Epidermolysis Bullosa: Research & Resources

Research Progress Related to Epidermolysis Bullosa

Researchers are studying epidermolysis bullosa to understand better the cause and treatments, in hopes to prevent and cure the disease. Topics include:

  • Studying the genes and their effect on the skin and its different layers.
  • Researching new treatment targets for epidermolysis bullosa and related diseases.  
  • Exploring the use of stem cells to treat the disease.
  • Looking at healthy skin for clues as to why development goes wrong to cause diseases.

For more info

Centers for Disease Control and Prevention, National Center for Health Statistics

Website: cdc.gov/nchs (en inglés)

National Society of Genetic Counselors, Inc.

American Academy of Dermatology

Website: aad.org (en inglés)

Dystrophic Epidermolysis Bullosa Research Association of America, Inc.

Website: debra.org (en inglés)

If you need more information about available resources in your language or other languages, please visit the webpages below or contact the NIAMS Information Clearinghouse at [email protected]. You can also find a variety of information from organizations that are NIAMS Coalition Members.

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