StrokePracticeGuidelines10 2023fdf
StrokePracticeGuidelines10 2023fdf
net/publication/375141428
CITATIONS READS
19 1,072
3 authors:
Rachel Wolpert
University of Missouri
104 PUBLICATIONS 1,279 CITATIONS
SEE PROFILE
All content following this page was uploaded by Mary Watson Hildebrand on 05 February 2025.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Mary W. Hildebrand, Daniel Geller, Rachel Proffitt
Importance: Stroke is a leading cause of disability. Occupational therapy practitioners ensure maximum
participation and performance in valued occupations for stroke survivors and their caregivers.
Objective: These Practice Guidelines are meant to support occupational therapy practitioners’ clinical decision
making when working with people after stroke and their caregivers.
Method: Clinical recommendations were reviewed from three systematic review questions on interventions to
improve performance and participation in daily activities and occupations and from one question on maintaining
the caregiving role for caregivers of people after stroke.
Results: The systematic reviews included 168 studies, 24 Level 1a, 90 Level 1b, and 54 Level 2b. These studies
were used as the basis for the clinical recommendations in these Practice Guidelines and have strong or moderate
supporting evidence.
Conclusions and Recommendations: Interventions with strong strength of evidence for improving performance in
activities of daily living and functional mobility include mirror therapy, task-oriented training, mental imagery, balance
training, self-management strategies, and a multidisciplinary three-stages-of-care rehabilitation program. Constraint-
induced therapy has strong strength of evidence for improving performance of instrumental activities of daily living.
Moderate strength of evidence supported cognitive–behavioral therapy (CBT) to address balance self-efficacy, long-
term group intervention to improve mobility in the community, and a wearable upper extremity sensory device paired
with training games in inpatient rehabilitation to improve social participation. Practitioners should incorporate
problem-solving therapy in combination with CBT or with education and a family support organizer program.
What This Article Adds: These Practice Guidelines provide a summary of strong and moderate evidence for
effective interventions for people with stroke and for their caregivers.
Hildebrand, M. W., Geller, D., & Proffitt, R. (2023). Practice Guidelines—Occupational therapy practice guidelines for adults with stroke. American
Journal of Occupational Therapy, 77, 7705397010. https://doi.org/10.5014/ajot.2023.077501
stroke, also known as a cerebrovascular accident Certain factors and health conditions can increase
A (CVA) or a brain attack, occurs when the brain
is deprived of oxygen as a result of blockage (ische-
the risk of stroke: hypertension; smoking; diabetes;
diet; physical inactivity; obesity; hyperlipidemia; heart
mic) or rupture of blood vessels (hemorrhagic) disease; sickle cell disease flare-ups; kidney and liver
within or leading to the brain. In the United States, disease; sleep disorders; and psychosocial factors, such
it is a leading cause of long-term disability or death as depression, psychological distress, and loneliness.
(Centers for Disease Control and Prevention [CDC], These risks may be mitigated with health management
2022b). The yearly incidence of stroke is approxi- strategies (American Occupational Therapy Associa-
mately 795,000, of which 77% are new strokes and tion [AOTA], 2020; American Stroke Association
23% are recurrent strokes. In 2018, the prevalence of [ASA], 2021; Tsao et al., 2022). However, nonmodifi-
stroke, or the number of adults older than age 20 yr able factors also increase the risk of stroke, such as
who had a stroke, was estimated to be 2.7%, or age; family history; race; gender; and prior occurrence
7.6 million Americans, and it is projected to increase of a stroke, transient ischemic attack, or myocardial
to 3.9% of the U.S. population by 2030. Globally, the infarction (ASA, 2021). A stroke may occur at any
prevalence of stroke in 2020 was 89.13 million, and age—one in seven strokes occurs in people ages 15 to
the incidence of stroke per year was 11.71 million 49 yr—but the chance of having a stroke doubles every
(Tsao et al., 2022). 10 yr after age 55 (CDC, 2022c). Regarding race and
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 1
ethnicity, statistics show that Black, Hispanic, and In- and visual deficits. Cerebellar strokes may result in
digenous Americans have a higher incidence of stroke ataxia, ataxic dysarthria, and poor postural control.
than non-Hispanic White or Asian Americans. In the Strokes in the brainstem may cause coma, dysphagia,
United States, females have 55,000 more strokes each diplopia, vertigo, or quadriparesis (Johns Hopkins
year and an overall higher lifetime risk of stroke than Medicine, 2022).
males. The intersectionality of age, gender, and race In 2017, the caregiving that family and friends pro-
increases the risk of stroke among Black and Hispanic vided to all adults in need of assistance with daily
women older than age 70 compared with White activities in the United States was valued at about
women (Tsao et al., 2022). In addition, it must be $470 billion per year (Reinhard et al., 2019). Stroke is
noted that socioeconomic status and racial disparities one of the conditions that most often require caregiv-
often play a significant role in stroke outcomes. Socio- ing. The ASA emphasizes the vital role that informal
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
economically deprived populations are less likely to caregivers play as members of the stroke rehabilitation
receive effective management of stroke risk factors and team (Collinson & De La Torre, 2017; Winstein et al.,
equity in and access to good quality poststroke care 2016). Moreover, the Occupational Therapy Practice
(Marshall et al., 2015). Ikeme et al. (2022) found that Framework: Domain and Practice (4th ed.; OTPF–4;
a greater proportion of White patients than of racial AOTA, 2020) states that caregiving is a co-occupation
minorities used emergency medical services, arrived and that considering caregivers as clients is essential.
within 3 hr from the onset of stroke symptoms, and Informal caregivers may assist with activities of daily
received tissue-type plasminogen activator (tPA) or living (ADLs), instrumental activities of daily living
mechanical thrombectomy, thus negatively affecting (IADLs), and medical tasks, such as administering med-
stroke outcomes for Black, Hispanic, Asian, and Native ication and supervising home exercise programs
American patients. (Reinhard et al., 2019). The effects of caregiving on the
Other aspects of one’s environment may also create caregiver can be positive or negative. Positive effects
a greater risk of having a stroke and of having poorer include feeling good about oneself and becoming closer
stroke outcomes. For example, people in rural areas of to the person who has had a stroke. However, caregiv-
the United States experience poorer outcomes post- ing’s negative effects are most often reported and
stroke than those in urban areas. This has been include harm to employment, finances, and mental
hypothesized to be a result of the lack of equal access health (depression, anxiety, stress, and burden or
to evidence-based acute stroke care (Hammond et al., strain), as well as physical health challenges (injury or
2020). In addition, exposure to environmental degra- cardiovascular changes; Collinson & De La Torre, 2017;
dation such as air pollution increases stroke risk Loh et al., 2017; Schulz & Eden, 2016). When the care-
worldwide (Tsao et al., 2022). giver experiences negative effects, the person who has
Diagnosis of acute stroke is based on the patient’s had a stroke has a poorer outcome (Bakas et al., 2014).
history, clinical presentation, identifying signs and Across the continuum of care, stroke patients and
symptoms of stroke, a physical examination of stroke caregivers require a sustained and coordinated effort
severity with the commonly used NIH Stroke Scale from a multidisciplinary rehabilitation team, of which
(National Institute of Neurological Disorders and occupational therapy is a vital part (Winstein et al.,
Stroke, 2011), and cerebrovascular imaging (Choi 2016). In stroke rehabilitation, occupational therapy
et al., 2022; Powers et al., 2019). Diagnosing the type practitioners implement the process that supports en-
and location of the stroke is essential to ensure the gagement and participation in occupations and health
best medical intervention and client outcomes. For in- for both the adult with stroke and their caregiver
stance, a person with an acute ischemic stroke may (AOTA, 2020). Because the effects of a stroke are
require tPA to remove blockage and decrease brain highly variable, assessment and intervention are client
damage (Powers et al., 2019), and one with an acute centered and based on holistic occupational therapy
hemorrhagic stroke may require medication or surgery models of practice (e.g., the Person–Environment–
to control bleeding (Unnithan et al., 2022). Occupation model; Law et al., 1996).
The effects of a stroke vary greatly and depend on Multiple frames of reference grounded in these
the location, severity, and type of stroke. In the cere- holistic models guide stroke intervention. The biome-
brum, left hemisphere strokes are thought to be more chanical frame of reference is used to remediate
common than right hemisphere strokes (Portegies limitations in range of motion, strength, and endur-
et al., 2015). Left hemisphere strokes may result in ance caused by stroke (Grice, 2021). For impaired
right-sided hemiplegia or hemiparesis, contralateral motor function, a motor control and motor learning
sensory impairments, apraxia, and communication dif- frame of reference focused on task-oriented interven-
ficulties, such as aphasia, and right hemisphere strokes tions improves motor performance and function
may result in left-sided hemiplegia or hemiparesis, (Nilsen & Gillen, 2021). Alternatively, for residual im-
contralateral sensory impairments, unilateral spatial or pairments after stroke that may be considered chronic
body neglect, and spatial dysfunction (Johns Hopkins or permanent, the occupational therapy practitioner
Medicine, 2022). A stroke in either hemisphere may focuses on compensatory or adaptive techniques, using
cause dysphagia, cognitive impairments, depression, the rehabilitation frame of reference (Winstead, 2021).
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 2
In all poststroke care settings, occupational therapy practice to improve performance and participa-
treatment of the person with stroke or the caregiver tion in ADLs for adult stroke survivors?
includes any or all of the intervention approaches enu- 2. What is the evidence for the effectiveness of inter-
merated in the OTPF–4: remediation, maintenance, ventions within the scope of occupational therapy
compensation, prevention, and health promotion practice to improve performance and participa-
(AOTA, 2020). Stroke is not only an acute event but is tion in IADLs among adult stroke survivors?
also classified by the CDC (2022a) as a chronic disease 3. What is the evidence for the effectiveness of inter-
if the impairments caused by the stroke limit ADLs or ventions within the scope of occupational therapy
require medical attention for more than 1 yr. Thus, practice to improve the performance of and par-
the occupational therapy stroke intervention changes ticipation in education, volunteering, social par-
from a focus on remediation to one on compensation, ticipation, work, and leisure among adults
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
health promotion, and prevention to reduce modifi- poststroke?
able stroke risk factors. 4. What is the evidence for the effectiveness of inter-
These practice guidelines update the previous Occu- ventions within the scope of occupational therapy
pational Therapy Practice Guidelines for Adults With practice for caregivers of people with stroke to facili-
Stroke (Wolf & Nilsen, 2015) that were based on three tate maintaining participation in the caregiver role?
systematic reviews addressing interventions within
the scope of practice of occupational therapy to im-
prove cognition, motor, and psychological and Goals of These Practice Guidelines
emotional impairments and one systematic review that Through these Practice Guidelines, AOTA aims to
examined the evidence for activity- and occupation- help occupational therapy practitioners, as well as
based interventions to improve occupation and social the people who manage, reimburse, or set policy re-
participation after stroke. In keeping with the philoso- garding occupational therapy services, understand
phy of occupational therapy and the International occupational therapy’s contribution in providing
Classification of Functioning, Disability, and Health for services to people with stroke and their care part-
Children and Youth (World Health Organization, ners. These guidelines can also serve as a reference
2007) and the evolution of the literature since the last for health care professionals, health care facility
practice guidelines, the primary focus of these guide- managers, education professionals, education and
lines has shifted from impairment to occupational health care regulators, third-party payers, managed
performance and participation. Therefore, the focus care organizations, and those who conduct research
here is solely on ADLs, IADLs, and participation out- to advance the care of people with stroke.
come measures, not impairment outcome measures These Practice Guidelines were commissioned,
(e.g., Modified Ashworth Scale [Bohannon & Smith, edited, and endorsed by AOTA without external fund-
1987], Fugl-Meyer Assessment [Fugl-Meyer et al., ing being sought or obtained. They were financially
1975; Gladstone et al., 2002]) or upper limb function supported entirely by AOTA and developed without
(e.g., Action Research Arm Test [Lyle, 1981], Wolf any involvement of industry. All authors of the sys-
Motor Function Test [Wolf et al., 2005]). These prac- tematic reviews completed conflict-of-interest
tice guidelines incorporate information from three disclosure forms, with no conflicts noted. AOTA re-
systematic review questions on improving stroke survi- views practice guidelines, and updates them as needed,
vors’ occupational performance and participation in every 5 yr to keep the recommendations on each topic
ADLs (Geller, Goldberg, et al., 2023a, 2023b; Geller, current according to criteria established by ECRI
Winterbottom, et al., 2023; Goldberg et al., 2023a, (2020). Guidelines topics are evaluated by a multidisci-
2023b; Winterbottom, Geller, et al., 2023; Winterbot- plinary advisory group consisting of AOTA members,
tom, Goldberg, et al., 2023); IADLs (Kotler et al., 2023; nonmember content experts, and external stakehold-
Mahoney et al., 2023); and education, work, volunteer- ers. These Practice Guidelines were reviewed and
ing, leisure, and social participation (Proffitt et al., revised on the basis of feedback from a group of
2022). In addition, the practice guidelines include find- content experts on people with stroke that included
ings from one systematic review question on practitioners, researchers, educators, practitioners, and
interventions for caregivers that facilitate maintaining policy experts. Reviewers who agreed to be identified
their caregiving role (Mack & Hildebrand, 2023), a are listed in the Acknowledgments.
category that was not in the previous practice guide- These Practice Guidelines report the findings from
lines for adults with stroke. systematic reviews of published scientific research on
focused topic-specific questions. The systematic re-
views were conducted according to the Cochrane
Systematic Review Questions Collaboration methodology (Higgins et al., 2019) and
These Practice Guidelines are based on the following are reported according to the Preferred Reporting
four questions: Items for Systematic Reviews and Meta-Analyses
1. What is the evidence for the effectiveness of inter- (PRISMA) guidelines for conducting systematic re-
ventions within the scope of occupational therapy views (Moher et al., 2009). The process included
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 3
䊏 protocol and question development with input The recommendations for these Practice Guidelines
from a multidisciplinary advisory group that also were evaluated and finalized by AOTA staff, the
included consumers and information end users, AOTA research methodologist, and the systematic re-
䊏 a literature search conducted by a medical re- view and Practice Guidelines authors. AOTA uses the
search librarian, and grading methodology provided by the U.S. Preventive
䊏 team evaluation of literature and a synthesis of Services Task Force (2018) for clinical recommenda-
findings (see Appendix Table A.2). tions. The clinical recommendations pertaining to
Interventions that were described in sources other each review, along with the studies’ level of evidence
than the published literature and that did not meet the and supporting details, are presented in Tables 1 to 4.
inclusion criteria were excluded from the reviews. For the purposes of these Practice Guidelines, we
Occupational therapy practitioners should not report only recommendations graded A, B, and D, the
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
consider these Practice Guidelines to be a source of grades that best support clinical decision making:
comprehensive information about stroke or about ap- 䊏 A: There is strong evidence that occupational
plication of the occupational therapy process. The therapy practitioners should routinely provide
occupational therapy practitioner makes the ultimate the intervention to eligible clients. Strong evi-
clinical judgment regarding the appropriateness of a dence was found that the intervention improves
given intervention in light of a specific client’s or important outcomes and that benefits substan-
group’s circumstances, needs, and response to inter- tially outweigh harms.
vention, as well as the evidence available to support 䊏 B: There is moderate evidence that occupational
the intervention. Examples of how evidence can in- therapy practitioners should routinely provide
form practice with people with stroke are included in the intervention to eligible clients. There is high
the “Case Studies and Evigraphs” section. certainty that the net benefit is moderate, or
AOTA supported the systematic reviews on the there is moderate certainty that the net benefit is
effectiveness of interventions within the scope of occupa- moderate to substantial.
tional therapy for people with stroke as part of its 䊏 D: It is recommended that occupational therapy
Evidence-Based Practice (EBP) Program. AOTA’s EBP practitioners not provide the intervention to eli-
Program is based on the principle that the evidence-based gible clients. At least fair evidence was found
practice of occupational therapy relies on the integration that the intervention is ineffective or that harms
of information from three sources: (1) clinical experience outweigh benefits. In these reviews, we did not
and reasoning, (2) preferences of clients and their fami- find Grade D evidence.
lies, and (3) findings from the best available research. These grades are reported in Tables 1 to 4 and
The systematic reviews and these Practice Guidelines re- designated with green, indicating should consider if ap-
port the findings from the best available research propriate (A), or yellow, indicating could consider if
published since the previous Practice Guidelines. For up- appropriate (B).
dated Question 1, that research was published from 2012 The complete findings for the four systematic re-
through 2019; for Questions 2 to 3, from 2009 through view questions can be found in the systematic review
2019; and for new Question 4, from 1999 through 2019. articles (Proffitt et al., 2022; Mack & Hildebrand,
2023) and the Systematic Review Briefs (Geller,
Goldberg, et al., 2023a, 2023b; Geller, Winterbottom,
Clinical Recommendations for et al., 2023; Goldberg et al., 2023a, 2023b; Kotler et al.,
Occupational Therapy Interventions 2023; Mahoney et al., 2023; Winterbottom, Geller,
for Adults With Stroke et al., 2023; Winterbottom, Goldberg et al., 2023) on
Clinical recommendations are the final phase of the this topic published in the American Journal of Occu-
synthesis of systematic review findings. The findings pational Therapy. As always, practitioners’ clinical
for each systematic review question are graded in decisions should be informed by the evidence presented
terms of how confident a practitioner can feel that us- in these Practice Guidelines, in combination with their
ing the interventions presented in the evidence will clinical experience and the client’s particular goals.
improve the outcomes of interest to their clients. The
grade is based on the specificity of the intervention,
Translating Clinical
number of studies supporting the intervention, level of
evidence of the studies, quality of the studies, and sig- Recommendations Into Practice
nificance of the study findings. Interventions included Clinical Reasoning Considerations
in the clinical recommendations are specific to a popu- Very rarely will practitioners find an evidence-based in-
lation, and the articles that describe them provide tervention that perfectly fits their clinical setting and the
sufficient detail for practitioners to understand the client’s specific needs. Occupational therapy practition-
intervention and the outcomes of interest. ers need to consider several questions as they evaluate
Describing the strength of clinical recommenda- the research and consider whether they can use an inter-
tions is an important part of communicating an vention, or adapt it, in a well-reasoned way, to exactly
intervention’s efficacy to practitioners and other users. meet the client’s needs (Highfield et al., 2015):
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 4
Table 1. Clinical Recommendations for Interventions to Improve ADL and FM Outcomes
Grade/Evidence Level Citation Intervention Details
MT and TOT for ADLs and FM
A: Strong Recommendation: Practitioners should consider providing MT in conjunction with TOT to improve FM
and ADL performance during inpatient rehabilitation or home-based services for adults at all stages
of stroke recovery (dose: 15–45 min, 2–6×/wk, for 2–6 wk)
1a Louie et al. (2019) Participants: N 5 633 adults at acute, subacute, and chronic stage of
Meta-analysis stroke
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Intervention: MT of the affected lower limb in seated, semisitting, or long
sitting with mirror between legs. The intervention was TOT MT combined
with standard inpatient rehabilitation.
Dose: 30–45 min MT followed by 45–60 min functional training 2×/wk for
a total of 12 training sessions
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 5
Table 1. Clinical Recommendations for Interventions to Improve ADL and FM Outcomes (Cont.)
Grade/Evidence Level Citation Intervention Details
Intervention: 32 trials of MI of specific movements or tasks, including
audiotapes, films, or images related to the movement plus routine treatment
Dose: The number of sessions ranged from 12 to 40, with the most
common being 12. Duration ranged from 5 to 30 min per session for either
4 or 6 wk.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
the intervention group compared with the control group (large effect size).
1a Li et al. (2017) Population: N 5 735 adults with acute, subacute, or chronic stroke
Meta-analysis
Setting: Hospital, rehabilitation center, and nursing home (majority hospital)
China
Intervention: MI (videotape or audiotape) plus routine treatment or training
Dose: 5–30 min (most common 15 min) for 2–8 wk (most common 6 wk)
Dose: Conventional therapy for 1 hr, 5 days/wk, for 5 wk (25 sessions) plus
an additional 15 min of core stability exercises per session (total of 31 hr)
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 6
Table 1. Clinical Recommendations for Interventions to Improve ADL and FM Outcomes (Cont.)
Grade/Evidence Level Citation Intervention Details
Three-Stage Multidisciplinary Rehabilitation Program for ADLs and FM
A: Strong Recommendation: Practitioners should consider providing 3 stages of care—from hospital, to
inpatient rehabilitation, to home or community—for people poststroke across the continuum from
onset through 6 mo (dose Stage 1, 45 min/day, 5× wk, for 1 mo; Stage 2, 45 min/day, 5×/wk,
Months 2 and 3; Stage 3, 45 min/day, 5×/wk, Months 4–6)
1b Bai et al. (2012) Population: N 5 364 adults with hemiplegia after acute ICH in an inpatient
RCT emergency or neurology unit
China Setting: Inpatient hospital (Stage 1), rehabilitation center (Stage 2), and
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
home based (Stage 3)
China Setting: Inpatient hospital (Stage 1), rehabilitation center (Stage 2), home
based (Stage 3)
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 7
Table 1. Clinical Recommendations for Interventions to Improve ADL and FM Outcomes (Cont.)
Grade/Evidence Level Citation Intervention Details
self-management skills. Part 2 involved home-based biweekly telephone calls
from Wk 9 to Wk 13 to encourage positive change and help with problem-
solving skills. Control group received usual-care ambulatory stroke
rehabilitation.
Dose: 6 weekly 1-hr small groups (Wk 3–8), biweekly phone calls
(Wk 9–13)
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Improvement: Significant improvement in basic ADL outcomes in intervention
group compared with control group at 1 wk, 3 mo, and 6 mo postintervention.
1b Chen et al. (2018) Population: N 5 144 adults with acute stroke in an inpatient rehabilitation
RCT setting
Dose: Five 20-min daily sessions in 1st wk, 1 60-min small-group session in
2nd wk, 1 discharge session, 4 20- to 30-min weekly telephone follow-ups
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 8
Table 1. Clinical Recommendations for Interventions to Improve ADL and FM Outcomes (Cont.)
Grade/Evidence Level Citation Intervention Details
1a K. P. Y. Liu et al. Population: Individuals with USN or hemianopsia after stroke. 20 RCTs
Meta-analysis (2019) (N 5 594 participants), 5 activity-based intervention studies (N 5 156
participants), and 4 combined activity–nonactivity intervention studies
Australia (N 5 105 participants) included in meta-analysis of ADL outcomes.
Intervention:
1. Activity-based interventions: computer-based training for visual scanning
training and optokinetic stimulation, mental practice, MT, voluntary trunk
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
rotation, vestibular rehabilitation
2. Combined activity–nonactivity interventions: electrical somatosensory
stimulation with visual scanning training, hemifield eye patching with
cognitive-based rehabilitation, voluntary trunk rotation, optokinetic
stimulation, or conventional OT; prismatic glasses with visual scanning
training
3. Control group: a variety of interventions, including conventional therapy,
conventional OT, computerized cognitive rehabilitation, visual scanning
training, exploration training, and task-specific activities.
Dose:
R-MT: 2 90-min sessions/wk for 12 wk
H-RT: 2 240-min sessions/wk for 12 wk
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 9
Table 1. Clinical Recommendations for Interventions to Improve ADL and FM Outcomes (Cont.)
Grade/Evidence Level Citation Intervention Details
Intervention included meditation with music, warm-up activity, main activity,
and group singing activity and a group-healing circle. Control group
received conventional PT only.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
performance compared with the control group.
AO With TOT for ADL and FM
B: Moderate Recommendation: Practitioners could consider providing AO along with TOT to improve ADLs and FM
of adults with acute and subacute stroke (dose: 20–90 min/session, 3–6 days/wk, for 3–8 wk).
1a Peng et al. (2019) Population: N 5 600 adults at acute and subacute stages of stroke.
Meta-analysis
Setting: Rehabilitation centers
Taiwan
Intervention: 17 trials of AO, through observation of another individual
performing ROM, reaching and grasping, or functional tasks by video,
followed by a physical activity
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Dose: 60-min session, 5×/wk, for 12 wk
Improvement: None.
Aquatic Therapy or Hydrotherapy for ADLs and FM
B: Moderate Recommendation: Practitioners could consider providing hydrotherapy in an outpatient or community
setting for adults with subacute or chronic stroke to improve ADL and FM outcomes (dose: 2–5
30- to 60-min sessions/wk for 2–8 wk).
1a Chae et al. (2020) Population: N 5 325 adults with subacute or chronic stroke (11 trials)
Meta-analysis
Setting: Interactive therapy lab and recreation room
Korea
Intervention: Hydrotherapy (exercise performed underwater)
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 11
Table 1. Clinical Recommendations for Interventions to Improve ADL and FM Outcomes (Cont.)
Grade/Evidence Level Citation Intervention Details
Thailand Intervention: Home-based individualized audiovisual program consisting of
passive, active, and resistive exercises and ADLs, such as preparing a drink,
using a key in a lock, donning and doffing shoes, using cane or wheelchair.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
B: Moderate Recommendation: Practitioners could consider providing home-based ADL training before discharge from
inpatient rehabilitation and home-based care after discharge to improve ADL and mobility performance
(dose: 1-hr sessions, 1–3×/wk until discharge, 1-hr sessions 1–5×/wk for 4 wk after discharge).
1b Rasmussen et al. Population: N 5 71 adults with stroke admitted to inpatient stroke unit
RCT (2016)
Setting: Inpatient rehabilitation and home
Denmark
Intervention: Before discharge from hospital, participants received care from
a multidisciplinary inpatient rehabilitation team. As an inpatient, the
participant was driven home 1–3×/wk to perform exercises and ADLs
before returning to the hospital. After discharge, participants received
home-based rehabilitation for 4 wk. They were given written plans for
training sessions, received help to perform ADLs, and continued
rehabilitation training at home 1–5 days/wk.
Dose: During inpatient stay, 60-min session of exercise and ADL training
1–3×/wk. After discharge, received 60-min session of rehabilitation training
1–5 days/wk for 4 wk.
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 12
Table 1. Clinical Recommendations for Interventions to Improve ADL and FM Outcomes (Cont.)
Grade/Evidence Level Citation Intervention Details
1a Laver et al. (2017) Population: N 5 2,470 (across 72 trials; varies by study) stroke patients
Systematic review with in a variety of settings, at a variety of stages poststroke, participating in VR
meta-analysis intervention
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
gaming consoles (e.g., Playstation EyeToy, Nintendo Wii, Microsoft Kinect); 8
used Gesturetek IREX; 1 used the Armeo; 1 used the CAREN system; 1 used
the Lokomat; and the remaining studies used customized VR programs.
Dose: 5–30 min, 2×/day, for 7 days or until discharge (whichever was
sooner)
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 13
Table 1. Clinical Recommendations for Interventions to Improve ADL and FM Outcomes (Cont.)
Grade/Evidence Level Citation Intervention Details
Preparatory Methods: PROM for ADLs
B: Moderate Recommendation: Practitioners could consider providing PROM for acute stroke patients in intensive
care to improve self-care performance (dose: 15 min, 2×/day, 5 days/wk for 4 wk)
1b Kim et al. (2014) Population: N 5 37 acute stroke patients with muscle strength <Grade 3.
RCT
Setting: Neuroscience intensive care unit
Korea
Intervention: PROM performed with bilateral upper extremities
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Delivery method: Individual
Dose: Varies per study; 20- to 45-min sessions, 2–5×/wk, for 2–9 wk
Note: All studies included had statistically significant positive outcomes related to the interventions discussed. ADL/ADLs 5 activities of
daily living; AO 5 action observation; AROM 5 active range of motion; CAREN = Computer-Assisted Rehabilitation Environment; CBT 5
cognitive–behavioral therapy; EMG 5 electromyography; e-stim 5 electrical stimulation; FM 5 functional mobility; HEISS 5 Health
Empowerment Intervention for Stroke Self-Management; H-RT 5 horse-riding therapy; ICH 5 intracerebral hemorrhage; IREX 5
Immersion Rehabilitation Exercise; MCA 5 middle cerebral artery; Mdn 5 median; MI 5 mental imagery; MT 5 mirror therapy;
NDT 5 neurodevelopmental treatment; OT 5 occupational therapy; PCSMEI 5 Patient-Centered Self-Management Empowerment
Intervention; PROM 5 passive range of motion; PT 5 physical therapy; RCT 5 randomized controlled trial; R-MT 5 rhythm and
music therapy; ROM 5 range of motion; TENS 5 transcutaneous electrical nerve stimulation; TOT 5 task-oriented training; USN 5
unilateral spatial neglect; VR 5 virtual reality.
1. Exactly what intervention do I need to provide? 2. How well do the conditions in which I will
*What types of client outcomes am I looking provide the intervention match those in the
for? studies?
*Do the studies I’ve located provide enough * What are the demographic characteristics
detail on the intervention so that I know what (e.g., age, gender, diagnosis, comorbidities) of
to do and how to do it? the participants in the studies?
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 14
Table 2. Clinical Recommendations for Interventions to Improve IADL Outcomes
Grade/Evidence Level Citation Intervention Details
CIT Interventions
A: Strong Recommendation: Practitioners should consider providing CIT alone or in combination with other
interventions (self-regulation, trunk restraint, robotic therapy) during inpatient rehabilitation to improve
IADL performance and mobility after stroke (dose: 1–2-hr sessions, 5×/wk, 2–4 wk).
1b Liu et al. (2016) Participants: N 5 86, stroke onset <3 mo
RCT
Setting: Inpatient rehabilitation
China
Intervention: Self-regulatory and mCIMT: restraint of the nonimpaired
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
limb for 4 hr/day, but instead of demonstration and practice protocols,
patients were taught to use the self-regulation strategy (i.e., self-
reflection on abilities and deficits in task performance, identifying
problems and solutions, and practice of the adapted tasks).
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 15
Table 2. Clinical Recommendations for Interventions to Improve IADL Outcomes (Cont.)
Grade/Evidence Level Citation Intervention Details
another, picking up a cup and drinking from it, and other activities
similar to those performed on a daily basis.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
B: Moderate Recommendation: Practitioners could consider providing medication management interventions (text
reminders, environmental cues) for people after stroke who live at home to improve medication
adherence (dose: 2 in-person sessions or multiple text messages over 8 wk)
1b Kamal et al. (2015) Participants: N 5 200, postacute (>4 wk poststroke)
RCT
Setting: Outpatient
Pakistan
Intervention: In addition to usual care, this group received text reminders
customized to their individual prescription. The participants were
required to respond to the text stating whether they had taken their
medicines. Moreover, twice-weekly health information text messages
were also sent to the intervention group. Health information text
messages were customized according to medical and drug profiles of
every patient by the research team.
Dose: Text for every dose, and health information texts 2×/wk for 8 wk
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 16
Table 2. Clinical Recommendations for Interventions to Improve IADL Outcomes (Cont.)
Grade/Evidence Level Citation Intervention Details
Technology Inc., Hawthorne, CA).
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Community-Based Health Empowerment Group
B: Moderate Recommendation: Practitioners could consider providing a health empowerment intervention to
improve IADL performance (short and long term) for people living at home after stroke in the
subacute stage (dose: 60-min session, 1×/wk, for 6 wk and home follow-up support).
1b Sit et al. (2016) Participants: N 5 210 stroke survivors attending the ambulatory
RCT rehabilitation center of a subacute hospital
Note. CIT 5 constraint-induced therapy; dCIT 5 distributed constraint-induced therapy; HEISS 5 Health Empowerment Intervention for
Stroke Self-management; IADL/IADLs 5 instrumental activities of daily living; mCIMT 5 modified constraint-induced movement therapy;
RCT 5 randomized controlled trial; RT 5 robotic therapy; TR 5 trunk restraint; UE 5 upper extremity.
*In which setting (e.g., inpatient, home, com- To modify or adapt evidence-based interventions in
munity, school) did the studies take place? practice, practitioners must plan and proactively think
*Do any contextual factors (e.g., resources, policies) through the changes they need to make to fit the in-
that are different from those in the studies influ- tervention to the client and the practice setting. In
ence my ability to provide the intervention? addition, they must document how and why they altered
3. How flexible is the intervention, and how much the researched intervention so others in their setting
can I modify or adapt it? know how to implement the intervention and why the
*If my setting or client population differs from changes were made. If an intervention must be adapted
those of the studies, can I modify or adapt the extensively, it may not be the right fit for the situation.
intervention without changing its integrity? If extensive adaptations to the intervention are necessary,
*If I modify or adapt the intervention, what the intervention is probably not right for the client or
client characteristics (e.g., comorbidities) do I setting. If the practitioner finds that the intervention
need to consider? does not suit the client, they should not use that inter-
*Can I be proactive and plan how to modify or vention. Clinical interventions should be as similar as
adapt the intervention before I start imple-
possible to the interventions used in the research.
menting it?
*
Can I make minimal changes to the intervention,
such as reordering the content of the sessions, or Case Studies and Evigraphs
does the need for substantial changes indicate The case studies presented in these Practice Guidelines
that I should select another intervention? illustrate how occupational therapy practitioners can
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 17
Table 3. Clinical Recommendations for Interventions to Improve Social Participation
Grade/Evidence Level Citation Intervention Details
Occupation-Based Interventions for Social Participation Outcomes
B: Moderate Recommendation: Practitioners could provide multimodal stroke education (e.g., written material,
lectures) with supportive follow-up (telephone, internet) to improve social participation outcomes for
adults after stroke (1 session before discharge and multiple phone and home follow-up (6 mo) or
mix of group training 1 hr, 2×/wk, and home training 1.5 hr, 5×/wk, for 3 mo).
1b Geng et al. (2019) Participants: N 5 60; age ≥60 yr; first stroke, either hemorrhagic or
RCT ischemic; ability to communicate; cognitive competence with Mini-
Mental State Examination score ≥20; slight to moderate level of
China disability; and scheduled to discharge from hospital to home
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Setting: Inpatient rehabilitation and postdischarge home
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Hong Kong Setting: Laboratory
Note. ADLs 5 activities of daily living; CBT 5 cognitive–behavioral therapy; CT 5 computerized tomography; MRI 5 magnetic resonance
imaging; OT 5 occupational therapy; RCT 5 randomized controlled trial; ROM 5 range of motion; TC 5 transitional care.
translate evidence from the systematic reviews to their interventions that strongly align with or are supportive
professional practice when collaborating with people of these factors in the context of the client’s occupa-
with stroke. Each case study highlights interventions tional profile. It is important to note that the evigraphs
that are supported by evidence and expert opinion. in these Practice Guidelines present simplified examples
Included with the case studies are decision-making ev- of the decision-making processes occupational therapy
idence graphics (evigraphs; Figures 1–4) developed by practitioners might use to address their specific clients’
the authors and AOTA staff on the basis of the clinical goals in relation to the setting.
recommendations. Evigraphs are presented in relation
to clinical recommendations for improving ADLs and
functional mobility (Figure 1), IADLs (Figure 2), social Case Study 1: Michelle
participation (Figure 3), and participation in the care- Occupational Profile
giver role (Figure 4). Michelle is a 55-yr-old woman who sustained an ische-
Evigraphs based on clinical recommendations were mic left cerebrovascular accident (CVA) of the internal
developed to assist practitioners with clinical decision carotid artery. She has a past medical history of hyper-
making. Practitioners must consider each potential in- tension, diabetes, and depression. One week ago, while
tervention in relation to the client’s individual goals, cooking dinner in her apartment, she felt dizzy, weak,
interests, habits, routines, and environment and choose and unable to keep her balance. Michelle’s wife, Chloe,
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 19
Table 4. Clinical Recommendations for Interventions to Improve Participation in the Caregiver Role
Grade/Evidence Level Citation Intervention Details
Combined Problem-Solving and Other CBT Techniques
A: Strong Recommendation: Practitioners should consider providing problem-solving therapy skills training
and other CBT techniques (modeling, reinforcement, stress management, reframing negative
thoughts) to improve caregiver depression, health, and satisfaction (dose: 1–2 in-person sessions
[home or during inpatient stay] and telephone follow-up for 3–12 mo)
1b Pfeiffer et al. (2014) Participants: N 5 122 caregivers
RCT
Setting: Home
Germany, United States
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Intervention: Training in problem-solving skills steps and
the following CBT techniques: role-playing, modeling,
shaping, reinforcement, and cognitive restructuring
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 20
Table 4. Clinical Recommendations for Interventions to Improve Participation in the Caregiver Role (Cont.)
Grade/Evidence Level Citation Intervention Details
caregiving techniques and stroke information
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
compared with the control group immediately after the
intervention and 3 mo postintervention. Caregiver burden was
also significantly lower.
1b Deyhoul et al. (2020) Participants: N 5 90 caregiver–patient dyads
RCT
Setting: Inpatient and home
Iran
Intervention: Family-centered empowerment program. In the
1st 2 sessions caregivers had stroke education and skills
training. The 3rd session focused on problem-solving
therapy skills training. Caregivers were given stroke
educational materials in the 4th session and tested on them.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
management, information, discharge, service connections, liaison) to help to improve caregiver
knowledge, QOL, and social activity pre- and postdischarge (dose: as needed over 9 mo)
1a Lincoln et al. (2003) Participants: N 5 250 caregivers
Systematic review
Setting: Inpatient and home
United Kingdom
Intervention: The FSO was available to provide education
and support before discharge, at home, and via
telephone, as well as acting as a liaison with other
services. FSOs provided information, attended case
conferences, assisted with hospital discharge, and
conducted home visits to discuss problems and offer
information for ≤9 mo poststroke.
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 22
Table 4. Clinical Recommendations for Interventions to Improve Participation in the Caregiver Role (Cont.)
Grade/Evidence Level Citation Intervention Details
Delivery method: In-person in-home and telephone follow-
up
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
2b Grant (1999) Participants: N 5 30 caregivers
Pilot RCT
Setting: Inpatient and home
United States
Intervention: In-person, inpatient problem-solving skills
training for caregivers, followed up with telephone sessions
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 23
Table 4. Clinical Recommendations for Interventions to Improve Participation in the Caregiver Role (Cont.)
Grade/Evidence Level Citation Intervention Details
techniques. Provision of educational material in a manual,
and home use of a relaxation tape.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Multimodal Caregiver Intervention
B: Moderate Recommendation: Practitioners could consider providing long-term (2–8 mo) multimodal
interventions (education, stress, problem-solving, coping) in an individual format, group format, or
both to improve caregiver confidence, coping, knowledge, and depression (dose: 1-hr weekly or
biweekly session for 2–8 mo).
2b van den Heuvel et al. (2000, 2002 Participants: N 5 130 caregivers
Pilot RCT [follow-up])
Setting: Home or community based
Netherlands
Intervention: Counseling and support, ADL training with
the stroke survivor, community resources education,
written stroke information, stress management, problem-
solving strategies, and coping strategies
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 24
Table 4. Clinical Recommendations for Interventions to Improve Participation in the Caregiver Role (Cont.)
Grade/Evidence Level Citation Intervention Details
1b Kalra et al. (2004) Participants: N 5 300 caregiver–patient dyads
RCT
Setting: Inpatient and home
England
Intervention: Multiple training sessions (e.g., transfers, ADLs,
communication, prevention of pressure ulcers) in hospital
before discharge with a single at-home follow-up visit
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Dose: 3–4 30- to 45-min training sessions with 1 at-home
follow-up
Note. ADL/ADLs 5 activities of daily living; CBT 5 cognitive–behavioral therapy; FSO 5 family support organizer; QOL 5 quality of life;
RCT 5 randomized controlled trial.
helped her to the couch and realized she was slurring Jasmine, who is in high school. They have a shower–
her words. Chloe called 911, and Michelle was rushed bath combo with shower curtains and a three-in-one
to the emergency room. A computerized tomography commode from Chloe’s earlier hip replacement. Mi-
scan showed a blockage of the left internal carotid ar- chelle works full time as an assistant manager of a
tery, and tPA was administered. She was admitted to retail shoe store and commutes by bus, and her wife
the acute care neurological unit, medically stabilized, works as a teacher. Michelle had difficulty with bed
and discharged to inpatient rehabilitation after 1 wk. mobility, transfers, and basic ADLs, such as dressing
Michelle presented with right-sided weakness and and bathing; however, she was able to groom and feed
expressive aphasia. She had difficulty communicating herself with set-up. Michelle’s family and friends were
and became easily frustrated, but she could follow very supportive and able to assist. Michelle enjoys cook-
two-step commands and accurately answer yes-and-no ing, reading, and painting. Michelle’s goal is to take care
questions. Michelle lives in a two-bedroom apartment of herself. Chloe reported that household duties were
in a building with an elevator and two steps to enter. shared; she performed the cleaning and laundry, and
She lives with her wife Chloe and 17-yr-old daughter Michelle performed money management and meal
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 25
Figure 1. Evidence-based interventions to improve ADLs and functional mobility after stroke.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Note. Practitioners should remain mindful of the continuum of care in the rehabilitation process and anticipate client needs when making de-
cisions and recommendations regarding intervention planning, future therapy, and discharge disposition. As always, intervention planning
should be collaborative and based on the client’s goals, interests, and functional abilities, and activities should be graded to maximize partici-
pation. See Table 1 for individual study information. Not all interventions from Table 1 are included. See Table 1 and the individual studies for
intervention-specific information; the shaded area of the table indicates interventions to support occupations. ADL 5 activities of daily living;
CBT 5 cognitive–behavioral therapy; FM 5 functional mobility; IRF 5 inpatient rehabilitation facility; ITSO 5 interventions to support occupa-
tions (preparatory activities); OP 5 outpatient; OT 5 occupational therapist; PROM 5 passive range of motion.
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 26
Figure 2. Evidence-based interventions to improve IADLs after stroke.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Note. Practitioners should remain mindful of the continuum of care in the rehabilitation process and anticipate client needs when mak-
ing decisions and recommendations regarding intervention planning, future therapy, and discharge disposition. As always, intervention
planning should be collaborative and based on the client’s goals, interests, and functional abilities, and activities should be graded to
maximize participation. See Table 2 for individual study information. See clinical recommendations table and individual studies for inter-
vention-specific information. CIMT 5 constraint-induced movement therapy; IRF 5 inpatient rehabilitation facility; OP 5 outpatient.
preparation. Because Chloe has arthritis and a busy conversation, and use gestures and visual aids. Table 5
schedule as a teacher and parent, she reported being summarizes the results of Michelle’s initial assessment.
worried about caring for Michelle at home. She stated Michelle’s treatment goals were as follows:
that it is very important that Michelle be able to perform 1. Michelle will perform bathing with supervision
medication management and other self-care tasks. with use of shower chair and grab bars using
adaptive techniques in 2 wk.
2. Michelle will perform toilet transfer, toileting,
Occupational Therapy Initial Evaluation and and dressing independently with use of adaptive
Findings equipment in 2 wk.
The occupational therapist at the inpatient rehabilita- 3. Michelle will improve her ability to use her right
tion facility completed a comprehensive initial upper extremity from use as an independent sta-
evaluation, including an occupational profile (AOTA, bilizer to use as a gross assist as per the FUEL to
2021), clinical assessments, the Inpatient Rehabilitation increase independence in ADLs in 2 wk.
Facility Patient Assessment Instrument (Centers for 4. With Chloe, Michelle will prepare a simple meal
Medicare & Medicaid Services, 2022) to determine the with minimal assistance using adaptive techni-
amount of assistance needed for self-care, the Cana- ques and equipment in 2 wk.
dian Occupational Performance Measure (COPM; Law 5. Michelle will manage medications independently
et al., 2019) to identify and prioritize everyday issues, using a medication organizer and smartphone cues
and the Functional Upper Extremity Levels (FUEL; in 2 wk.
Van Lew et al., 2015) to determine the functional abil-
ity of Michelle’s right upper extremity. The physical Occupational Therapy Interventions
therapist stated that Michelle required minimal assis- A multidisciplinary approach in an urban public reha-
tance for ambulation with a hemiwalker. The speech- bilitation hospital was used to develop Michelle’s
language pathologist recommended that the occupa- comprehensive plan, which included occupational
tional therapy practitioner speak slowly, provide time therapy, physical therapy, social work, speech therapy,
for Michelle to process and answer questions, encourage nursing, psychology, and physiatry. She was in the
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 27
Figure 3. Evidence-based interventions to improve social participation after stroke.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Note. Practitioners should remain mindful of the continuum of care in the rehabilitation process and anticipate client needs when mak-
ing decisions and recommendations regarding intervention planning, future therapy, and discharge disposition. As always, intervention
planning should be collaborative and based on the client’s goals, interests, and functional abilities, and activities should be graded to
maximize participation. See Table 3 for individual study information. Not all interventions from Table 3 are included. See Table 3 and in-
dividual studies for intervention-specific information. IRF 5 inpatient rehabilitation facility; OP 5 outpatient.
rehabilitation unit for 2.5 wk and received occupa- healthy individuals performing range-of-motion exer-
tional therapy 1.0 hr/day, 6 days/wk. cises and functional reaching and grasping movements
䊏
Action observation (AO) with task-oriented followed by task practice. For instance, Michelle would
training was selected to address ADLs and func- watch a video of an individual reaching for a cup on a
tional mobility (Peng et al., 2019). table and then practice the movement with assistance.
䊏 Self-regulatory modified constraint-induced move- AO was implemented in the morning for 20 min
ment therapy (SR–mCIMT) intervention was se- 3 days/wk (Peng et al., 2019), and Michelle and Chloe
lected to address IADLs such as meal preparation were trained in this method to perform the task in the
and medication management (Liu et al., 2016). evenings for 30 min 3–5 days/wk for 2 wk.
䊏
Self-management interventions, in collaboration
with physical therapy, were used to address
Self-Regulatory Modified Constraint-Induced
stroke management and prevention of further
Movement Therapy
strokes (Chen et al., 2018).
The occupational therapist included SR–mCIMT (Liu
䊏 Stroke education, skills training, and problem-
et al., 2016) for Michelle to improve IADLs, such as meal
solving therapy before discharge were selected for
prep, and health management occupations, for example,
Michelle and Chloe to improve Michelle’s ADL
medication management. The intervention consisted of
performance and quality of life and to reduce
1-hr sessions with the unaffected hand restrained with a
Chloe’s caregiver burden (Deyhoul et al., 2020).
mitt, thus forcing use of the affected hand during ADL
and IADL activities. However, for safety, the mitt was re-
Action Observation and Task-Oriented Training moved for transfers and ambulation. The first 5 days
After reviewing the clinical assessment of the affected focused on ADLs such as brushing teeth, upper and lower
upper extremity, the occupational therapist selected body dressing, toilet transfer, and bathing, and the re-
AO followed by task-oriented practice (Peng et al., maining 5 days focused on using a phone, preparing a
2019) to improve Michelle’s upper extremity function simple meal, folding laundry, putting clothing on hangers,
and ADLs. The occupational therapy practitioner sweeping the floor, and washing dishes. The focus of each
explained to Michelle and Chloe that AO is a multi- session was to have Michelle reflect on her abilities and
sensory approach that can be used with Michelle’s deficits in performing the tasks while using problem-
affected upper extremity and performed in therapy solving strategies, which included identifying the problem,
sessions, as well as in the evenings to increase repeti- generating solutions, implementing one solution, and
tion. Michelle and Chloe agreed to try AO. The evaluating the results to achieve task independence. The
intervention consisted of Michelle watching videos of occupational therapist provided guidance throughout the
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 28
Figure 4. Evidence-based interventions to support participation in the caregiver role.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Note. Practitioners should remain mindful of the continuum of care in the rehabilitation process and anticipate client needs when mak-
ing decisions and recommendations regarding intervention planning, future therapy, and discharge disposition. As always, intervention
planning should be collaborative and based on the client’s goals, interests, and functional abilities, and activities should be graded to
maximize participation. See Table 4 for individual study information. See Table 4 and individual studies for intervention-specific infor-
mation. ADLs 5 activities of daily living; IRF 5 inpatient rehabilitation facility; OP 5 outpatient.
session and used communication strategies recom- (Chen et al., 2018) for Michelle, which was designed
mended by the speech-language pathologist to facilitate to improve her self-efficacy regarding stroke knowl-
Michelle’s learning. Michelle’s unaffected arm was also edge and management, as well as ADL skills, through
restrained for an additional 3 hr a day with supervision of five individual sessions, one group session, and phone-
the nurse and family (Liu et al., 2016). Michelle and Chloe call follow-up. The individual sessions were held bed-
were taught that they could use the mitt in the evening side in the morning with Michelle and occurred on for
while performing the AO intervention. 20 min inpatient Days 3 to 7. These sessions included
ADL training, stroke education (e.g., risk factors), self-
health monitoring, complication prevention, goal set-
Patient-Centered Self-Management ting, and the creation of action plans regarding stroke
Empowerment Intervention management and rehabilitation through discussion
The occupational therapist included the patient- and written material. A 60-min group session with six
centered self-management empowerment intervention stroke patients was held on Day 7. The group session
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 29
Table 5. Occupational Therapy Evaluation Results for Michelle
Assessment Results
COPM (Law et al., 2019) Occupation: Performance (range 5 1–10), Satisfaction (range 5 1–10)
Bathing: Performance 2/10, Satisfaction 1/10
Dressing: Performance 2/10, Satisfaction1/10
Toileting and toilet transfer: Performance 2/10, Satisfaction 1/10
Preparing simple meal: Performance 1/10, Satisfaction 1/10
Medication management: Performance 1/10, Satisfaction 1/10
IRF–PAI (Centers for Medicare The IRF–PAI is a standardized assessment scored on a scale ranging from 1 to 6 (1 5
& Medicaid Services, 2022) dependent, 2 5 maximal assist, 3 5 moderate assist, 4 5 supervision or touching assist,
5 5 set-up or clean-up assist, 6 5 independent). Michelle’s self-care scores were as follows:
eating 5 5, oral hygiene 5 5, toileting hygiene 5 3, shower or bathe self 5 3, upper body
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
dressing 5 3, lower body dressing 5 2, putting on and taking off footwear 5 2.
FUEL (Van Lew et al., 2015) Michelle can use her right upper extremity as an independent stabilizer as evidenced by her
ability to independently place her right upper extremity on the tube of toothpaste while
removing the cap with the unaffected left hand and arm.
Clinical assessment Left upper extremity: WFL
Right upper extremity:
䊏 PROM: Shoulder flexion, 150 ; shoulder external rotation, 35 ; elbow, wrist, and hand,
full PROM
䊏 AROM: Shoulder, elbow, and wrist less than 1/4 range; minimal gross grasp and mini-
䊏
Pain: Reported pain is 3 out of 10 pain with shoulder flexion and external rotation at
end-range PROM
Sitting balance: Good
Standing balance: Fair
Note. AROM 5 active range of motion; COPM 5 Canadian Occupational Performance Measure; FUEL 5 Functional Upper Extremity Levels;
IRF–PAI 5 Inpatient Rehabilitation Facility Patient Assessment Instrument; PROM 5 passive range of motion; WFL 5 within functional limits.
included watching a 20-min video regarding self- focused on strategies to increase performance of ADLs
management poststroke, and the remaining 40 min and IADLs through lectures, skills training (e.g., trans-
was dedicated to group members sharing their experi- fers, bathing, one-handed dressing strategies, adaptive
ences poststroke and the skills learned in their meal prep equipment), educational slide shows, discus-
individual sessions (Chen et al., 2018). The occupa- sions, and questions. The objective of the third day
tional therapist collaborated with psychology and
was to increase self-efficacy through problem-solving
nursing professionals to develop these individual ses-
therapy training. This included techniques to cope
sions and the group session, with speech therapy to
assist with Michelle’s communication in the group. with problems caused by the stroke by identifying a
problem, generating solution alternatives, analyzing
the solutions, implementing one, and evaluating the
Skills Training Before Discharge results. On the fourth day, Chloe was provided with
The occupational therapist incorporated several indi- stroke education handouts and stroke patient care
vidually tailored training sessions for both Michelle booklets, and competence was assessed by having her
and Chloe to increase Michelle’s ability to perform provide a verbal summary of the information and
ADLs and to reduce Chloe’s caregiving burden before training content to Jasmine, their daughter. Even
discharge (Deyhoul et al., 2020). The occupational though Chloe demonstrated competence with the
therapist collaborated with the physical therapist re- stroke education material, Jasmine was asked to re-
garding gait facilitation and with the speech-language mind Chloe about the stroke topics in the first week
pathologist regarding communication. The interven- after discharge at home. In addition, weekly phone
tion consisted of four 60-min sessions/day before calls from one of the rehabilitation team members
discharge. The objective of the first 2 days was to pro- were provided for 2 mo to address home safety and
vide stroke education and prevention and caregiving
fall prevention (Deyhoul et al., 2020).
strategies for Michelle and Chloe. Stroke education in-
cluded the following: stroke symptoms; ischemic
versus hemorrhagic strokes; risk factors such as hyper- Outcomes
tension and diabetes; stroke prevention methods such Table 6 summarizes Michelle’s results on discharge
as diet, diabetes, and hypertension monitoring and outcome measures.
control; treatment such as AO and CIMT; and stroke 䊏
Michelle attended all occupational therapy ses-
complications. Stroke caregiving training for Chloe sions and was consistent with her evening
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 30
Table 6. Occupational Therapy Discharge Results for Michelle
Assessment Results
COPM (Law et al., 2019) Occupation: Performance (range 5 1–10), Satisfaction (range 5
1–10)
Bathing: Performance 6/10, Satisfaction 6/10
Dressing: Performance 7/10, Satisfaction 6/10
Toileting and toilet transfer: Performance 7/10, Satisfaction 7/10
Preparing simple meal: Performance 5/10, Satisfaction 5/10
Medication management: Performance 7/10, Satisfaction 7/10
IRF–PAI (Centers for Medicare & Medicaid Services, 2022) The IRF–PAI is a standardized assessment scored on a scale
ranging from 1 to 6 (1 5 dependent, 2 5 maximal assist, 3 5
moderate assist, 4 5 supervision or touching assist, 5 5 set-up
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
or clean-up assist, 6 5 independent). Michelle’s self-care scores
were as follows: eating 5 6, oral hygiene 5 6, toileting hygiene
5 6, shower or bathe self 5 5, upper body dressing 5 6, lower
body dressing 5 6, putting on and taking off footwear 5 6.
FUEL (Van Lew et al., 2015) Michelle can use her right upper extremity as a gross assist as
evidenced by her ability to hold the tube of toothpaste with the
affected hand and squeeze toothpaste on the toothbrush.
Clinical assessment Left upper extremity: WFL
Right upper extremity:
䊏 PROM: Shoulder flexion, 170 ; shoulder external rotation,
40 ; elbow, wrist, and hand, full PROM
䊏
AROM: Shoulder and wrist less than 1/2 range; elbow 3/4
range; gross grasp 3/4 range and minimal release; no finger
individuation
䊏 Sensation: Impaired light touch in hand
Note. AROM 5 active range of motion; COPM 5 Canadian Occupational Performance Measure; FUEL 5 Functional Upper Extremity Levels;
IRF–PAI 5 Inpatient Rehabilitation Facility Patient Assessment Instrument; PROM 5 passive range of motion; WFL 5 within functional
limits.
exercise program, including AO, task practice, hours in the evening while participating in home-
and SR–mCIMT. work given by all the therapists.
䊏 Michelle improved on all outcome measures and 䊏 Chloe reported that she was happy with the
met her goals. She improved in feeding, groom- home discharge plan for Michelle, although she
ing, dressing, toileting, and bathing with adap- was anxious about her ability to cope with many
tive equipment and one-handed techniques. facets of her life now, which included care of Mi-
䊏 Michelle continues to require supervision for chelle. However, she reported feeling more con-
bathing while seated in a shower chair for safety. fident with helping Michelle as needed and
䊏 Michelle is able to use her affected upper ex- addressing problems as they came up at home
tremity as a gross assist during functional tasks, using the problem-solving methods that she
such grasping a soda can with her affected hand learned from the occupational therapist. They
and opening it with her unaffected hand. How- both reported wanting some home care assis-
ever, she continues to have difficulty with open- tance and occupational and physical therapy
ing her affected hand and finger individuation. home health visits.
䊏
Michelle is able to independently manage her 䊏 Chloe stated that she would continue to use the
medication using a medication sorter and re- stress management techniques she learned and
minder alarms set on her smartphone. would follow the recommendations of the occu-
䊏 Michelle requires minimal assistance for simple pational therapy practitioner to participate in
meal preparation, such as managing tight con- the caregiver stroke support group and seek
tainers and cutting vegetables. treatment from a social worker or psychologist
䊏 Michelle reported feeling more confident in her for further cognitive–behavioral therapy strate-
ability to go home and is looking forward to re- gies to address anxiety.
turning to work in the near future because she was 䊏 Michelle was discharged home with a shower
able to tolerate 3 hr of therapy a day plus additional chair and grab bars for the bath and shower and
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 31
will use her commode over the toilet and at bed- 2005). These findings were included in a referral to a
side as needed. Michelle will receive home care local driving rehabilitation center that has a certified
2×/wk for 3 hr for IADLs, home management, driver rehabilitation specialist (CDRS®) on staff. The
and community reentry. physical therapist in the outpatient clinic administered
and reported the results of the 6-Minute Walk Test
(Dunn et al., 2015). The occupational therapist also
Case Study 2: James asked Juanita to complete the Caregiver Self-Assessment
Occupational Profile Questionnaire (Epstein-Lubow et al., 2010) to determine
James is a 70-yr-old man who experienced a right mid- whether she should be further evaluated for any signifi-
dle cerebral artery (MCA) occlusion ischemic stroke 18 cant levels of burden, depression, and burnout. Last, the
mo ago. James was hospitalized and then progressed to occupational therapist asked Juanita and James to com-
inpatient rehabilitation for 3 wk before returning home
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
plete the Safe at Home Checklist (Rebuilding Together,
under the care of his wife, Juanita. James completed 19 n.d.) to identify any potential environmental safety haz-
sessions of outpatient occupational therapy and physi- ards. Table 7 summarizes the results of James’s initial
cal therapy to address weakness on his left side and assessment.
functional mobility. His last session was about 1 yr No home safety hazards were identified. The driv-
ago, and he was recently referred by his neurologist for ing evaluation found no cognitive or visual deficits
additional occupational and physical therapy in a com- that affected James’s ability to drive. However, slow
munity-based setting. Over the past year, James has reaction time resulting from anxiety affected his per-
returned to some of his valued occupations, such as formance. The CDRS recommended participation in a
gardening (modified) and watching high school and driving rehab program using a driving simulator and
college sports on television. James continues to struggle training with a spinner knob for one-handed driving
with a few daily tasks, such as showering and bathing given James’s limited left upper extremity active range
and meal preparation. He reports that he “feels stuck of motion. The physical therapist reported that the re-
and a burden” because he is reliant on Juanita and sults of the 6-Minute Walk Test showed that James
other family members to drive him and assist him with was significantly impaired in walking speed and en-
daily tasks. James and Juanita live in a small rural town durance (350 m or 382 yd with one 30-s seated rest
and have been very active in their local community break using his straight cane). James reported low con-
since their children were small. He has experienced fidence in his community mobility because of fatigue.
two falls, early after his discharge home; neither were Juanita reported caregiver strain and burnout and re-
injurious. Since then, he has been extremely cautious. vealed that she struggles with finding time alone
James has stopped attending local games because of his because James is at home most of the day.
slower walking speed and difficulty navigating stadium On the basis of James’s assessment results, the oc-
bleachers with his straight cane. He states that he cupational therapist, James, and Juanita developed the
spends about 3 hr/week in social activities, most of following long-term treatment goals:
which are coordinated by Juanita. James, Juanita, and 䊏
James will shower independently by discharge,
their extended family have planned a summer trip to a managing all parts of the shower, including the
large theme park, and James is concerned about his showerhead and bath products.
ability to tolerate the long days at the theme park on 䊏 James will drive himself in his own car between
foot. Juanita says James complains of being tired after home and known local destinations (e.g., gro-
15 min of moderate activity. cery store, high school) by discharge.
䊏 James will increase time spent in valued social
activities by 25% at 3 mo and by 50% at 9 mo.
Occupational Therapy Initial Evaluation and 䊏
James and Juanita will identify and implement
Findings three strategies for Juanita to increase the per-
On the basis of James’s primary complaints of reduced
centage of time spent alone and mentally unbur-
social interactions as a result of his functional mobility
dened from her caregiving role by 9 mo.
and feeling like a burden because of his difficulties 䊏 James will increase his confidence in functional
performing ADLs and IADLs, the occupational thera-
mobility in unfamiliar environments and iden-
pist administered the COPM (Law et al., 2019) to
tify and implement strategies to decrease fatigue
further develop an occupational profile. Additionally,
during community mobility by discharge.
the occupational therapist had James perform some of
the identified areas of the COPM while Juanita videore-
corded and rated his performance using the Performance Occupational Therapy Interventions
Quality Rating System (PQRS; Martini et al., 2015). James participated in occupational therapy in a multi-
The occupational therapist screened James for cognitive disciplinary center with a specialty in neurological
and visual deficits that might affect his ability to drive disorders. He initially attended therapy 5×/wk for
using basic visuomotor screening (Gillen & Hreha, 2 wk and then 2×/wk for 6 wk. The occupational ther-
2021), the Snellen eye chart (Hetherington, 1954), and apist recommended a constraint-induced therapy
the Montreal Cognitive Assessment (Nasreddine et al., (CIT; task-oriented) approach to the intervention for
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 32
Table 7. Occupational Therapy Evaluation Results for James
Assessment Results
COPM (Law et al., 2019) and PQRS Managing showerhead and cleaning products during shower: COPM Performance,
(Martini et al., 2015) 2/10; COPM Satisfaction, 1/10; PQRS, 2/10
Flipping burgers and picking up hot dogs on the grill: COPM Performance, 3/10;
COPM Satisfaction, 1/10; PQRS, 3/10
Driving self to high school sports and local hardware store for gardening supplies:
COPM Performance, 1/10; COPM Satisfaction, 1/10; PQRS, not rated
Functional mobility in unfamiliar environments and uneven terrain: COPM
Performance, 4/10; COPM Satisfaction, 4; PQRS, 2/10
Attending local high school sports and interacting with friends: COPM
Performance, 4/10; COPM Satisfaction, 2/10; PQRS, not rated
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Cognitive screen: MoCA (Nasreddine 28/30 points (missed 2 delayed-recall items but was able to remember with a
et al., 2005) category cue)
Visual screen: Visual acuity (Snellen eye Visual acuity: 20/20
chart; Hetherington, 1954), peripheral Peripheral vision: Normal
vision, oculomotor Oculomotor:
䊏 Smooth pursuits—Normal
䊏 Saccades—Normal
䊏 Gaze stabilization—Normal
䊏 Convergence—Normal
䊏
Hand: flexion, WFL (hypertonic); very limited extension due to tone
Modified Ashworth Scale (spasticity; Shoulder flexors: 0/4
Bohannon & Smith, 1987) Elbow flexors: 11/4
Wrist flexors: 2/4
Finger flexors: 2/4
Caregiver Self-Assessment Questionnaire Total score: 13/16
(Epstein-Lubow et al., 2010) Current level of stress: 7/10
Current health compared with last year: 4/10
Note. AROM 5 active range of motion; COPM 5 Canadian Occupational Performance Measure; MoCA 5 Montreal Cognitive Assessment;
PQRS 5 Performance Quality Rating Scale; WFL 5 within functional limits; WNL 5 within normal limits.
the first 2 wk. After the CIT protocol and the evidence James and Juanita, selected a CIT approach to address
supporting it were explained to them, James and James’s concerns with being able to cook and grill for
Juanita agreed to try it. During the follow-along phase his family and manage all components of taking a
of CIT in the latter 6 wk, James attended group-based shower (Lin et al., 2009; Liu et al., 2016). The occupa-
cognitive–behavioral therapy (CBT) paired with task- tional therapy practitioner followed the dosing in Liu
oriented training for balance and functional mobility et al. (2016) and Lin et al. (2009), scheduling 1-hr ses-
led by an occupational therapy assistant and a licensed sions 5 days/wk for 2 wk. James wore a mitt on his
physical therapy assistant. James’s occupational thera- right hand during the in-clinic sessions and for up to
pist was not a CDRS, so he was referred to a local 4 hr per day. He recorded his performance of several
driving rehabilitation center. Juanita attended most daily tasks on his homework sheet and committed to
outpatient sessions with James, and the occupational intensive individual practice and problem solving for
therapist integrated CBT methods and a problem- up to 2 additional hr/day. The occupational therapist
solving approach for both James and Juanita into the completed an activity analysis of showering and grill-
sessions. Last, the occupational therapist recom- ing (based on PQRS ratings of videos) and used the
mended that Juanita attend the local stroke support findings to tailor the shaping tasks for James. For ex-
group and connected her with a clinical psychologist ample, James had difficulty with supination while
who specialized in CBT methods. using the heavy grill spatula to flip hamburgers. For a
shaping task, James started with the task of sliding his
Constraint-Induced Therapy hand under the page of a board book to turn it. He
After reviewing the ADL and IADL evigraphs (Figures progressed to turning over playing cards and then
1–2), the occupational therapist, in collaboration with pancakes using a light spatula. The occupational
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 33
therapist also integrated problem solving into the ses- and challenging his reaction time. James has weakness
sions to provide James with strategies to use in other on the left side, so the occupational therapist trained
areas of occupational performance. Specifically, the James in using a spinner knob attached to the steering
occupational therapist taught James to use the self- wheel. The occupational therapist also included train-
regulation strategy to self-identify problems and solu- ing in the other components of driving, such as
tions and practice adapted tasks. For example, James starting the car, shifting, and fastening a seatbelt with
would often become frustrated when he was unable to hemiparesis.
open various bottles during his shower. Using a self-
regulation strategy, James was able to identify that his
Caregiver: Cognitive–Behavioral Techniques and
current approach to opening a bottle of shampoo was
Problem Solving
not working and to try a different strategy. If the new
At the recommendation of James’s usual occupational
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
strategy did not work, he would be able to reflect on
therapy practitioner, Juanita began attending the local
what was different, what worked and what did not,
caregiver stroke support group that met once a month
and try something different.
via videoconference. The occupational therapy practi-
tioner also continued to use problem-solving training
Group-Based Cognitive–Behavioral Therapy and with Juanita via phone calls. The sessions focused on
Task-Oriented Training giving her the strategies to define problems, brain-
Starting in Wk 3, James attended a group class 2×/wk storm solutions, try solutions, and then reflect on how
for 6 wk via videoconferencing (T. W. Liu et al., the solution worked (Pfeiffer et al., 2014). Juanita iden-
2019). The group was co-led by an occupational ther- tified a thought pattern similar to James’s, in that she
apy assistant trained in CBT techniques and a physical felt anxious leaving him alone, which contributed to
therapy assistant. Each class was 90 min long. The first burnout. Juanita and the occupational therapist brain-
half of the class was led by the occupational therapy stormed a few solutions, such as reframing her
assistant and focused on CBT with the purpose of im- anxious thought with a positive one and practicing
proving balance self-efficacy. The two main strategies breathing techniques to calm her anxiety. Juanita also
were cognitive restructuring and behavior modifica- decided that she and James would keep their cell
tion. Cognitive restructuring has four steps, including phones with them at all times in case of an emergency.
identification of automatic thoughts. This addresses Juanita scheduled an appointment with a clinical psy-
maladaptive thoughts that can influence a person’s chologist for additional therapy to address her anxiety
balance performance. Behavior modification strategies and depression related to caregiving.
include helping participants identify potential risks
and develop behavioral strategies to help them increase
Outcomes
their activity levels. James discovered that he was
At the end of 8 wk of outpatient rehabilitation, James
somewhat fearful of walking alone because he was of-
met several of his goals. James can shower indepen-
ten scolded by nursing staff in inpatient rehabilitation
dently, reducing the burden on Juanita. James and
whenever he tried to get up and walk on his own. He
Juanita have had several conversations about Juanita’s
developed a new mantra, “my legs are strong,” and set
caregiver role and worked together to restructure the
a timer on his phone to prompt him to get up every
guest bedroom in their house to be a quiet space for
hour and take a walk. The second half of the class was
Juanita to do yoga, sew, and have alone time. Addi-
led by the physical therapy assistant and included
tionally, James’s confidence in his ability to walk
strengthening and balance exercises in addition to task
outside has increased, and he now walks with a friend
practice. All exercises and tasks were customized for
to the town diner three times a week. This gives Jua-
individual participants and group discussion, and par-
nita time alone in the house. Because of her problem-
ticipants were encouraged to reassure one another. For
solving training, Juanita has noticed that she is more
James, there was an additional focus on endurance
confident in her ability to cope with future problems
during balance exercises and strengthening.
and worries less about James’s safety. She also practi-
ces strategies to reframe her anxious thoughts and to
Driving Rehabilitation calm herself with relaxation techniques. James and
James attended driving rehabilitation at a local center Juanita have started taking their elementary-age grand-
that had a driving simulator for both testing and driv- children to a local farm to pick fruit and to fish in a
ing training (Devos et al., 2009). The system included pond to further increase James’s confidence in his mo-
a life-sized car and surround screens. Scenarios and bility on uneven surfaces, such as his garden, and to
difficulty settings could be programmed by the occu- increase his activity tolerance. James plans to plant a
pational therapist, who was a CDRS. James began small salad garden next spring. He has started imple-
driving rehabilitation in Wk 3, attending a 1-hr menting strategies from CIT into meal preparation in
session, 1×/wk, for 8 wk. The CDRS focused on the kitchen and using the grill. He still requires some
improving James’s confidence behind the wheel, grad- assistance with flipping hamburgers because of tone in
ually increasing the complexity of driving scenarios his left forearm, limiting supination; however, he
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 34
reports that he finds the tasks more enjoyable and even questions for the systematic reviews were developed
agreed to help serve hot dogs at the local high school with an intentional focus on occupation-based out-
sports department fundraiser. James has attended two comes. Improvement in these outcomes is the goal of
of the past five high school football games and plans to occupational therapy, so the systematic reviews targeted
attend some basketball games in the coming season. studies reporting occupation-based interventions and
James is still in driving rehabilitation and plans to take outcomes. Additionally, the guidelines provide materi-
his driving test in 2 mo. He has been practicing driving als to help practitioners see how the research findings
on short, simple routes with his CDRS. Table 8 sum- might be translated to the practice setting.
marizes James’s results on discharge outcome The stroke intervention literature is relatively abun-
measures. dant in the areas of research on ADLs and caregivers
of people with stroke. The systematic review for ADL
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
outcomes found numerous and disparate interventions
Strengths and Limitations of the that have a strong level of evidence to improve perfor-
Current Body of Evidence mance. However, many of these interventions, such as
The current body of evidence has strengths and limita- mirror therapy or preparatory methods, are not occu-
tions related to the systematic reviews that informed pation based. The literature on interventions for
these practice guidelines. Systematic reviews address caregivers of people with stroke is also rich and has
specific clinical questions that are guided by an a priori strong evidence, even though the outcome measures
protocol for the question development and review pro- are typically impairment based. Although the number
cess. No systematic review can address all aspects of a of interventions for IADLs and social participation are
topic; the authors decide what to address before con- more limited and, in the case of social participation,
ducting the review. Additionally, no review is perfect, have a lower level of evidence, the systematic reviews
and even the most careful searches sometimes miss ar- for IADLs and social participation of the stroke survi-
ticles. The way to reduce these potential sources of vor identified important research that will be beneficial
bias is to conduct the review using best-practice meth- in guiding occupational therapy intervention and fu-
odology (see the Appendix). ture research.
Note. COPM 5 Canadian Occupational Performance Measure; PQRS 5 Performance Quality Rating Scale.
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 35
gaps in evidence for interventions and approaches topics have stronger evidence (e.g., Level 1b) but only
practitioners may consider using, as appropriate. within a specific substroke population. Additional gaps
Occupational therapy practitioners need to think include a lack of research participant diversity, limited
about the elements of evidence-based practice as use of participation as a primary outcome measure,
they evaluate these guidelines, considering gaps in the and a focus on changes in impairment rather than
literature related to their clinical practice. Practitioners changes in occupational performance. Despite these
should consider the following questions when they gaps, occupational therapy practitioners should con-
identify these gaps (Gutenbrunner & Nugraha, 2020): tinue to use comprehensive, client-centered, and
1. What evidence exists? functional assessments and interventions and are
*
What are the best practices associated with urged to collaborate with researchers to provide evi-
providing services to this client population? dence for these important topics.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
* What interventions are contraindicated for
this population?
Occupation-Based Methods
* What outcomes am I hoping to achieve with
The core of occupational therapy is the therapeutic use
this client?
of everyday occupations (e.g., ADLs, IADLs, leisure,
* Does evidence exist in another field or disci-
work) for the purpose of increasing occupational per-
pline related to interventions and desired out-
formance, life participation, and quality of life (AOTA,
comes that are within the scope of
2020). Thus, it is imperative that occupational therapy
occupational therapy practice?
practitioners use occupations to evaluate and treat cli-
2. What are my client’s preferences and values?
ents poststroke. Legg et al. (2017) performed a
* Does my client prefer one intervention over
systematic review and meta-analysis that showed signif-
another?
icant improvements in ADL outcomes through ADL
* Are available resources, cost, or time
training, whether it be through remediation, adaptation,
influencing my client’s preference?
or assistive technology; however, these studies took
*
How might the intervention I am considering
place only in the home care setting. Future research is
affect my client’s performance patterns and
needed to assess occupation-based interventions, such
roles?
as those targeting ADLs, IADLs, work, and leisure, in
* Does my client find the intervention I am
other settings such as inpatient, outpatient, and acute
considering meaningful?
care. Furthermore, we encourage occupational therapy
3. What experience and expertise do I have that can
practitioners to focus on occupation-based interventions
help guide my decisions?
and document those interventions that lead to success-
* What types of interventions have I used pre-
ful ADL outcomes to further validate the importance of
viously that were effective with similar clients
occupation-based interventions and strengthen the oc-
or populations?
cupational therapy profession.
* What types of interventions have I used pre-
viously that were ineffective with similar cli-
ents or populations? Stroke Research With Diverse Groups
* What potential risks does the intervention I Black, Hispanic, and Indigenous Americans have a
am considering pose to my client or this cli- higher incidence of stroke than non-Hispanic White or
ent population? Asian Americans, and women have a higher lifetime
4. Will the health care system or organization be risk of stroke than men (Tsao et al., 2022). Racial dis-
supportive of this intervention? parities, gender, and socioeconomic status have been
* How will I document this intervention? shown to lead to poorer stroke outcomes because of
* How will I document the outcomes associated poorer access to good-quality stroke care (Ikeme et al.,
with this intervention? 2022; Marshall et al., 2015). Studies generally did not ex-
* Is it likely that this intervention will be amine stroke intervention’s effectiveness with people of
reimbursed? different races, ethnicities, genders, and socioeconomic
The following sections present additional informa- status. This disparity in effective stroke intervention
tion and common occupational therapy interventions should be addressed in future research. In practice, oc-
for people with stroke that are not addressed in these cupational therapy practitioners must consider the
guidelines because of a lack of current relevant evi- unique social determinants of health that affect clients’
dence. These sections are based on existing or stroke risks and outcomes and take care to perform
emerging evidence, expert opinion, or both. client-centered evaluations and interventions.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
2010) or the Assessment of Life Habits (Fougeyrollas ment plan. The minimal research in this area has shown
et al., 2002). Future research should consider a focus on improvements, but findings are limited to gains at the
social participation as a primary outcome and design impairment level or consist of low-level research related
studies that include appropriate time scales for assess- to ADL outcomes (Gillen, 2009; Gillen & Hreha, 2021).
ment (≥1 yr pre–post). Thus, higher levels of research are needed to address
Similarly, few stroke caregiver studies included visuospatial and neurobehavioral interventions to
outcome measures of the caregivers’ occupational per- improve occupational performance in ADLs, IADLs,
formance or participation. Most caregiver intervention leisure, and work.
outcomes were impairment based and measured self-
reported burden, strain, or coping (e.g., Caregiving
Burden Scale; Elmstahl et al., 1996); depression or anxi- Additional Implications for
ety (e.g., Center for Epidemiological Studies–Depression Occupational Therapy
scale (Radloff, 1977); or quality of life (e.g., SF–36; Rand To complement the clinical recommendations pro-
Corporation). A few studies measured caregivers’ vided in Tables 1 to 4, the sections that follow describe
knowledge of care techniques and their performance of general implications for occupational therapy with
caregiving skills. For example, Mant et al. (2000, 2005) people with stroke and their care partners, based on
included the Frenchay Activities Index (Schuling et al., stroke-related evidence and best-practice occupational
1993) to determine how the intervention affected care- therapy principles.
givers’ social activity level. Given the large number of
caregivers of people with stroke, their significance as a
stroke team member, and the effect of caregiver perfor- Occupation-Based Assessment and Intervention
mance on the stroke patient’s outcomes, practitioners Occupational therapy practitioners and researchers
must consider caregivers’ occupational performance should focus on occupation-based rather than impair-
and participation in addition to their caregiving capa- ment-based assessments and interventions. Occupation-
bilities. Future research should also include outcome based intervention can be integrated into stroke rehabili-
measures that determine whether caregiver interven- tation in two ways: occupation as ends or occupation as
tions improve performance and participation in means. Occupation as ends refers to tasks or activities
caregiving skills and in caregivers’ valued occupations. that a client needs to or wants to perform, for example,
practicing dressing so that the client will be able to dress
in the morning before work. Occupation as means refers
Modifiable Risk Factors: Health Promotion and to using occupations to improve client factors or perfor-
Prevention mance skills, such as using the Nintendo Wii to improve
The OTPF–4 (AOTA, 2020) designates health manage- eye–hand coordination or hand strength. Occupations
ment as an occupation within the domain of practice are the hallmark of the occupational therapy profession
and defines aspects that should be addressed in inter- and should be the focus of occupational therapy practi-
vention, such as social and emotional health promotion, tioners and researchers.
communication with health care providers; physical
activity; and management of symptoms, conditions,
medications, nutrition, and personal care devices. Occu- Interventions That Clients Perform Outside of
pational therapy practitioners should collaborate with Therapy Sessions
interprofessional teams to assess and treat these compo- For individuals poststroke, the context of activity and
nents of health management in people with stroke to repetition are important to recovery, specifically to
prevent another stroke, to prevent disabilities or promote neuroplastic changes (Hara, 2015; Rahayu
complications resulting from stroke, and to support et al., 2020; Singh et al., 2021), making it critical for
participation in other occupations (AOTA, 2020; Tsao occupational therapy practitioners to train clients in
et al., 2022). Researchers should also consider investi- therapeutic interventions, such as AO, mirror therapy,
gating the efficacy of health promotion and prevention or CIT, that can be performed independently outside
interventions for the performance of the occupations of formal therapy sessions (i.e., in the home or in the
that make up health management. evening in the rehabilitation hospital). These
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 37
approaches are low cost and easy to administer, pro- Summary
vide opportunities for increased practice and These Practice Guidelines summarize the current evi-
neuroplastic changes, and subsequently lead to in- dence to inform occupational therapy practitioners’
creased occupational performance. clinical decision making when collaborating on inter-
ventions with clients with stroke, their caregivers, and
interdisciplinary team members. Included are evi-
Remote Service Delivery Models
dence-based interventions to address occupational
Interventions performed by telephone or telephone
performance in ADLs, IADLs, and social participation
follow-up after discharge were found to have strong or
for clients who have had a stroke and interventions for
moderate evidence for improving ADLs (Chen et al.,
their caregivers to maintain the caregiving role. On the
2018; Sit et al., 2016), IADLs (Sit et al., 2016), and so-
basis of the findings of the systematic reviews, occupa-
cial participation (Geng et al., 2019) of people with
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
tional therapy practitioners have many choices of
stroke. Telephone interventions were widely used with
evidence-based interventions to offer their clients with
caregivers of people with stroke. Much research found
stroke and their caregivers and on which to collaborate
strong and moderate levels of evidence for providing
with interprofessional team members. These Practice
telephone interventions and follow-up postdischarge
Guidelines also provide two practical case examples
in CBT and problem-solving training, education, and
and evigraphs to guide evidence-based decision mak-
support to caregivers (Bishop et al., 2014; Cheng et al.,
ing and intervention planning. Although much
2018; Deyhoul et al., 2020; Hartke & King, 2003; King
research was found, particularly with respect to ADLs,
et al., 2012; Kuo et al., 2016; Lincoln et al., 2003; Mant the Practice Guidelines identify gaps in the research
et al., 2000; Perrin et al., 2010; Pfeiffer et al., 2014; that are based on expert opinion and the evidence.
Shyu et al., 2008). Occupational therapy practitioners Occupational therapy practitioners have an integral
should consider offering interventions that would be role to play in all practice settings in which people with
appropriate to deliver remotely, such as education or stroke are treated, from acute care to community
support. This may ease the burden and stress caused programming. They are unique members of the rehabil-
by in-person therapy sessions for both the person with itation team because of their holistic consideration of
stroke who may have multiple impairments and the the many factors that influence occupational perfor-
caregiver who has limited time and energy. mance and participation. Practitioners should use the
evidence in these Practice Guidelines, along with their
Caregiving as a Co-Occupation professional experience and reasoning and the preferen-
Not only is the caregiver an important stroke team ces of the client and family. Delivering evidence-based
member, but they should also be considered as clients and innovative care to people with stroke and their care-
and, consequently, should be a focus of interventions givers in traditional and nontraditional settings is
for performing caregiving tasks and maintaining their challenging, but the profession must continue to evolve,
own occupational participation and quality of life with practitioners implementing best practice as evidence
(AOTA, 2020). Research has shown that caregivers changes and advances, to ensure that occupational ther-
who are physically and emotionally well provide better apy educational programs prepare future practitioners
care, resulting in better outcomes for the care recipient for best practice, and to grow a body of research
who has had a stroke (Bakas et al., 2014). However, grounded in occupation.
studies have found that the time therapists spend with
caregivers of people with stroke is short, and the topics Acknowledgments
addressed are limited (Lawson et al., 2015). Occupa- The authors acknowledge and thank the following
tional therapy practitioners should be familiar with a individuals for their participation in the content re-
variety of caregiver assessments and follow the recom- view and development of this publication:
mendations for best practice in interventions for
caregivers in these Practice Guidelines. Practice Guideline Series Editor
Susan Cahill, PhD, OTR/L, FAOTA, Director of Evidence-
Based Practice, American Occupational Therapy Associa-
Psychotherapeutic Interventions tion, North Bethesda, MD
CBT, problem-solving therapy, self-management tech-
niques, and empowerment coaching were found to be Contributing Practice Guideline Editor
effective tools in improving ADLs and IADLs in peo- Deborah Lieberman, MHSA, OTR/L, FAOTA, Former
ple with stroke and in improving caregivers’ quality of Vice President, Practice Improvement, American
life and ability to perform caregiving tasks (Grant Occupational Therapy Association, North Bethesda,
MD
et al., 2002; T. W. Liu et al., 2019; Pfeiffer et al., 2014;
Sit et al., 2016; Wang et al., 2018). As with any unfa- Practice Guideline Editor and Research Methodologist
miliar technique, occupational therapy practitioners Elizabeth G. Hunter, PhD, OTR/L, Assistant Professor,
should consider seeking additional training to imple- Graduate Center for Gerontology, College of Public
ment them skillfully. Health, University of Kentucky, Lexington
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 38
Evigraph Development and Knowledge Translation (FITT): A pilot stroke outcome study. Topics in Stroke Rehabilitation,
Hillary Richardson, MOT, OTR/L, AOTA Practice 21(Suppl. 1), S63–S74. https://doi.org/10.1310/tsr21S1-S63
Manager, Knowledge Translation, Evidence-Based Bohannon, R. W., & Smith, M. B. (1987). Interrater reliability of a
modified Ashworth scale of muscle spasticity. Physical Therapy, 67,
Practice and Practice Improvement, American Occupa-
206–207. https://doi.org/10.1093/ptj/67.2.206
tional Therapy Association, North Bethesda, MD, for
*Bunketorp-K€all, L., Lundgren-Nilsson, Å., Samuelsson, H., Pekny, T.,
her contributions to knowledge translation and evigraph Blomvé, K., Pekna, M., . . . Nilsson, M. (2017). Long-term
development. improvements after multimodal rehabilitation in late phase after
Reviewers stroke: A randomized controlled trial. Stroke, 48, 1916–1924. https://
Cindy Downing, Stroke Survivor/Consumer; Sara Kate doi.org/10.1161/STROKEAHA.116.016433
*Bunketorp-K€all, L., Pekna, M., Pekny, M., Blomstrand, C., & Nilsson,
Frye, OTD, MS, OTR/L, ATP; Glen Gillen, EdD, OTR,
M. (2019). Effects of horse-riding therapy and rhythm and music-
FAOTA; Carly Goldberg, MS, OTR/L; Mequeil L. How-
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
based therapy on functional mobility in late phase after stroke.
ard, OTD; Samantha Shea Lemoins, BHS, COTA/L,
NeuroRehabilitation, 45, 483–492. https://doi.org/10.3233/
PhD Candidate; Joshua M. Kotler, OTD, OTR/L, CBIS; NRE-192905
Amanda Mack, OTD, MS, OTR/L, CLC; Lauren Win- *Cabanas-Valdés, R., Bagur-Calafat, C., Girabent-Farrés, M., Caballero-
terbottom, MS, OTR/L; Timothy J. Wolf, OTD, PhD, G
omez, F. M., du Port de Pontcharra-Serra, H., German-Romero, A.,
MSCI, OTR/L, FAOTA & Urr
utia, G. (2017). Long-term follow-up of a randomized
controlled trial on additional core stability exercises training for
Systematic Review Authors
improving dynamic sitting balance and trunk control in stroke
Anna Boone, PhD, MOT; Daniel Geller, EdD, MPH,
patients. Clinical Rehabilitation, 31, 1492–1499. https://doi.org/
OTR/L; Glen Gillen, EdD, OTR/L, FAOTA; Carly Gold- 10.1177/0269215517701804
berg, MS, OTR/L; Mary Hildebrand, OTD, OTR/L; Josh *Cabanas-Valdés, R., Bagur-Calafat, C., Girabent-Farrés, M., Caballero-
Kotler, OTD, OTR/L; Amanda Mack, OTD, MS, OTR/L; G
omez, F. M., Hernández-Valiño, M., & Urr
utia Cuchí, G. (2016).
Danielle Mahoney, OTD, OTR/L; Dawn Nilsen, EdD, The effect of additional core stability exercises on improving dynamic
OTR/L, FAOTA; Rachel Proffitt, OTD, OTR/L; Olivia sitting balance and trunk control for subacute stroke patients: A
Schaffer, MOT; Madison Strickland, MOT; Lauren Win- randomized controlled trial. Clinical Rehabilitation, 30, 1024–1033.
terbottom, MS, OTR/L; Timothy J. Wolf, PhD, OTD, https://doi.org/10.1177/0269215515609414
MSCI, OTR/L, FAOTA; Lea Wood, MOT Cella, D., Riley, W., Stone, A., Rothrock, N., Reeve, B., Yount, S., . . .
Hays, R; PROMIS Cooperative Group. (2010). The Patient-Reported
Outcomes Measurement Information System (PROMIS) developed
References and tested its first wave of adult self-reported health outcome item
American Occupational Therapy Association. (2020). Occupational banks: 2005–2008. Journal of Clinical Epidemiology, 63, 1179–1194.
therapy practice framework: Domain and Process (4th ed.). American https://doi.org/10.1016/j.jclinepi.2010.04.011
Journal of Occupational Therapy, 74(Suppl. 2), S1–S87. https://doi. Centers for Medicare & Medicaid Services. (2022). Inpatient
org/10.5014/ajot.2020.74S2001 Rehabilitation Facility Patient Assessment Instrument (IRF–PAI)
American Occupational Therapy Association (2021). Improve your manual (Version 4.0).
documentation and quality of care with AOTA’s updated Centers for Disease Control and Prevention. (2022a, July 21). About
Occupational Profile Template. American Journal of Occupational chronic diseases. https://www.cdc.gov/chronicdisease/about/index.htm
Therapy, 75, 7502420010. https://doi.org/10.5014/ajot.2021.752001 Centers for Disease Control and Prevention. (2022b, May 4). About
American Stroke Association. (2021, June 17). Stroke risk factors. https:// stroke. https://www.cdc.gov/stroke/about.htm
www.stroke.org/en/about-stroke/stroke-risk-factors Centers for Disease Control and Prevention. (2022c, April 12). Know
Bai, Y., Hu, Y., Wu, Y., Zhu, Y., He, Q., Jiang, C., . . . Fan, W. (2012). A your risk for stroke. https://www.cdc.gov/stroke/risk_factors.htm
prospective, randomized, single-blinded trial on the effect of early *Chae, C. S., Jun, J. H., Im, S., Jang, Y., & Park, G. Y. (2020).
rehabilitation on daily activities and motor function of patients with Effectiveness of hydrotherapy on balance and paretic knee strength in
hemorrhagic stroke. Journal of Clinical Neuroscience, 19, 1376–1379. patients with stroke: A systemic review and meta-analysis of
https://doi.org/10.1016/j.jocn.2011.10.021 randomized controlled trials. American Journal of Physical Medicine
Bai, Y., Hu, Y., Wu, Y., Zhu, Y., Zhang, B., He, Q., . . . Fan, W. (2014). and Rehabilitation, 99, 409–419. https://doi.org/10.1097/
Long-term three-stage rehabilitation intervention alleviates spasticity PHM.0000000000001357
of the elbows, fingers, and plantar flexors and improves activities of Chaiyawat, P., & Kulkantrakorn, K. (2012). Effectiveness of home
daily living in ischemic stroke patients: A randomized, controlled rehabilitation program for ischemic stroke upon disability and
trial. NeuroReport, 25, 998–1005. https://doi.org/10.1097/ quality of life: A randomized controlled trial. Clinical Neurology and
WNR.0000000000000194 Neurosurgery, 114, 866–870. https://doi.org/10.1016/j.
Bakas, T., Clark, P. C., Kelly-Hayes, M., King, R. B., Lutz, B. J., & Miller, clineuro.2012.01.018
E. L.; American Heart Association Council on Cardiovascular and *Chen, C. H., Hung, K. S., Chung, Y. C., & Yeh, M. L. (2019).
Stroke Nursing and the Stroke Council. (2014). Evidence for stroke Mind–body interactive qigong improves physical and mental aspects
family caregiver and dyad interventions: A statement for healthcare of quality of life in inpatients with stroke: A randomized control
professionals from the American Heart Association and American study. European Journal of Cardiovascular Nursing, 18, 658–666.
Stroke Association. Stroke, 45, 2836–2852. https://doi.org/10.1161/ https://doi.org/10.1177/1474515119860232
STR.0000000000000033 *Chen, L., Chen, Y., Chen, X., Shen, X., Wang, Q., & Sun, C. (2018).
*Bishop, D., Miller, I., Weiner, D., Guilmette, T., Mukand, J., Feldmann, Longitudinal study of effectiveness of a patient-centered self-
E., . . . Springate, B. (2014). Family Intervention: Telephone Tracking management empowerment intervention during predischarge
planning on stroke survivors. Worldviews on Evidence-Based Nursing,
*Indicates articles included in the systematic reviews. 15, 197–205. https://doi.org/10.1111/wvn.12295
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 39
*Cheng, H. Y., Chair, S. Y., & Chau, J. P. C. (2018). Effectiveness of a Journal of Occupational Therapy, 77(Suppl. 1), 7710393030. https://
strength-oriented psychoeducation on caregiving competence, doi.org/10.5014/ajot.2022.77S10003
problem-solving abilities, psychosocial outcomes and physical health Geller, D., Winterbottom, L., Goldberg, C., Nilsen, D. M., Mahoney, D.,
among family caregiver of stroke survivors: A randomised controlled & Gillen, G. (2023). Systematic Review Briefs—Exercise for adults
trial. International Journal of Nursing Studies, 87, 84–93. https://doi. with stroke to improve ADL and/or functional mobility performance
org/10.1016/j.ijnurstu.2018.07.005 (2012–2019). American Journal of Occupational Therapy, 77(Suppl.
*Chia, F. S., Kuys, S., & Low Choy, N. (2019). Sensory retraining of the 1), 7710393040. https://doi.org/10.5014/ajot.2023.77S10004
leg after stroke: Systematic review and meta-analysis. Clinical *Geng, G., He, W., Ding, L., Klug, D., & Xiao, Y. (2019). Impact of
Rehabilitation, 33, 964–979. https://doi.org/10.1177/ transitional care for discharged elderly stroke patients in China: An
0269215519836461 application of the integrated behavioral model. Topics in Stroke
*Chippala, P., & Sharma, R. (2016). Effect of very early mobilisation on Rehabilitation, 26, 621–629. https://doi.org/10.1080/
functional status in patients with acute stroke: A single-blind, 10749357.2019.1647650
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
randomized controlled trail. Clinical Rehabilitation, 30, 669–675. Gillen, G. (2009). Cognitive and perceptual rehabilitation optimizing
https://doi.org/10.1177/0269215515596054 function. Elsevier.
Choi, E. Y., Nieves, G. A., & Jones, D. E. (2022). Acute stroke diagnosis. Gillen, G., & Hreha, K. (2021). Managing visual and visuospatial
American Family Physician, 105, 616–624. impairments to optimize function. In G. Gillen & D. M. Nilsen
Collinson, C., & De La Torre, H. (2017, September). The many faces of (Eds.), Stroke rehabilitation: A function-based approach (5th ed., pp.
caregivers: A close-up look at caregiving and its impacts. Transamerica 537–555). Elsevier.
Institute. Gladstone, D. J., Danells, C. J., & Black, S. E. (2002). The Fugl-Meyer
*Devos, H., Akinwuntan, A. E., Nieuwboer, A., Tant, M., Truijen, S., De Assessment of motor recovery after stroke: A critical review of its
Wit, L., . . . De Weerdt, W. (2009). Comparison of the effect of two measurement properties. Neurorehabilitation and Neural Repair, 16,
driving retraining programs on on-road performance after stroke. 232–240. https://doi.org/10.1177/154596802401105171
Neurorehabilitation and Neural Repair, 23, 699–705. https://doi.org/ Goldberg, C., Winterbottom, L., Geller, D., Nilsen, D. M., Mahoney,
10.1177/1545968309334208 D., & Gillen, G. (2023a). Systematic Review Brief—Preparatory
*Deyhoul, N., Vasli, P., Rohani, C., Shakeri, N., & Hosseini, M. (2020). interventions to support ADL performance for adults with stroke
The effect of family-centered empowerment program on the family (2012–2019). American Journal of Occupational Therapy,
caregiver burden and the activities of daily living of Iranian patients 77(Suppl. 1), 7710393010. https://doi.org/10.5014/ajot.2023.
with stroke: A randomized controlled trial study. Aging Clinical and 77S10001
Experimental Research, 32, 1343–1352. https://doi.org/10.1007/ Goldberg, C., Winterbottom, L., Geller, D., Nilsen, D. M., Mahoney, D.,
s40520-019-01321-4 & Gillen, G. (2023b). Systematic Review Brief—Technology-related
Dunn, A., Marsden, D. L., Nugent, E., Van Vliet, P., Spratt, N. J., Attia, J., interventions to improve performance in activities of daily living for
& Callister, R. (2015). Protocol variations and six-minute walk test adults with stroke (2012–2019). American Journal of Occupational
performance in stroke survivors: A systematic review with meta- Therapy, 77(Suppl. 1), 7710393020. https://doi.org/10.5014/
analysis. Stroke Research and Treatment, 2015, 484813. https://doi. ajot.2022.77S10002
org/10.1155/2015/484813 *Grant, J. S. (1999). Social problem-solving partnerships with family
ECRI. (2020). ECRI Guidelines Trust®. https://guidelines.ecri.org/ caregivers. Rehabilitation Nursing, 24, 254–260. https://doi.org/
Elmståhl, S., Malmberg, B., & Annerstedt, L. (1996). Caregiver’s burden 10.1002/j.2048-7940.1999.tb02192.x
of patients 3 years after stroke assessed by a novel caregiver burden *Grant, J. S., Elliott, T. R., Weaver, M., Bartolucci, A. A., & Giger, J. N.
scale. Archives of Physical Medicine and Rehabilitation, 77, 177–182. (2002). Telephone intervention with family caregivers of stroke
https://doi.org/10.1016/s0003-9993(96)90164-1 survivors after rehabilitation. Stroke, 33, 2060–2065. https://doi.org/
Epstein-Lubow, G., Gaudiano, B. A., Hinckley, M., Salloway, S., & Miller, 10.1161/01.STR.0000020711.38824.E3
I. W. (2010). Evidence for the validity of the American Medical Grice, K. O. (2021). The biomechanical frame of reference. In D. P.
Association’s Caregiver Self-Assessment Questionnaire as a screening Dirette & S. A. Gutman (Eds.), Occupational therapy for physical
measure for depression. Journal of the American Geriatrics Society, dysfunction (8th ed., pp. 673–684). Wolters Kluwer.
58, 387–388. https://doi.org/10.1111/j.1532-5415.2009.02701.x *Guerra, Z. F., Lucchetti, A. L. G., & Lucchetti, G. (2017). Motor
Fougeyrollas, P., Noreau, L., Lepage, C., Boschen, K., Picard, R., & imagery training after stroke: A systematic review and meta-
Boissiere, L. (2002). Assessment of life habits (Life-H for Children analysis of randomized controlled trials. Journal of Neurologic
1.0—Short Form). International Network on the Disability Creation Physical Therapy, 41, 205–214. https://doi.org/10.1097/NPT.000
Process. 0000000000200
Fugl-Meyer, A. R., J€a€ask€
o, L., Leyman, I., Olsson, S., & Steglind, S. Gutenbrunner, C., & Nugraha, B. (2020). Decision-making in
(1975). The post-stroke hemiplegic patient. 1. A method for evidence-based practice in rehabilitation medicine: Proposing a
evaluation of physical performance. Scandinavian Journal of fourth factor. American Journal of Physical Medicine and
Rehabilitation Medicine, 7, 13–31. https://doi.org/10.2340/ Rehabilitation, 99, 436–440. https://doi.org/10.1097/PHM.000
1650197771331 0000000001394
Geller, D., Goldberg, C., Winterbottom, L., Nilsen, D. M., Mahoney, D., Hammond, G., Luke, A. A., Elson, L., Towfighi, A., & Joynt Maddox,
& Gillen, G. (2023a). Systematic Review Briefs—Task oriented K. E. (2020). Urban–rural inequities in acute stroke care and in-
training interventions for adults with stroke to improve ADL and hospital mortality. Stroke, 51, 2131–2138. https://doi.org/10.1161/
functional mobility performance (2012–2019). American Journal of STROKEAHA.120.029318
Occupational Therapy, 77(Suppl. 1), 7710393050. https://doi.org/ Hara, Y. (2015). Brain plasticity and rehabilitation in stroke patients.
10.5014/ajot.2023.77S10005 Journal of Nippon Medical School, 82, 4–13. https://doi.org/10.1272/
Geller, D., Goldberg, C., Winterbottom, L., Nilsen, D. M., Mahoney, D., jnms.82.4
& Gillen, G. (2023b). Systematic Review Brief—Task-oriented *Hartke, R. J., & King, R. B. (2003). Telephone group intervention for
training with cognitive strategies for adults with stroke to improve older stroke caregivers. Topics in Stroke Rehabilitation, 9, 65–81.
ADL and/or functional mobility performance (2012–2019). American https://doi.org/10.1310/RX0A-6E2Y-BU8J-W0VL
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 40
Hays, R. D., Sherbourne, C. D., & Mazel, R. M. (1993). The Rand daily living (IADL) among adult stroke survivors (2009–2019).
36-Item Health Survey 1.0. Health Economics, 2, 217–227. https://doi. American Journal of Occupational Therapy, 77(Suppl. 1), 7710393090.
org/10.1002/hec.4730020305 https://doi.org/10.5014/ajot.2023.77S10009
Hetherington, R. (1954). The Snellen chart as a test of visual acuity. *Kuo, Y.-W., Yen, M., Fetzer, S., Chiang, L.-C., Shyu, Y.-I. L., Lee, T.-H.,
Psychologische Forschung, 24, 349–357. https://doi.org/10.1007/ & Ma, H.-I. (2016). A home-based training programme improves
BF00422033 family caregivers’ oral care practices with stroke survivors: A
Higgins, J. P. T., Sterne, J. A. C., Savovic, J., Page, M. J., Hrobjartsson, A., randomized controlled trial. International Journal of Dental Hygiene,
Boutron, I., … , Eldridge, S. A. (2016). Revised tool for assessing risk 14, 82–91. https://doi.org/10.1111/idh.12138
of bias in randomized trials. Cochrane Database of Systematic *Laver, K. E., Lange, B., George, S., Deutsch, J. E., Saposnik, G., & Crotty,
Reviews. https://doi.org/10.1002/14651858.CD201601 M. (2017). Virtual reality for stroke rehabilitation. Cochrane Database
Higgins, J. P. T., Thomas, J., Chandler, J., Cumpston, M., Li, T., Page, of Systematic Reviews. https://doi.org/10.1002/14651858.CD008349.
M. J., & Welch, V. A. (Eds.). (2019). Cochrane handbook for pub4
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
systematic reviews of interventions (2nd ed.). Wiley. https://doi.org/ Law, M., Baptiste, S., Carswell, A., McColl, M., Polatajko, H., & Pollock,
10.1002/9781119536604. N. (2019). Canadian Occupational Performance Measure (5th ed.,
Highfield, L., Hartman, M. A., Mullen, P. D., Rodriguez, S. A., rev.). COPM, Inc.
Fernandez, M. E., & Bartholomew, L. K. (2015). Intervention Law, M., Cooper, B., Strong, S., Stewart, D., Rigby, P., & Letts, L. (1996).
mapping to adapt evidence-based interventions for use in practice: The Person–Environment–Occupation model: A transactive
Increasing mammography among African American women. BioMed approach to occupational performance. Canadian Journal of
Research International, 2015, 160103. https://doi.org/10.1155/2015/ Occupational Therapy, 63, 9–23. https://doi.org/10.1177/
160103 000841749606300103
*Hsieh, Y. W., Chang, K. C., Hung, J. W., Wu, C. Y., Fu, M. H., & Chen, Lawson, S., Rowe, A., & Meredith, Y. Y. (2015). Survey of stroke
C. C. (2018). Effects of home-based versus clinic-based rehabilitation caregiver training provided by OT, PT, and SLP across practice
combining mirror therapy and task-specific training for patients with
settings. Physical and Occupational Therapy in Geriatrics, 33,
stroke: A randomized controlled crossover trial. Archives of Physical
320–335. https://doi.org/10.3109/02703181.2015.1089970
Medicine and Rehabilitation, 99, P2309–P2407. https://doi.org/
*Legg, L. A., Lewis, S. R., Schofield-Robinson, O. J., Drummond, A., &
10.1016/j.apmr.2018.03.017
Langhorne, P. (2017). Occupational therapy for adults with problems
*Hsieh, Y. W., Liing, R. J., Lin, K. C., Wu, C. Y., Liou, T. H., Lin, J. C., &
in activities of daily living after stroke. Stroke, 48, e321–e322. https://
Hung, J. W. (2016). Sequencing bilateral robot-assisted arm therapy
doi.org/10.1161/STROKEAHA.117.018923
and constraint-induced therapy improves reach to press and trunk
*Li, R., Li, Z., Tan, J., Chen, G., & Lin, W. (2017). Effects of mote
kinematics in patients with stroke. Journal of Neuroengineering and
imagery on walking function and balance in stroke patients: A
Rehabilitation, 13, 31. https://doi.org/10.1186/s12984-016-0138-5
quantitative synthesis of randomized controlled trials.
Ikeme, S., Kottenmeier, E., Uzochukwu, G., & Brinjikji, W. (2022).
Complementary Therapies in Clinical Practice, 28, 75–84. https://doi.
Evidence-based disparities in stroke care metrics and outcomes in the
org/10.1016/j.ctcp.2017.05.009
United States: A systematic review. Stroke, 53, 670–679. https://doi.
*Lin, C. H., Chou, L. W., Luo, H. J., Tsai, P. Y., Lieu, F. K., Chiang, S. L.,
org/10.1161/STROKEAHA.121.036263
& Sung, W. H. (2015). Effects of computer-aided interlimb force
Johns Hopkins Medicine. (2022). Effects of stroke. https://www.
coupling training on paretic hand and arm motor control following
hopkinsmedicine.org/health/conditions-and-diseases/stroke/
chronic stroke: A randomized controlled trial. PLoS One, 10,
effects-of-stroke
e0131048. https://doi.org/10.1371/journal.pone.0131048
*Kalra, L., Evans, A., Perez, I., Melbourn, A., Patel, A., Knapp, M., &
*Lin, K. C., Wu, C. Y., Liu, J. S., Chen, Y. T., & Hsu, C. J. (2009).
Donaldson, N. (2004). Training carers of stroke patients: randomised
Constraint-induced therapy versus dose-matched control
controlled trial. BMJ, 328, 1099. https://doi.org/10.1136/
intervention to improve motor ability, basic/extended daily functions,
bmj.328.7448.1099
and quality of life in stroke. Neurorehabilitation and Neural Repair,
*Kamal, A. K., Shaikh, Q., Pasha, O., Azam, I., Islam, M., Memon, A. A.,
. . . Khoja, S. (2015). A randomized controlled behavioral 23, 160–165. https://doi.org/10.1177/1545968308320642
intervention trial to improve medication adherence in adult stroke *Lincoln, N. B., Francis, V. M., Lilley, S. A., Sharma, J. C., &
patients with prescription tailored Short Messaging Service Summerfield, M. (2003). Evaluation of a stroke family support
(SMS)—SMS4Stroke study. BMC Neurology, 15, 212. https://doi.org/ organiser: A randomized controlled trial. Stroke, 34, 116–121. https://
10.1186/s12883-015-0471-5 doi.org/10.1161/01.STR.0000047850.33686.32
*Kim, H. J., Lee, Y., & Sohng, K. Y. (2014). Effects of bilateral passive *Liu, K. P. Y., Balderi, K., Leung, T. L. F., Yue, A. S. Y., Lam, N. C. W.,
range of motion exercise on the function of upper extremities and Cheung, J. T. Y., . . . Mok, V. C. T. (2016). A randomized controlled
activities of daily living in patients with acute stroke. Journal of trial of self-regulated modified constraint-induced movement therapy
Physical Therapy Science, 26, 149–156. https://doi.org/10.1589/ in sub-acute stroke patients. European Journal of Neurology, 23,
jpts.26.149 1351–1360. https://doi.org/10.1111/ene.13037
*King, R. B., Hartke, R. J., Houle, T., Lee, J., Herring, G., Alexander- *Liu, K. P. Y., Hanly, J., Fahey, P., Fong, S. S. M., & Bye, R. (2019). A
Peterson, B. S., & Raad, J. (2012). A problem-solving early systematic review and meta-analysis of rehabilitative interventions for
intervention for stroke caregivers: One year follow-up. Rehabilitation unilateral spatial neglect and hemianopia poststroke from 2006
Nursing, 37, 231–243. https://doi.org/10.1002/rnj.039 through 2016. Archives of Physical Medicine and Rehabilitation, 100,
*Kongkasuwan, R., Voraakhom, K., Pisolayabutra, P., Maneechai, P., 956–979. https://doi.org/10.1016/j.apmr.2018.05.037
Boonin, J., & Kuptniratsaikul, V. (2016). Creative art therapy to *Liu, T. W., Ng, G. Y. F., Chung, R. C. K., & Ng, S. S. M. (2019).
enhance rehabilitation for stroke patients: A randomized controlled Decreasing fear of falling in chronic stroke survivors through
trial. Clinical Rehabilitation, 30, 1016–1023. https://doi.org/10.1177/ cognitive behavior therapy and task-oriented training. Stroke, 50,
0269215515607072 148–154. https://doi.org/10.1161/STROKEAHA.118.022406
Kotler, J. M., Mahoney, D., Nilsen, D. M., & Gillen, G. (2023). Systematic Loh, A. Z., Tan, J. S., Zhang, M. W., & Ho, R. C. (2017). The global
Review Brief—Effectiveness of occupational therapy interventions to prevalence of anxiety and depressive symptoms among caregivers of
improve performance and participation in instrumental activities of stroke survivors. JAMDA: The Journal of Post-Acute and Long-Term
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 41
Care Medicine, 18, 111–116. https://doi.org/10.1016/j. *O’Carroll, R. E., Chambers, J. A., Dennis, M., Sudlow, C., & Johnston,
jamda.2016.08.014 M. (2013). Improving adherence to medication in stroke survivors: A
*Louie, D. R., Lim, S. B., & Eng, J. J. (2019). The efficacy of lower pilot randomised controlled trial. Annals of Behavioral Medicine, 46,
extremity mirror therapy for improving balance, gait, and motor 358–368. https://doi.org/10.1007/s12160-013-9515-5
function poststroke: A systematic review and meta-analysis. Journal *Ostwald, S. K., Godwin, K. M., Cron, S. G., Kelley, C. P., Hersch, G., &
of Stroke and Cerebrovascular Diseases, 28, 107–120. https://doi.org/ Davis, S. (2014). Home-based psychoeducational and mailed
10.1016/j.jstrokecerebrovasdis.2018.09.017 information programs for stroke-caregiving dyads post-discharge: A
Lyle, R. C. (1981). A performance test for assessment of upper limb randomized trial. Disability and Rehabilitation, 36, 55–62. https://doi.
function in physical rehabilitation treatment and research. org/10.3109/09638288.2013.777806
International Journal of Rehabilitation Research, 4, 483–492. https:// Oxford Centre for Evidence-Based Medicine. (2009). Oxford Centre
doi.org/10.1097/00004356-198112000-00001 for Evidence-Based Medicine: Levels of evidence (March 2009).
*Lyu, D., Lyu, X., Zhang, Y., Ren, Y., Yang, F., Zhou, L., … , Li, Z. (2018). https://www.cebm.ox.ac.uk/resources/levels-of-evidence/
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
Tai Chi for stroke rehabilitation: A systematic review and meta- oxford-centrefor-evidence-based-medicine-levels-of-evidence-
analysis of randomized controlled trials. Frontiers in Physiology, 9, march-2009
983. https://doi.org/10.3389/fphys.2018.00983 *Peng, T. H., Zhu, J. D., Chen, C. C., Tai, R. Y., Lee, C. Y., & Hsieh,
Mack, A., & Hildebrand, M. (2023). Interventions for caregivers of Y. W. (2019). Action observation therapy for improving arm
people who have had a stroke: A systematic review. American Journal function, walking ability, and daily activity performance after stroke:
of Occupational Therapy, 77, 7701205180. https://doi.org/10.5014/ A systematic review and meta-analysis. Clinical Rehabilitation, 33,
ajot.2023.050012 1277–1285. https://doi.org/10.1177/0269215519839108
Mahoney, D., Kotler, J. M., Nilsen, D. M., & Gillen, G. (2023). *Perrin, P. B., Johnston, A., Vogel, B., Heesacker, M., Vega-Trujillo, M.,
Systematic Review Brief—Effectiveness of task-oriented Anderson, J., & Rittman, M. (2010). A culturally sensitive Transition
approaches and occupation-based activities to improve Assistance Program for stroke caregivers: examining caregiver mental
performance and participation in instrumental activities of daily health and stroke rehabilitation. Journal of Rehabilitation Research
living (IADL) among adult stroke survivors (2009–2019). and Development, 47, 605–617. https://doi.org/10.1682/
American Journal of Occupational Therapy, 77(Suppl. 1), JRRD.2009.10.0170
7710393080. https://doi.org/10.5014/ajot.2023.77S10008 *Pfeiffer, K., Beische, D., Hautzinger, M., Berry, J. W., Wengert, J.,
*Mant, J., Carter, J., Wade, D. T., & Winner, S. (2000). Family support Hoffrichter, R., . . . Elliott, T. R. (2014). Telephone-based
for stroke: a randomised controlled trial. Lancet, 356, 808–813. problem-solving intervention for family caregivers of stroke
https://doi.org/10.1016/S0140-6736(00)02655-6 survivors: A randomized controlled trial. Journal of Consulting
Mant, J., Winner, S., Roche, J., & Wade, D. T. (2005). Family support for and Clinical Psychology, 82, 628–643. https://doi.org/10.1037/
stroke: One year follow up of a randomised controlled trial. Journal a0036987
of Neurology, Neurosurgery and Psychiatry, 76, 1006–1008. https://doi. Portegies, M. L. P., Selwaness, M., Hofman, A., Koudstaal, P. J., Vernooij,
org/10.1136/jnnp.2004.048991 M. W., & Ikram, M. A. (2015). Left-sided strokes are more often
Marshall, I. J., Wang, Y., Crichton, S., McKevitt, C., Rudd, A. G., & recognized than right-sided strokes: The Rotterdam study. Stroke, 46,
Wolfe, C. D. (2015). The effects of socioeconomic status on stroke 252–254. https://doi.org/10.1161/STROKEAHA.114.007385
risk and outcomes. Lancet Neurology, 14, 1206–1218. https://doi.org/ Powers, W. J., Rabinstein, A. A., Ackerson, T., Adeoye, O. M.,
10.1016/S1474-4422(15)00200-8 Bambakidis, N. C., Becker, K., . . . Tirschwell, D. L. (2019). Guidelines
Martini, R., Rios, J., Polatajko, H., Wolf, T., & McEwen, S. (2015). The for the early management of patients with acute ischemic stroke: 2019
Performance Quality Rating Scale (PQRS): Reliability, convergent update to the 2018 guidelines for the early management of acute
validity, and internal responsiveness for two scoring systems. ischemic stroke: A guideline for healthcare professional from the
Disability and Rehabilitation, 37, 231–238. https://doi.org/10.3109/ American Heart Association/American Stroke Association. Stroke, 50,
09638288.2014.913702 e344–e418. https://doi.org/10.1161/STR.0000000000000211
Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G.; PRISMA Group. Proffitt, R., Boone, A., Hunter, E. G., Schaffer, O., Strickland, M., Wood,
(2009). Preferred reporting items for systematic reviews and meta- L., & Wolf, T. J. (2022). Interventions to improve social participation,
analyses: The PRISMA statement. PLoS Medicine, 6, e1000097. work, and leisure among adults poststroke: A systematic review.
https://doi.org/10.1371/journal.pmed.1000097 American Journal of Occupational Therapy, 76, 7605205120. https://
Mulder, M., & Nijland, R. (2016). Stroke Impact Scale. Journal of doi.org/10.5014/ajot.2022.049305
Physiotherapy, 62, 117. https://doi.org/10.1016/j.jphys.2016.02.002 Radloff, L. S. (1977). The CES–D scale: A self-report depression scale for
Nasreddine, Z. S., Phillips, N. A., Bédirian, V., Charbonneau, S., research in the general population. Applied Psychological
Whitehead, V., Collin, I., . . . Chertkow, H. (2005). The Montreal Measurements, 1, 385–401. https://doi.org/10.1177/
Cognitive Assessment, MoCA: A brief screening tool for mild 014662167700100306
cognitive impairment. Journal of the American Geriatrics Society, 53, Rahayu, U. B., Wibowo, S., Setyopranoto, I., & Hibatullah Romli, M.
695–699. https://doi.org/10.1111/j.1532-5415.2005.53221.x (2020). Effectiveness of physiotherapy interventions in brain
National Heart, Lung, and Blood Institute. (2014). Quality assessment tool plasticity, balance and functional ability in stroke survivors: A
for before–after (pre–post) studies with no control group. https://www. randomized controlled trial. NeuroRehabilitation, 47, 463–470.
nhlbi.nih.gov/health-topics/study-quality-assessment-tools https://doi.org/10.3233/NRE-203210
National Institute of Neurological Disorders and Stroke. (2011). NIH Rasmussen, R. S., Ostergaard, A., Kjaer, P., Skerris, A., Skou, C.,
stroke scale. https://www.ninds.nih.gov/health-information/ Christoffersen, J., . . . Overgaard, K. (2016). Stroke rehabilitation at
public-education/know-stroke/health-professionals/ home before and after discharge reduced disability and improved
nih-stroke-scale quality of life: A randomised controlled trial. Clinical Rehabilitation,
Nilsen, D. M., & Gillen, G. (2021). Motor learning and task-oriented 30, 225–235. https://doi.org/10.1177/0269215515575165
approaches. In D. P. Dirette & S. A. Gutman (Eds.), Occupational Rebuilding Together (n.d.). Safe at Home Checklist. https://www.aota.org/
therapy for physical dysfunction (8th ed., pp. 699–715). Wolters ~/media/Corporate/Files/Practice/Aging/rebuilding-together/RT-
Kluwer. Aging-in-Place-Safe-at-Home-Checklist.pdf
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 42
Reinhard, S. C., Young, H. M., Levine, C., Kelly, K., Choula, R. B., & U.S. Preventive Services Task Force. (2018). Grade definitions.
Accius, J. (2019). Home alone revisited: Family caregivers providing https://www.uspreventiveservicestaskforce.org/Page/Name/
complex chronic care. Innovation in Aging, 3(Suppl. 1), S747–S748. grade-definitions
https://doi.org/10.1093/geroni/igz038.2740 *van den Heuvel, E. T., de Witte, L. P., Nooyen-Haazen, I., Sanderman,
Robinson, K. A., Saldanha, I. J., & McKoy, N. A. (2011). Development of R., & Meyboom-de Jong, B. (2000). Short-term effects of a group
a framework to identify research gaps from systematic reviews. support program and an individual support program for caregivers
Journal of Clinical Epidemiology, 64, 1325–1330. https://doi.org/ of stroke patients. Patient Education and Counseling, 40, 109–120.
10.1016/j.jclinepi.2011.06.009 https://doi.org/10.1016/S0738-3991(99)00066-X
*Ru, X., Dai, H., Jiang, B., Li, N., Zhao, X., Hong, Z., . . . Wang, W. *van den Heuvel, E. T., Witte, L. P., Stewart, R. E., Schure, L. M.,
(2017). Community-based rehabilitation to improve stroke survivors’ Sanderman, R., & Meyboom-de Jong, B. (2002). Long-term effects of
rehabilitation participation and functional recovery. American a group support program and an individual support program for
Journal of Physical Medicine and Rehabilitation, 96, e123–e129. informal caregivers of stroke patients: Which caregivers benefit the
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
https://doi.org/10.1097/PHM.0000000000000650 most? Patient Education and Counseling, 47, 291–299. https://doi.org/
Sahelbalzamani, M., Aliloo, L., & Shakibi, A. (2009). The efficacy of self- 10.1016/S0738-3991(01)00230-0
care education on rehabilitation of stroke patients. Saudi Medical *van Duijnhoven, H. J., Heeren, A., Peters, M. A., Veerbeek, J. M.,
Journal, 30, 550–554. Kwakkel, G., Geurts, A. C., & Weerdesteyn, V. (2016). Effects of
Schuling, J., De Haan, R., Limburg, M. T., & Groenier, K. H. (1993). The exercise therapy on balance capacity in chronic stroke: Systematic
Frenchay Activities Index. Assessment of functional status in stroke review and meta-analysis. Stroke, 47, 2603–2610. https://doi.org/
patients. Stroke, 24, 1173–1177. https://doi.org/10.1161/01. 10.1161/STROKEAHA.116.013839
STR.24.8.1173 Van Lew, S., Geller, D., Feld-Glazman, R., Capasso, N., Dicembri, A., &
Schulz, R., & Eden, J. (Eds.). (2016). Families caring for an aging America. Pinto Zipp, G. (2015). Brief Report—Development and preliminary
National Academies Press. https://doi.org/10.17226/23606. reliability of the Functional Upper Extremity Levels (FUEL).
*Shin, J. H., Kim, M. Y., Lee, J. Y., Jeon, Y. J., Kim, S., Lee, S., . . . American Journal of Occupational Therapy, 69, 6906350010. https://
Choi, Y. (2016). Effects of virtual reality–based rehabilitation on doi.org/10.5014/ajot.2015.016006
distal upper extremity function and health-related quality of life: *Wang, S. B., Wang, Y. Y., Zhang, Q. E., Wu, S. L., Ng, C. H.,
A single-blinded, randomized controlled trial. Journal of Ungvari, G. S., . . . Xiang, Y. T. (2018). Cognitive behavioral
Neuroengineering and Rehabilitation, 13, 17. https://doi.org/ therapy for post-stroke depression: A meta-analysis. Journal of
10.1186/s12984-016-0125-x Affective Disorders, 235, 589–596. https://doi.org/10.1016/j.
*Shyu, Y.-I. L., Chen, M.-C., Chen, S.-T., Wang, H.-P., & Shao, J.-H. jad.2018.04.011
(2008). A family caregiver-oriented discharge planning program for *Wilz, G., & Barskova, T. (2007). Evaluation of a cognitive behavioral
older stroke patients and their family caregivers. Journal of Clinical group intervention program for spouses of stroke patients. Behaviour
Nursing, 17, 2497–2508. https://doi.org/10.1111/ Research and Therapy, 45, 2508–2517. https://doi.org/10.1016/j.
j.1365-2702.2008.02450.x brat.2007.04.010
*Shyu, Y.-I. L., Kuo, L.-M., Chen, M.-C., & Chen, S.-T. (2010). A clinical Winstead, S. R. (2021). The rehabilitation frame of reference. In D. P.
trial of an individualised intervention programme for family Dirette & S. A. Gutman (Eds.), Occupational therapy for physical
caregivers of older stroke victims in Taiwan. Journal of Clinical dysfunction (8th ed., pp. 685–698). Wolters Kluwer.
Nursing, 19, 1675–1685. https://doi.org/10.1111/j.1365-2702.2009. Winstein, C. J., Stein, J., Arena, R., Bates, B., Cherney, L. R., Cramer,
03124.x S. C., . . . Zorowitz, R. D.; American Heart Association Stroke
*Singh, N., Saini, M., Kumar, N., Srivastava, M. V. P., & Mehndiratta, A. Council, Council on Cardiovascular and Stroke Nursing, Council on
(2021). Evidence of neuroplasticity with robotic hand exoskeleton for Clinical Cardiology, and Council on Quality of Care and Outcomes
post-stroke rehabilitation: A randomized controlled trial. Journal of Research. (2016). Guidelines for adult stroke rehabilitation and
Neuroengineering and Rehabilitation, 18, 76. https://doi.org/10.1186/ recovery: A guideline for healthcare professionals from the American
s12984-021-00867-7 Heart Association/American Stroke Association. Stroke, 47, e98–e169.
*Sit, J. W., Chair, S. Y., Choi, K. C., Chan, C. W., Lee, D. T., Chan, https://doi.org/10.1161/STR.0000000000000098
A. W., . . . Taylor-Piliae, R. E. (2016). Do empowered stroke patients Winterbottom, L., Geller, D., Goldberg, C., Nilsen, D. M., Mahoney, D.,
perform better at self-management and functional recovery after a & Gillen, G. (2023). Systematic Review Brief—Occupational therapy
stroke? A randomized controlled trial. Clinical Interventions in Aging, and activities of daily living interventions to improve performance in
11, 1441–1450. https://doi.org/10.2147/CIA.S109560 activities of daily living for adults with stroke (2012–2019). American
Stuart, M., Benvenuti, F., Macko, R., Taviani, A., Segenni, L., Mayer, F., . . . Journal of Occupational Therapy, 77(Suppl. 1), 7710393070. https://
Weinrich, M. (2009). Community-based adaptive physical activity doi.org/10.5014/ajot.2023.77S10007
program for chronic stroke: Feasibility, safety, and efficacy of the Winterbottom, L., Goldberg, C., Geller, D., Nilsen, D. M., Mahoney, D.,
Empoli model. Neurorehabilitation and Neural Repair, 23, 726–734. & Gillen, G. (2023). Systematic Review Brief—Behavioral
https://doi.org/10.1177/1545968309332734 interventions to improve performance in activities of daily living for
Tipnis, S. S., Pawar, V. V., Shinde, R. A., Kumari, D., Padmashali, L., & adults with stroke (2012–2019). American Journal of Occupational
Mehrotra, S. (2023). Community integration among individuals with Therapy, 77(Suppl. 1), 7710393060. https://doi.org/10.5014/
stroke: a scoping review protocol. Journal of Public Health, 31, ajot.2023.77S10006
993–997. Wolf, S. L., Thompson, P. A., Morris, D. M., Rose, D. K., Winstein, C. J.,
Tsao, C. W., Aday, A. W., Almarzooq, Z. I., Alonso, A., Beaton, A. Z., Taub, E., . . . Pearson, S. L. (2005). The EXCITE trial: Attributes of
Bittencourt, M. S., . . . Martin, S. S. (2022). Heart disease and stroke the Wolf Motor Function Test in patients with subacute stroke.
statistics—2022 update: A report from the American Heart Neurorehabilitation and Neural Repair, 19, 194–205. https://doi.org/
Association. Circulation, 145, e153–e639. https://doi.org/10.1161/ 10.1177/1545968305276663
CIR.0000000000001052 Wolf, T. J., & Nilsen, D. M. (2015). Occupational therapy practice
Unnithan, A. K. A., Das, J. M., & Mehta, P. (2022, May 16). Hemorrhagic guidelines for adults with stroke. AOTA Press.
stroke. StatPearls Publishing. https://www.ncbi.nlm.nih.gov/books/ World Health Organization. (2007). International classification of
NBK559173/ functioning, disability, and health: for children and youth. https://
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 43
apps.who.int/iris/bitstream/handle/10665/43737/9789241547321_eng. Neuroscience, 390, 318–336. https://doi.org/10.1016/j.
pdf neuroscience.2018.06.044
*Wu, C. Y., Chen, Y. A., Lin, K. C., Chao, C. P., & Chen, Y. T. (2012).
Constraint-induced therapy with trunk restraint for improving
functional outcomes and trunk–arm control after stroke: A
randomized controlled trial. Physical Therapy, 92, 483–492. https://
doi.org/10.2522/ptj.20110213 Mary W. Hildebrand, OTD, OTR/L, is Associate Professor, Department of
*Xie, G., Rao, T., Lin, L., Lin, Z., Xiao, T., Yang, M., . . . Chen, L. (2018). Occupational Therapy, MGH Institute of Health Professions, Boston, MA.
Effects of Tai Chi Yunshou exercise on community-based stroke patients:
Daniel Geller, EdD, MPH, OTR/L, is Assistant Professor of Rehabilitation
A cluster randomized controlled trial. European Review of Aging and
and Regenerative Medicine, Programs in Occupational Therapy, Columbia
Physical Activity, 15, 17. https://doi.org/10.1186/s11556-018-0206-x
University, New York, NY.
*Yang, Y., Zhao, Q., Zhang, Y., Wu, Q., Jiang, X., & Cheng, G.
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
(2018). Effects of mirror therapy on recovery of stroke Rachel Proffitt, OTD, OTR/L, is Associate Professor, Department of
survivors: A systematic review and network meta-analysis. Occupational Therapy, University of Missouri, Columbia.
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 44
Table A.1. Search Strategy for Systematic Review Questions
Category Key Search Terms
Diagnosis and stroke, cerebrovascular accident, cerebrovascular disorders, hemiparesis, hemiplegia
conditions
Study and trial designs best practices, case control, case report, case series, clinical guidelines, clinical trial, cohort,
comparative study, controlled clinical trial, cross over, cross-sectional, double-blind, evaluation
study, evidence-based, evidence synthesis, feasibility study, follow-up, intervention, longitudinal,
main outcome measure, meta-analysis, multicenter study, observational study, outcome and
process assessment, practice guidelines, prospective, random allocation, randomized controlled
trials, single subject design, standard of care, systematic literature review, systematic review,
treatment outcome
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
All questions activities, adaptation, agnosia, ambulation, anosognosia, anxiety, aphasia, apraxia, arm, assistive
devices, assistive equipment, assistive technology, attention, awareness, balance, behavioral
activation, bilateral training, biofeedback, body neglect, cognition, cognitive behavioral therapy,
cognitive rehabilitation, cognitive reorganization, cognitive retraining, cognitive retraining model,
communication, communication technology, community care, community programs, constraint
induced movement therapy, contracture, depression, disease management, dual tasking,
dysexecutive syndrome, education, EMG, emotional regulation, energy conservation, edema,
environment, environmental modification, errorless learning, executive function, exercise, fall
prevention, falls, fatigue, field cut, forced use, functional activities, functional electrical stimulation,
gait, goal management, gravity loading, hand, health care utilization, health literacy, health
maintenance, health promotion, hemianopsia, home health, home modifications, inattention, insight,
intellectual function, intensity, judgment, kinematics, learning, leisure, lifts, lower extremity, lower
limb, massed practice, memory, mental practice, metacognitive training/instruction, mindfulness,
mirror therapy, mobility, mobility equipment, motivational interviewing, motor, motor behavior,
motor control, motor learning, motor recovery, multicontext approach, multi-tasking, neurofunctional
approach, neurorehabilitation, nonmotor symptoms, occupational therapy, organization, orientation,
orthotics, pain, perception, personal neglect, physical activity, planning, positioning, postural
control, practice, problem solving therapy, progressive resistive exercise, psychosocial, quality of
life (QOL), quadraphonic approach, recovery, rehabilitation, remediation, repetitive task practice,
robot assisted, robotics, scooters, self-management, sequencing, services, sling, social
engagement, spasticity, spatial neglect, spatial relations, splinting, strapping, strategy training,
strengthening, subluxation, taping, task oriented training, task related practice, task specific
practice, telehealth, therapy, time pressure management, training, transfer of training, transfers,
treadmill training, treatment, trunk, trunk control, upper limb, upper extremity, upper limb activity,
upper limb capacity, upper limb function, upper limb training, user computer interface, video
games, virtual reality, vision, visual motor, visual processing, visuospatial, walkers, weakness,
wellness programs, wheelchairs, yoga
Question 1: ADLs, rest Activities of daily living, basic activities of daily living, ADL, BADL, adaptive device, bathing, bowel
and sleep and bladder management, daily living activities, daily living skills, eating, feeding, functional
mobility, grooming, hearing aids, incontinence, mobility, mobility aid, oral hygiene, personal care,
personal device care, personal healthcare device, personal hygiene, self-care, self-feeding, self-
help devices, sexual activity, sexual behavior, sexual education, showering, toilet hygiene, toileting,
durable medical equipment, dressing, adaptive equipment, bedtime routine, napping, rest, sleep,
sleep hygiene, sleep participation, sleep preparation, relaxation, sleep deprivation, sleep quality,
sleep apnea, fatigue, insomnia, sleep medication, transfers, bed mobility
Question 2: IADLs activity therapy, child care, child rearing, communication skills training, community mobility, computer
literacy, cooking, daily activities, driving, electronic security systems, emergency preparation, energy
conservation, financial management, financial skills, food preparation, grandparent, grandparenting,
home maintenance, home management, home security, household maintenance, household
management, household security, housekeeping, IADL, instrumental activities, instrumental activities of
daily living, laundry, meal planning, meal preparation, medication management, menu planning, money
management, pets, religious service attendance, religious/spiritual activities, routines, safety, self-
management, shopping, telephone, transportation, walking, wellness
Question 3: Work, activity participation, adult education, career, civic engagement, civic participation, clubs,
leisure, and social community service, computer application, computer tablet, computer tablet technology, computer
participation use, continuing education, crafts, distance education, education, employment, employment
interests, employment pursuits, family relations, friends, friendships, games, hobbies, hobby,
informal education, interpersonal relations, job, job holder, job search, labor, labor force, leisure,
leisure activities, leisure exploration, leisure participation, lifelong learning, mobile application,
mobile device, mobile phone, neighbor relations, peer, personal support, phased retirement,
(Continued)
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 45
Table A.1. Search Strategy for Systematic Review Questions (Cont.)
Category Key Search Terms
political, productive activities, reading, recreation, relationships, retired senior volunteer program
(RSVP), retirement, retirement planning, retirement preparation, return to work, senior center,
smartphone use, social activity, social adjustment, social capital, social environment, social
interaction, social isolation, socialization, socializing, social participation, social skills, social
support, sports, travel, volunteer, volunteer exploration, volunteerism, volunteer participation,
volunteer work, wage earner, work, work role, work transition, worker, writing
Question 4: Caregiver caregiver, caregiver appraisal, caregiver burden, caregiver burnout, caregiver confidence, caregiver
burden depression, caregiver education, caregiver participation, caregiver perception, caregiver quality of life,
caregivers, caregiver strategies, caregiver stress, caregiver support, caregiver training, caregiver upset,
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
caregiving, care of others, care partner, carer, communication, family caregiver, family member, spouse,
informal caregiver, psychoeducation, psychosocial intervention, skill building
Note. ADL 5 activities of daily living; BADL 5 basic activities of daily living; EMG 5 electromyography; IADL 5 instrumental activities of
daily living; Q 5 question.
study), ecological study, or two-group non- consultation with a third party (an American Occu-
randomized study pational Therapy Association Evidence-Based Pro-
䊏
Level 3a: Systematic review of case–control studies gram team member) until consensus was reached.
䊏 Level 3b: Individual retrospective case–control The review teams then obtained and reviewed the
study, one-group nonrandomized pretest–post- full-text articles to determine inclusion or exclusion.
test study, or cohort study They extracted data from the included studies in an
䊏 Level 4: Case series (or low-quality cohort or evidence table that summarized each study’s meth-
case–control study) ods, risk-of-bias evaluation, participants, interven-
䊏 Level 5: Expert opinion without explicit critical tion setting, intervention and control conditions,
appraisal. outcome measures, and results.
Article Screening and Data Extraction Quality of the Evidence and Risk of
A medical librarian conducted the searches and re- Bias
moved duplicates; review teams (of at least two au- Two members of the review teams independently
thors) independently screened titles and abstracts assigned quality ratings to each study and collabo-
based on the inclusion criteria. Reviewers resolved rated to reach consensus. The review teams evalu-
any differences by discussion and, if necessary, ated the risk of bias on the basis of study design
䊏 As more information (other research findings) becomes available, the magnitude or direction of the ob-
served effect could change, and this change may be large enough to alter the conclusion related to the
usefulness of the intervention.
Low 䊏 Small number of low-level studies, flaws in the studies, etc.
䊏
The available evidence is insufficient to assess effects on health and other outcomes of relevance to occu-
pational therapy. Evidence is insufficient because of
* limited number or size of studies,
䊏 More information may allow estimation of effects on health and other outcomes of relevance to occupa-
tional therapy.
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 46
Table A.3. Number of Articles Included in the Systematic Reviews, by Topic
Level of Evidence
Review Question Topic 1a 1b 2b Total
ADLs 24 42 0 66
IADL 0 9 10 19
Education, work, leisure, volunteering, social participation 0 17 32 49
Caregiver 0 22 12 34
Total 24 90 54 168
Note. None of the studies included in these reviews reported adverse events or harms related to the interventions evaluated. ADLs 5 activi-
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
ties of daily living; IADLs 5 instrumental activities of daily living.
(controlled or noncontrolled trial). For studies that guidelines.) Citations for the systematic review articles
included a control group (randomized or non- and systematic review briefs are as follows:
randomized), they used the Cochrane tool (Higgins
et al., 2016); for noncontrolled trials, they used a Geller, D., Goldberg, C., Winterbottom, L., Nilsen, D. M., Mahoney, D.,
tool developed by the National Heart, Lung, and & Gillen, G. (2023a). Systematic Review Briefs—Task oriented
Blood Institute (2014). training interventions for adults with stroke to improve ADL and
functional mobility performance (2012–2019). American Journal of
Occupational Therapy, 77(Suppl. 1), 7710393050. https://doi.org/
Strength of Evidence 10.5014/ajot.2023.77S10005
Each systematic review team grouped the evidence Geller, D., Goldberg, C., Winterbottom, L., Nilsen, D. M., Mahoney, D., &
into themes and determined the strength of the evi- Gillen, G. (2023b). Systematic Review Brief—Task-oriented training with
cognitive strategies for adults with stroke to improve ADL and/or functional
dence for each theme. The strength-of-evidence desig-
mobility performance (2012–2019). American Journal of Occupational
nations are outlined in Table A.2 and are based on
Therapy, 77(Suppl. 1), 7710393030. https://doi.org/10.5014/
U.S. Preventive Services Task Force (2018) guidelines.
ajot.2022.77S10003
Strength-of-evidence designations are a synthesis of Geller, D., Winterbottom, L., Goldberg, C., Nilsen, D. M., Mahoney, D., &
number of studies, level of evidence, quality of evi- Gillen, G. (2023). Systematic Review Briefs—Exercise for adults with
dence (risk of bias), and findings of the studies (e.g., stroke to improve ADL and/or functional mobility performance
significance). Synthesizing these four elements of the (2012–2019). American Journal of Occupational Therapy, 77(Suppl. 1),
evidence enabled the review authors to determine the 7710393040. https://doi.org/10.5014/ajot.2023.77S10004
level of certainty that the interventions discussed in Goldberg, C., Winterbottom, L., Geller, D., Nilsen, D. M., Mahoney, D.,
the articles resulted in the outcomes shown. & Gillen, G. (2023a). Systematic Review Brief—Preparatory
interventions to support ADL performance for adults with stroke
(2012–2019). American Journal of Occupational Therapy, 77(Suppl.
Overview of Search Results 1), 7710393010. https://doi.org/10.5014/ajot.2023.77S10001
The searches located 82,357 citations and abstracts for Goldberg, C., Winterbottom, L., Geller, D., Nilsen, D. M., Mahoney, D.,
Questions 1–3 and 2,976 for Question 4. The research & Gillen, G. (2023b). Systematic Review Brief—Technology-related
methodologist completed the first step of eliminating interventions to improve performance in activities of daily living for
adults with stroke (2012–2019). American Journal of Occupational
references on the basis of title, removing duplicates and
Therapy, 77(Suppl. 1), 7710393020. 10.5014/ajot.2022.77S10002
studies clearly not within the parameters of the review
Kotler, J. M., Mahoney, D., Nilsen, D. M., & Gillen, G. (2023). Systematic
(e.g., date of publication, population, intervention). This
Review Brief—Effectiveness of occupational therapy interventions to
step reduced the number of citations to 9,411 (Questions improve performance and participation in instrumental activities of
1–3) and 547 (Question 4), which were given to the re- daily living (IADL) among adult stroke survivors (2009–2019).
view teams. American Journal of Occupational Therapy, 77(Suppl. 1), 7710393090.
Teams of two or more reviewers with expertise in https://doi.org/10.5014/ajot.2023.77S10009
the content areas carried out the systematic reviews. Mack, A., & Hildebrand, M. (2023). Interventions for caregivers of people who
The review teams completed the next step of eliminat- have had a stroke: A systematic review. American Journal of Occupational
ing references on the basis of the abstracts, retrieved Therapy, 77, 7701205180. https://doi.org/10.5014/ajot.2023.050012
the full-text versions of potential articles, and deter- Mahoney, D., Kotler, J. M., Nilsen, D. M., & Gillen, G. (2023). Systematic
mined final inclusion in the reviews on the basis of the Review Brief—Effectiveness of task-oriented approaches and
occupation-based activities to improve performance and participation
inclusion and exclusion criteria.
in instrumental activities of daily living (IADL) among adult stroke
A total of 168 studies were included in the systematic
survivors (2009–2019). American Journal of Occupational Therapy,
reviews—24 Level 1a, 90 Level 1b, and 54 Level 2b stud- 77(Suppl. 1), 7710393080. https://doi.org/10.5014/ajot.2023.77S10008
ies—and served as the basis for the clinical recommen- Proffitt, R., Boone, A., Hunter, E. G., Schaffer, O., Strickland, M., Wood,
dations. Table A.3 lists the number of articles included L., & Wolf, T. J. (2022). Interventions to improve social participation,
in each review and their levels of evidence. (Note that work, and leisure among adults poststroke: A systematic review.
some articles addressed multiple outcomes of interest American Journal of Occupational Therapy, 76, 7605205120. https://
and are discussed in more than one section of these doi.org/10.5014/ajot.2022.049305
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 47
Winterbottom, L., Geller, D., Goldberg, C., Nilsen, D. M., Mahoney, D., & Winterbottom, L., Goldberg, C., Geller, D., Nilsen, D. M., Mahoney, D.,
Gillen, G. (2023). Systematic Review Brief—Occupational therapy and & Gillen, G. (2023). Systematic Review Brief—Behavioral
activities of daily living interventions to improve performance in interventions to improve performance in activities of daily living for
activities of daily living for adults with stroke (2012–2019). American adults with stroke (2012–2019). American Journal of Occupational
Journal of Occupational Therapy, 77(Suppl. 1), 7710393070. https://doi. Therapy, 77(Suppl. 1), 7710393060. https://doi.org/10.5014/
org/10.5014/ajot.2023.77S10007 ajot.2023.77S10006
Downloaded from http://research.aota.org/ajot/article-pdf/77/5/7705397010/83109/7705397010.pdf by North Shore Medical Center, Mary Hildebrand on 31 October 2023
THE AMERICAN JOURNAL OF OCCUPATIONAL THERAPY SEPTEMBER/OCTOBER 2023, VOLUME 77, NUMBER 5 48
View publication stats