so much more than just a fast heart rate upon standing! Quality of life can be equivalent to COPD and congestive heart failure. Many patients are told that their physical symptoms are โ€˜all in their headโ€™ and instead are given psychiatric
    101K
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 25, 2023
    Thank you so much to @DrAmirKhanGP for making this excellent educational video about #PoTS ๐Ÿ™Œ๐Ÿป Please help by sharing this today for โญ๏ธ#PoTSAwarenessDayโญ๏ธ PoTS can develop after viruses, such as #COVID19 Comorbidities can include: Myalgic Encephalomyelitis (#MECFS),
    00:00
    94K
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 25, 2023
    Today is โญ๏ธ#PoTSAwarenessDayโญ๏ธ โœจPoTS on a Page - GP Guideโœจ If you are a healthcare professional please download this guide which summarises information about #PoTS For those seeking a diagnosis or attending medical appointments, please take this along to increase knowledge
    45K
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 25, 2024
    Today is๐ŸŒŸ#PoTSAwarenessDay๐ŸŒŸ โœจPoTS on a Page - GP Guideโœจ Please share this guide among the medical community to educate about #PoTS. For those seeking a diagnosis or attending medical appointments you can view and print the guide here: potsuk.org/wp-content/uplโ€ฆ A more
    24K
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 25, 2023
    โญ๏ธWhy is #PoTS often misdiagnosed as anxiety when the symptoms are physical?โญ๏ธ Please listen to Dr @nickgall Cardiologist, PoTS Specialist & Patron to @UKPoTS answer this question. โ€œA lot of the symptoms of PoTS relate to adrenaline, (increase in heart rate, variable blood
    00:00
    23K
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 1, 2024
    Our NEW โญ๏ธWhat is PoTSโญ๏ธ video! To mark the first day of #DysautonomiaAwarenessMonth (disorders of the autonomic nervous system) please educate about #PoTS by sharing our new โ€˜What is PoTSโ€™ video๐Ÿ’œ This video gives a summary of symptoms, QOL, associated conditions & treatments.
    00:00
    48K
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 10, 2021
    Itโ€™s day 10 of #DysautonomiaAwarenessMonth Please help us by sharing these 10 important facts about #PoTS potsuk.org/UserFiles/Fileโ€ฆ #TakeAStandForPoTS #LongCovid #EDS #MCAS #MECFS #pregnancy #trauma #viruses #MedTwitter #MedEd #TeamGP @DrNighatArif @DrSdeG @Dr2NisreenAlwan
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 25, 2022
    If you only share one thing for #PoTSAwarenessDay, let it be this๐Ÿ’œ If you are new to #PoTS (Postural Tachycardia Syndrome) & reading this, please take the time to learn more about this widely unrecognised & commonly misdiagnosed condition! potsuk.org #MedTwitter
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 13, 2023
    Today we stand in solidarity with the #LongCovid groups @LongCovidKids @long_covid @LongCovidSOS presenting evidence at the @covidinquiryuk Many children & adults are sadly developing #PoTS post #COVID19 potsuk.org Please support their campaign online today by
    user avatar
    Long Covid SOS @longcovidsos.bsky.social
    @LongCovidSOS
    Oct 13, 2023
    The Long Covid charities are at the Long COVID Inquiry today. Using their voice with dignity, with power, with exhaustion. We Will Not be Forgotten! #longcovidruinslives #weneedanswers #listenlearnhope #giveushope @long_covid @LongCovidKids @LongCOVIDPhysio @LCNMUK
    00:00
    14K
  • user avatar
    PoTS UK
    @UKPoTS
    Nov 10, 2022
    Please download our newly updated โ€˜PoTS on a Page - GP Guideโ€™ to take to your #GP if they do not have knowledge of #PoTS. You may wish to ask them to perform a โ€˜stand testโ€™, which is described on this guide. potsuk.org/wp-content/uplโ€ฆ #TeamGP #MedTwitter @RCPhysicians @theRCN @rcgp
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 1, 2023
    October marks the start of #DysautonomiaAwarenessMonth = disorders of the autonomic nervous system, including #PoTS๐Ÿ’œ Many are diagnosed after viruses, such as #Covid19 Please learn more on our website: potsuk.org #Medtwitter #TeamGP #MECFS #EDS
    28K
  • user avatar
    PoTS UK
    @UKPoTS
    Oct 1, 2024
    Today marks the start of #DysautonomiaAwarenessMonth = disorders of the autonomic nervous system, including #PoTS ๐Ÿ’œ Triggers: viruses, bacterial infection, pregnancy, surgery, a traumatic event, immunisation. Common co-morbidities: #LongCovid, Myalgic
    12K
  • user avatar
    PoTS UK
    @UKPoTS
    Mar 15, 2024
    1/2 Today is #LongCovidAwarenessDay & we stand in solidarity with all the incredible #LongCovid charities & supporters ๐Ÿ’ช๐Ÿป Many with #LongCovid are diagnosed with #PoTS- symptoms mainly felt in an upright position: palpitations, lightheadedness, physical & mental fatigue,nausea..
    7.5K