PPMD Lighthouse Workshops

PPMD Lighthouse Workshops provide a safe and supportive space to build stronger connections and deeper insights about life and identity that go beyond diagnosis and management.

Through small group facilitated meetings these virtual workshops aim to foster conversation, connectivity, and well-being. We believe in the strength of unity and the power of guidance and support in building a strong community.

Current Workshop Groups

Our Winter/Spring 2025 Series offers a number of different options for participation. We have groups for:

  • Moms of Duchenne
  • Caregivers of adults with Duchenne
  • Open to anyone with a relationship with Duchenne
  • Spouses and partners of individuals with a Becker/Duchenne diagnosis
  • Carriers

You are welcome to join any group, but we are offering these dedicated groups for our Winter/Spring 2025 Series to focus on the unique needs of our community.

Deadline to register is February 7, 2025.
Please note you must commit to all sessions in order to register.

Register Now

Workshop Details

Guided by Rachel Callander, PPMD Lighthouse Workshops are facilitated online sessions that focus on essential themes such as language, communication, self-care, sharing experiences and support. These gatherings offer a nurturing environment to connect with others who share your journey and gain valuable support.

What a PPMD Lighthouse Workshop entails:

  • Groups will meet virtually according to the published schedule.
  • Each group will be facilitated by Rachel Callander, who will guide participants in a focused discussion on various topics related to language, communication, self-care, sharing experiences and support among others.

We ask that all participants:

  • Attend each session with an open heart and open mind, be present, and actively contribute.
  • Keep all workshop discussions and experiences respectful and within the group, as we’ll work together to maintain a safe and inclusive space.

Please note, this workshop is not intended to replace medical advice from a qualified medical professional. If you feel you require medical assistance or are in crisis, please reach out to your physician or local emergency services or crisis line. Lighthouse personnel are facilitators who are not trained or licensed to provide mental health services. Our goal is to foster through Lighthouse, open communication, support, and coping skills. 

Why PPMD Lighthouse?

We know that we are stronger together. We also know building community and connection requires guidance and support. It means creating a safe, strong harbor for all.

The lighthouse is a symbol of these attributes, prompting us to reflect on our daily efforts within our homes and communities for those affected by Duchenne and Becker.

PPMD Lighthouse aims to be a guiding light, helping you navigate the challenges of this disease and acting as a beacon that draws us together.

Questions?

For additional information contact ellen@parentprojectmd.org.