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VIS Report

The Jamila Sultana Foundation (JSF) is dedicated to combating thalassemia in Pakistan through comprehensive treatment and prevention initiatives. The foundation provides essential services to over 600 patients, focusing on awareness, blood transfusions, and medical support without relying on external financial assistance. The report outlines volunteer activities, including data management and patient support, highlighting the importance of structured documentation in healthcare and offering recommendations for improving operational efficiency.

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Saad Khan
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0% found this document useful (0 votes)
82 views12 pages

VIS Report

The Jamila Sultana Foundation (JSF) is dedicated to combating thalassemia in Pakistan through comprehensive treatment and prevention initiatives. The foundation provides essential services to over 600 patients, focusing on awareness, blood transfusions, and medical support without relying on external financial assistance. The report outlines volunteer activities, including data management and patient support, highlighting the importance of structured documentation in healthcare and offering recommendations for improving operational efficiency.

Uploaded by

Saad Khan
Copyright
© © All Rights Reserved
We take content rights seriously. If you suspect this is your content, claim it here.
Available Formats
Download as PDF, TXT or read online on Scribd

Jamila Sultana Foundation

Volunteers In Service Directorate (VIS)​


Volunteer Service Placement Report

February 10, 2025 ​ March 3, 2025


House 212، Street 12 Lane 6B, Chaklala Scheme 3 Chaklala Housing Scheme 3,
Rawalpindi, 46000​

Muhammad Saad​
BCE213051​


Capital University of Science and Technology, Islamabad
Table of Contents​

Introduction of the Individual​


Organizational Profile
Our Chairman Message
Our Director Message
What is Thalassemia?
About Jamila Sultana Foundation
Overview​
Scope of VIS Activities​
Date/Day-wise Ativities​
Summing Up​
Lessons Learnt​
Recommendations​
Views about Jamila Sultana Foundation
Worksite Working Shots
Introduction of the Individual​
Muhammad Saad​
BCE213051​
Department of Civil Engineering - 213​
0317-580-4746 - saadyuri987@[Link]​

As a civil engineer, my mission is to design and develop sustainable, resilient, and innovative
infrastructure that enhances the quality of life for communities. I am committed to leveraging my
technical expertise to create efficient, environmentally responsible, and lasting solutions that
address real-world challenges. Through continuous learning and ethical engineering practices, I
strive to contribute to a future where infrastructure harmonizes with nature, fosters economic
growth, and ensures safety and sustainability for generations to come.

Organizational Profile​

Our Chairman Message



Ever since the establishment of Jamila Sultana Foundation in 2004, the aim was to provide
quality services to maximum thalassemia under a conducive environment, both for children and
their families. We have accepted an upheaval task to provide best complementary services to all
dependent patients, irrespective of their social status by meeting all the financial needs by Global
Pharmaceuticals, implicitly. Alhamd O Lillah, JSF is not only successfully providing the
sustained quality services to more than 600 patients but also achieved new heights in terms of
modern techniques with state of the art gadgets to deal with the menace of thalassemia.

Indeed, it is a matter of great contentment as chairman that JSF as an esteemed institute has
extended its services to carry out free Serum Ferritin tests of 400 thalassemia patients’ dependent
on Holy Family Hospital. During a formal visit of Global Pharma by Dr. Nasir Shah,
commandant CEO of NMHRA Afghanistan expressed his interest to extend services for 50
thalassemic patients of Afghanistan by providing all possible financial support, expertise to
establish a state of the art thalassemia center at Jalalabad. Global Pharma is committed to provide
all possible services after formal consent by the government of Afghanistan.​

We bow our heads to Almighty Allah for achieving new heights not only in extending quality
services to the overwhelming majority of thalassemic children but also exploring new zenith in
the field of modern trends to deal with thalassemia. JSF has sponsored Dr, Tanzil (Pathologist) to
participate in the 14th International Conference on Thalassemia and hemoglobinopathies and
16th T.I.F International Conference (Joint venture) for Introduction of new modalities of
treatment of thalassemia with the vision to “Fight Thalassemia as a National Cause”
Muhammad Asad Khawaja​
Chairman, JSF​
CEO Global Pharmaceutical Company Pvt.

Our Director Message



Since its inception, Jamila Sultana Foundation (JSF) is striving hard for treatment and prevention
of thalassemia by providing quality services to maximum people i.e. patients from most parts of
Pakistan including FATA and AJK. The only fast growing project in Pakistan, sustaining without
financial assistance from any individual, group or Govt. of Pakistan. This organization was set
up with a clear vision and defined goals to fight thalassemia as a National cause. Besides its
primary role of dealing with treatment, JSF is fully committed to deal with the core issue of
awareness and prevention of disease at National level with the help of all stakeholders to protect
our forthcoming generations in Pakistan.

Unfortunately, no worthwhile steps have been taken at the national level to deal with the problem
except sharing statistics about annual growth of thalassemia in our population. We are lacking in
sharing the problem at national level and seeking the technical assistance from international
organizations like Thalassemia international Federation or WHO to evolve a comprehensive
strategy to deal with this dreadful genetic disorder. Therefore, we must evolve a comprehensive
National policy to suggest to the Govt. and other stakeholders about the means and ways to deal
with the problem.

Most importantly, we need to have a platform at the federal level to channelize the dedicated
efforts of the private and public sector to coordinate at the national level with support of
international technical agencies. Although all the four provinces of Punjab, KPK, Sindh and
Balochistan have already passed the laws / resolutions for extreme preventive measures like
compulsory blood screening before marriage, hardly any success has been achieved.

We can revamp and streamline the role and scope of existing infrastructure to deal with
thalassemia more effectively and achieve the desired goals. The tactical or operational role can
be assigned to Thalassemia Federation of Pakistan to adopt a more pragmatic approach regarding
treatment and prevention of disease along with effective role of umbrella organization for those
institutes directly dealing with thalassemia both in public & private sector. However, Safe Blood
and Transfusion Programmed (SBTP) may deal with issues on a strategic level i.e. evolving
comprehensive National Vision/Policy and Strategic Framework after seeking/coordinating
technical assistance from TIF, WHO and Govt. Therefore, I would recommend that Prof. Dr.
Hassan Abbas Zaheer National Coordinator (SBTP) to recapitulate his previous efforts by
inviting all stakeholders at national and International level to build consensus to formulate a
comprehensive strategy.​
Col (R) Tauqir Abbas​
Project Director, JSF

What is Thalassemia?

Thalassemia is a genetic blood disorder characterized by abnormal hemoglobin production,
leading to anemia. Hemoglobin is a protein in red blood cells that carries oxygen throughout the
body. In thalassemia, the body produces either fewer than normal red blood cells or red blood
cells that are smaller and more fragile than usual. This leads to symptoms such as fatigue,
weakness, pale skin, jaundice, and in severe cases, bone deformities and organ damage.​

There are different types of thalassemia, classified based on which part of the hemoglobin
molecule is affected and the severity of the condition. The two main types are alpha thalassemia
and beta thalassemia, depending on which globin chain (alpha or beta) is affected. The severity
of thalassemia can range from mild, where the person may not require treatment, to severe,
where regular blood transfusions and other medical interventions are necessary to manage the
condition.

Thalassemia is inherited, meaning it is passed down from parents to their children through faulty
genes. The condition is more common in people of Mediterranean, Middle Eastern, Southeast
Asian, and African descent, but it can occur in any ethnic group. Treatment for thalassemia
typically involves blood transfusions, iron chelation therapy to remove excess iron from the
body, and in some cases, bone marrow transplant.

‫تھیلیسیمیا ایک خون کی بیماری ہے جو جسم میں خون کی خوبصورتی کو متاثر کرتی ہے۔ یہ ایک جینی اختالل ہے جو‬
‫خون میں هموگلوبین کی درست بنیادوں کی تشکیل کو متاثر کرتا ہے۔ عام طور پر اس میں معمولی سے لے کر شدید‬
‫درجے تک کی خون کی کمی ہوتی ہے۔ یہ بیماری عموما ً خونی خاندانوں میں وارثی طور پر پایا جاتا ہے۔ اس کا عالج‬
،‫ مثالً خون کے نوکلئیک کو درست کرنے کے لئے خون کے اینفیوژن‬،‫ترکیبی ہوتا ہے جو خون کی کمی کو کم کرتا ہے‬
‫ اور مصنوعی هموگلوبین کے انتقال شامل ہوتے ہیں‬،‫خون کی انتقال‬

About Jamila Sultana Foundation



Jamila Sultana Foundation commonly known as JSF was established in 2004 with a motivation
to fight Thalassemia in Pakistan. Registered with Securities & Exchange Commission,
Government of Pakistan & PHCP Punjab Healthcare Commission Pakistan. Affiliated with
Thalassemia International Federation (TIF) & Thalassemia Federation of Pakistan. (TFP) ISF is
mainly dealing with treatment, blood transfusion, provision of medicines and prevention of
Thalassemia with the overwhelming majority of registered patients from all over Pakistan
including FATA and AJK.
JSF diagnostic Lab/ Blood Bank licensed under Punjab Blood Bank Authority & equipped with
state of the art Lab equipment Cross Match with latest Gel Card Technology.

JS is providing absolutely complementary services to all our members without any


discrimination of social status.

These sustained efforts are absolutely without any financial support by any individual, group or
govt, instead supported by the only financier i.e CEO Global Pharmaceutical Company (Pvt)
Limited Mr. Muhammad Asad Khawaja.

Overview​
Before starting VIS at a foundation that fights Thalassemia, I saw it as an opportunity to
contribute to a meaningful cause beyond engineering. I believed it would allow me to support a
vital health initiative while developing organizational and communication skills. The experience
seemed like a chance to engage with the community and understand the challenges faced by
those affected. I anticipated gaining valuable insights into the impact of volunteer work on public
health.​

Scope of VIS Activities​
The Volunteers in Service (VIS) Program is designed to instill a sense of social responsibility
among students by engaging them in meaningful community service. It provides hands-on
experience in various social and healthcare initiatives, allowing participants to contribute to
societal well-being while developing key professional skills.

During my VIS tenure at a Thalassemia-focused foundation, my role primarily revolved around


data management, patient profiling, and support for blood donation initiatives. The program
emphasized organizational efficiency, record-keeping, and donor coordination, ensuring the
smooth functioning of critical healthcare services.

My work involved documenting blood camp reports, managing patient data in Word/Excel,
software entry of blood donors, and assisting in patient screening and electrophoresis procedures.
These tasks were crucial in maintaining accurate medical records and streamlining the
foundation’s operations.

Through these activities, the VIS program not only allowed me to contribute to a noble cause but
also enhanced my technical proficiency, attention to detail, and understanding of healthcare data
management.
Date/Day wise Activities
1) ORIENTATION (10th February, 2025)​
Attended an introductory session on the foundation’s mission, goals, and operations. Learned
about Thalassemia, the importance of blood donation, and the role of volunteers in supporting
the cause.​

2) Blood Camps Reports & Certificates (11th February, 2025)​
Assisted in compiling reports on recent blood donation camps, documenting donor statistics and
event details. Prepared and distributed certificates for donors and volunteers as an
acknowledgment of their contribution.​

3) Data Entry of Blood Camps (13th February, 2025)​
Entered donor details, including personal information, blood group, and donation history, into the
foundation’s database. Verified accuracy to ensure a reliable record for future donations. Helped
categorize data to track donation trends and donor eligibility.​

4) Entry of Patient Profile in Word / Excel (14th February, 2025)​
Created and updated patient profiles with essential information, including medical history,
transfusion schedules, and personal details. Ensured that records were systematically maintained
for easy accessibility. Assisted in organizing files for healthcare professionals managing patient
treatments.​

5) Data Entry / Daily Transfusion Performa of Patients (17th February, 2025)​
Recorded details of daily blood transfusions, including patient ID, blood type, donor information,
and transfusion dates. Ensured that data was accurately stored for tracking patient progress.
Helped in maintaining a structured log for the medical team’s reference.​

6) Data Entry / Prevention Department (18th February, 2025)​
Assisted in recording and organizing data related to Thalassemia prevention programs. Helped
maintain records of awareness sessions, carrier screening results, and outreach campaigns.
Ensured data was structured for future planning and assessment of program effectiveness.​

7) Patient Screening / Electrophoresis (19th February, 2025)​
Observed and assisted in patient screening procedures, including electrophoresis tests used to
diagnose Thalassemia. Helped manage patient flow, ensuring efficient coordination of
screenings. Gained insight into the importance of early diagnosis and medical intervention.​

8) Software Entry of Blood Donors (20th February, 2025)​


Entered donor information into the foundation’s digital system, ensuring all details were properly
documented for future blood donation tracking. Verified and corrected any discrepancies in data
for accuracy. Contributed to creating a structured database for donor records.​

9) List of Patient (21st February, 2025)​
Compiled and updated a comprehensive list of registered Thalassemia patients, including their
treatment progress and transfusion schedules. Ensured records were accurate and up-to-date for
the medical team’s reference. Assisted in categorizing patients based on treatment requirements.​

10) Data of Patients in Magazine Collection (24th February, 2025)​
Assisted in gathering and organizing patient stories and medical data for inclusion in the
foundation’s magazine. Helped compile impactful case studies to raise awareness about
Thalassemia. Ensured that patient details were properly documented while maintaining
confidentiality.​

11) Software Data Entry (25th February, 2025)​
Transferred physical patient records into digital format using specialized medical software.
Ensured that patient histories, transfusion logs, and medical notes were accurately documented.
Helped streamline data accessibility for healthcare professional​

12) List of Orientation (27th February, 2025)​
Created and maintained a record of volunteers who attended the orientation session. Documented
their assigned roles, participation, and key takeaways from the program. Assisted in tracking
volunteer engagement for future reference.​


13) Patient Profile in Word / Excel (28th February, 2025)​
Continued updating and refining patient profiles, ensuring that all details regarding their medical
history and treatment plans were well-organized. Verified existing records for accuracy and
consistency. Helped in maintaining a structured database to assist healthcare professionals.​

Summing up
During my VIS program, I actively contributed to various administrative and medical data
management tasks at a Thalassemia-focused foundation. My responsibilities included data entry
for patient records, blood donors, and transfusion reports, ensuring accuracy and accessibility for
medical staff. I also assisted in patient screening, prevention awareness documentation, and
compiling reports for blood donation camps. These activities enhanced my organizational and
analytical skills while reinforcing the importance of structured data in healthcare. Through this
experience, I gained valuable insights into the role of efficient record-keeping in supporting
life-saving medical treatments.
Lessons Learnt
I learned the importance of accurate record-keeping in ensuring efficient patient care and donor
tracking. Handling patient profiles and transfusion data enhanced my attention to detail and
organizational skills.

Through blood camp reporting and donor data entry, I understood the significance of structured
documentation in maintaining a reliable donor network. Assisting in patient screening and
electrophoresis tests deepened my knowledge of Thalassemia diagnosis and prevention
strategies.

Before joining the VIS program, I viewed healthcare primarily as a field driven by medical
professionals. However, my experience at the Thalassemia foundation completely shifted my
perspective. I realized that behind every successful medical treatment is a well-organized system
of data management, administration, and volunteer efforts.

I initially underestimated the role of accurate documentation and structured record-keeping in


patient care, but through my tasks—such as data entry, patient profiling, and blood donor
tracking—I saw firsthand how essential these processes are in ensuring timely treatments and
efficient resource allocation.

Moreover, I developed a deeper appreciation for community service and preventive healthcare
efforts, understanding that diseases like Thalassemia require not just treatment but proactive
awareness and screening to reduce their prevalence. This experience reshaped my mindset,
reinforcing the idea that even as a civil engineer, my organizational skills and problem-solving
abilities can contribute to causes beyond my core field.

Recommendations​
Based on my experience at the Thalassemia foundation, I would like to suggest the following
improvements to enhance the efficiency and impact of the organization:

1.​ Digital Automation of Records – Implementing an advanced automated data


management system for patient records, blood donor tracking, and transfusion schedules
would minimize errors and improve accessibility for healthcare professionals.​

2.​ Awareness & Prevention Campaigns – Expanding Thalassemia awareness programs in


schools, universities, and workplaces could help in early detection and prevention,
reducing the burden on treatment facilities.​

3.​ Volunteer Training Sessions – Organizing structured training workshops for volunteers
on data entry, patient care protocols, and software usage would increase productivity and
reduce the time needed for onboarding.​

4.​ Enhanced Screening Facilities – Upgrading screening equipment and increasing


electrophoresis testing capacity would allow for faster and more accurate diagnosis,
benefiting both patients and carriers of Thalassemia.​

5.​ Improved Coordination Between Departments – Strengthening communication


between data entry teams, medical staff, and the prevention department through regular
meetings or digital collaboration tools would improve workflow efficiency.

To enhance the effectiveness of the Volunteers in Service (VIS) program, I suggest the following
improvements:

1.​ Structured Training & Orientation – A more detailed and interactive orientation
session with practical demonstrations on data entry, patient handling, and software usage
would help volunteers start more efficiently.​

2.​ Task Rotation for Skill Development – Allowing volunteers to rotate between different
departments (data management, patient care, awareness campaigns) would provide a
well-rounded experience and improve their adaptability.​

3.​ Integration of Digital Tools – Implementing a centralized digital platform for volunteers
to track their assigned tasks, progress, and performance feedback would improve
coordination and productivity.​

4.​ Recognition & Certification – Introducing a reward system (certificates, appreciation


letters, or awards) for outstanding volunteers would boost motivation and encourage
long-term participation.​

5.​ More Community Engagement Initiatives – Expanding outreach activities like social
media awareness drives, university collaborations, and fundraising events would help
increase public participation in Thalassemia prevention and treatment efforts.

Views About Jamila Sultana Foundation


The organization’s efforts in Thalassemia awareness, prevention, and treatment play a crucial
role in improving public health and saving lives. By conducting regular blood donation camps,
the foundation ensures a steady supply of life-saving blood transfusions for Thalassemia patients,
significantly enhancing their quality of life.
Its focus on patient screening and electrophoresis testing helps in the early detection of
Thalassemia carriers, which is vital for preventing the disease in future generations. Additionally,
its data management and record-keeping systems ensure that patients receive timely and
well-organized treatment.

Beyond direct medical assistance, the organization’s awareness campaigns and prevention
programs educate the public about the importance of genetic screening and responsible family
planning, helping reduce the prevalence of Thalassemia in the long run.

Worksite Working Shots

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