Current Action Alerts

NATIONAL:

Ask Congress to Protect NIH Research Funding for Duchenne

On February 7th, the National Institutes of Health (NIH) announced a drastic reduction in overhead funding for universities, medical centers, and other research institutions—from 50% down to just 15%. This significant cut threatens the ability of these institutions to continue critical research, including groundbreaking work on advancing treatments for Duchenne and Becker muscular dystrophy. 

We are already hearing from researchers that without this funding, their work may be forced to stop. This would be a devastating setback for our community and for the progress we’ve made in the fight to end Duchenne. Overhead funding, or indirect costs, help provide support to essential research related activities such as development and maintenance of laboratories, to help support administrative roles key to compliance with regulatory bodies, and other non-research activities like clinical trial infrastructure support.

While PPMD supports efforts to ensure government efficiency and responsible spending, funding decisions of this magnitude should be made through a thorough and transparent review process. Sudden, sweeping cuts without proper evaluation have the potential to undermine vital research that directly impacts the lives of those in our community.

We need your voice! Contact your elected officials today and urge them to protect NIH research funding. Let them know how essential this support is for the Duchenne and Becker community. Every email makes a difference!

Click here to take action today!

STATES:

Arizona

Urge the Arizona State Legislature to vote YES on SB 1076, which adds Duchenne muscular dystrophy to the state’s Newborn Screening panel. Click here to take action today!

Arkansas

Urge the Arkansas State Legislature to vote YES on HB 1302, which adds Duchenne muscular dystrophy to the state’s Newborn Screening panel. Click here to take action today!

Connecticut

Urge the Connecticut State Legislature to vote YES on HB 5710, which adds Duchenne muscular dystrophy to the state’s Newborn Screening panel. Click here to take action today!

Georgia

Urge the Georgia State Legislature to vote YES on SB 101, which adds Duchenne muscular dystrophy to the state’s Newborn Screening panel. Click here to take action today!

Oregon

Urge the Oregon State Legislature to vote YES on HB 3192, which adds Duchenne muscular dystrophy to the state’s Newborn Screening panel. Click here to take action today!

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