LifeArc

@lifearc1

Self-funded medical research organisation with one clear purpose – transforming the lives of people living with rare diseases and drug-resistant infections.

Stevenage, London, Edinburgh

lifearc.org

Joined February 2009

LifeArc
@lifearc1
19h
We need your help to build a resource that reflects the full scope of work happening across rare diseases in the UK. If your organisation isn't on Raremap yet, request to be added now: raremap.co.uk/join/
LifeArc
@lifearc1
Aug 17
Reasons to invest in rare disease research are not rare. Rare diseases are often described as too small, too complex or too expensive. But Alexion has proved that they can offer both the opportunity to change lives and generate financial returns. 🎥Watch the full video:
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LifeArc
@lifearc1
Aug 14
Bio-Hermes-002 has now completed enrolment, with 28% of participants coming from traditionally understudied populations. We're proud to be part of the Bio-Hermes-002 study, which is testing whether a finger-prick blood test could help diagnose Alzheimer's disease.
LifeArc
@lifearc1
Aug 12
#GAMRIC2026 is fast approaching! Valeria Gigante (WHO) tells us why this conference is so important for tackling drug-resistant infections, together. Register now: gamric.org #GlobalHealth #AMR
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LifeArc
@lifearc1
Aug 10
What if patients with Hunter syndrome could become their own bone marrow donors? Professor Wynn shares how gene correction is transforming treatment, with dramatic results from clinical trials Watch this #LATSS2026 session and more on our YouTube channel: bit.ly/4wPKLgk
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