Genetic Alliance UK

@GeneticAll_UK

National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.

London

geneticalliance.org.uk

Joined November 2011

Genetic Alliance UK
@GeneticAll_UK
Mar 23
FROM 23.03.26, THIS PAGE WILL NO LONGER BE UPDATED Stay up to date by following our other social media accounts Facebook @GeneticAllianceUK Instagram @rarediseaseuk LinkedIn linkedin.com/company/genetic-alliance-uk Bluesky @geneticallianceuk.bsky.social
Genetic Alliance UK
@GeneticAll_UK
Mar 20
📣 Don’t miss our free in-person Rare Resources Scotland Information Days – first one this Monday (23 March) in Edinburgh! Learn, connect & hear from expert speakers: eventbrite.co.uk/e/rare-resourc…
Genetic Alliance UK
@GeneticAll_UK
Mar 18
Thank you to everyone who joined our parliamentary drop-in yesterday on innovation in rare condition research! Researchers from @lifearc1 Translational Centres spoke with MPs about the findings from out joint report: 'New trials, better data, faster access'.
Genetic Alliance UK
@GeneticAll_UK
Mar 17
How can the UK better support innovation in #RareConditions research? A new report from us and @lifearc1 Translational Centres Hub explores novel trial designs, AI and multimodal data and calls for renewal of the UK Rare Diseases Framework. @RareBeacon 👉 ow.ly/ZV9B50YsNrb
Genetic Alliance UK
@GeneticAll_UK
Mar 5
Genetic Alliance UK is pleased to welcome @SharonHodgsonMP as the new Parliamentary Under-Secretary of State at the DHSC, as we also share our gratitude to Ashley Dalton MP. Read our full welcome and thank you messages on our website: ow.ly/YWYW50YpyQe