Dis/abled Reflections on Posthumanism and Biotech (In Press)

2003

Subjects designated by the neologism 'disability' typically experience various forms of marginality, discrimination and inequality. The response by social scientists and professionals engaged in social policy and service delivery has been to combat the 'disability problem' by way of implementing anti-discrimination protections and various other compensatory initiatives. More recently, with the development of biological and techno-sciences such as 'new genetics', nanotechnologies and cyborgs the solution to 'disability' management has been in the form of utilizing technologies of early detection, eradication or at best, technologies of mitigation. Contemporary discourses of disablement displace and disconnect discussion away from the 'heart of the problem', namely, matters ontological. Disability - based marginality is assumed to emerge from a set of pre-existing conditions (i.e. in the case of biomedicalisation, deficiency inheres in the individual, whilst in the Social Model disablement is created by a capitalist superstructure). The Great Divide takes an alternative approach to studying 'the problem of disability' by proposing that the neologism 'disability' is in fact created by and used to generate notions and epistemologies of 'ableism'. Whilst epistemologies of disablement are well researched, there is a paucity of research related to the workings of ableism. The focal concerns of The Great Divide relate to matters of ordering, disorder and constitutional compartmentalization between the normal and pathological and the ways that discourses about wholeness, health, enhancement and perfection produce notions of impairment. A central argument of this dissertation figures the production of disability as part of the tussle over ordering, emerging from a desire to create order from an assumed disorder; resulting in a flimsy but often unconvincing attempt to shore up so-called optimal ontologies and disperse outlaw ontologies. The Great Divide examines ways ‘disability’ rubs up against, mingles with and provokes other seemingly unrelated concepts such as wellness, ableness, perfection, competency, causation, productivity and use value. The scaffolding of the dissertation directs the reader to selected sites that produce epistemologies of disability and ableism, namely the writing of 'history' and Judeo-Christian renderings of Disability. It explores the nuances of ableism (including a case study of wrongful life torts in law) and the phenomenon of internalized ableism as experienced by many disabled people. The study of liberalism and the government of government are explored in terms of enumeration, the science of 'counting cripples' and the battles over defining 'disability' in law and social policy. Additionally another axis of ableism is explored through the study of a number of perfecting technologies and the way in which these technologies mediate what it means to be 'human' (normalcy), morphs/simulates 'normalcy' and the leakiness of 'disability'. This analysis charts the invention of forearms transplantation (a la Clint Hallam), the Cochlear implant and transhumanism. The Great Divide concludes with an inversion of the ableist gaze(s) by proposing an ethic of affirmation, a desiring ontology of impairment.

Body, Space & Technology , 2024

This paper looks at the new field of posthuman disability studies and its potential to provide a theoretical framework for critical theory's engagement with modern technologies. Historically, the human body, as represented and defined on stage and in art, has maintained a strictly defined visual integrity. Anything not shaped as 'human' was typically deemed monstrous (from hybrid mythological creatures to severely disabled 'elephant men'). Simultaneously, the category of 'human' was used to circumscribe the boundaries of belonging and the categories of valuation: some groups, including the disabled, were deemed 'sub-human' and designated to either be disposed of (as the carrier of 'life unworthy of life') or, if possible, to approximate the 'human' body. (Romanska 2019: 92-93). Until very recently, the goal of the prosthetics industry was to create limbs that would serve as visual stand-ins for missing limbs. Similarly, the technological capacities of prosthetic limbs were delineated by human capacities: the disabled were to be given as many 'abilities' as the non-disabled, but no more. However, this perception of what the disabled body can and should do has changed with technological progress: not only do the newest prosthetics often look as 'unhuman' as possible, but their capacities put into question the capacities and limits of the non-disabled body. All of these and other issues that have emerged in recent years at the crossroads of posthumanism, disability, and biomimicry have led to the development of posthuman disability studies, which tries to untangle and reconceptualize the ethical, legal, and philosophical boundaries of human enhancement, species belonging, sentiency, life and death, and human rights. The posthuman biomimicry and the prosthetic aspects of digital and AI technologies presuppose a form of disabling of the human body: a body without any connection to some type of machine is an inferior body. In this context, understanding the historical dynamics, critical, philosophical, and ethical debates that have dominated disability studies can provide a framework for how we reconceptualize our posthuman, hybrid future in which our existence with the machines that redefine previous hierarchies is inevitable. Thus, the paper proposes critical posthuman disability studies as a new analytical paradigm for recontextualization and exploration of the new modes of being in the Age of Tech.

Humana.Mente, 2014

This paper examines transhuman technologies that seek to eradicate disability - primarily prostheses and implants. While most would agree that disability denies individuals the same quality of life as those deemed “abled,” this eradication ultimately relies upon secular humanist notions of the perfect human. Transhuman technologies hold obvious implications for the human body, however they also hold implications for what it means to be an acceptable body; ultimately these technologies aim to create the perfect human by eradicating the disabled Other. This paper uses these notions to question concepts of “hierarchies of life,” at which disabled individuals are most commonly moved towards the bottom, or at the very least considered nonhuman. This article seeks to provide alternative theory to the eradication of disability, which states that these individuals may not have the same mode of existence, but that their mode/s are just as valid as those lived by “abled” individuals through an examination of Braille

2016

In this article, I analyze one evolution in disability research over the past 30 years: the shift from an individual to a social approach to disability. While most disability research has currently “socialized” disability or at the least situates disabled people within a social context, not all do so in the same way nor based on the same assumptions. They lead to different concepts of the person and society and different concepts of disability and normalcy. I analyze this evolution by looking at three approaches to disability: the social model, the approach taken in the sociology of science and technology, and the ethics of care. I show how each, by renewing the analysis of disability, has brought about changes for disabled people and transformed ways of “living together” and “making society.” I also show the limits of these approaches and propose lines of thought for the continuation of our research, notably around the question of autonomy. I propose that we re-think autonomy from the standpoint of the notion of “recalcitrance.”

Subjectivity, 2014

This article explores the human through critical disability studies and the theories of Rosi Braidotti. We ask: What does it mean to be human in the twenty-first century and in what ways does disability enhance these meanings? In addressing this question we seek to work through entangled connections of nature, society, technology, medicine, biopower and culture to consider the extent to which the human might be an outdated phenomenon, replaced by Braidotti's posthuman condition. We then introduce disability as a political category, an identity and a moment of relational ethics. Critical disability studies, we argue, are perfectly at ease with the posthuman because disability has always contravened the traditional classical humanist conception of what it means to be human. Disability also invites a critical analysis of the posthuman. We examine the ways in which disability and posthuman work together, enhancing and complicating one another in ways that raise important questions about the kinds of life and death we value. We consider three of Braidotti's themes in relation to disability: (i) Life beyond the self: Rethinking enhancement; (ii) Life beyond the species: Rethinking animal; (iii) Life beyond death: Rethinking death. We conclude by advocating a posthuman disability studies that responds directly to contemporary complexities around the human while celebrating moments of difference and disruption.

The New Bioethics , 2019

Review of US journalist George Estreich's insightful and beautifully written book about genetic engineering in the light of his experience as the father of Laura - a teenager with Down syndrome

This paper explores the human through critical disability studies and the theories of Rosi Braidotti. We ask: what does it mean to be human in the 21st Century and in what ways does disability enhance these meanings? In addressing this question we seek to work through entangled connections of nature, society, technology, medicine, biopower and culture to consider the extent to which the human might be an outdated phenomenon, replaced by Braidotti’s posthuman condition. We then introduce disability as a political category, an identity and a moment of relational ethics. Critical disability studies, we argue, are perfectly at ease with the posthuman because disability has always contravened the traditional classical humanist conception of what it means to be human. Disability also invites a critical analysis of the posthuman. We examine the ways in which disability and posthuman work together, enhancing and complicating one another in ways that raise important questions about the kinds of life and death we value. We consider three of Braidotti’s themes in relation to disability: I. Life beyond the self: Rethinking enhancement; II. Life beyond the species: Rethinking animal; III. Life beyond death: Rethinking death. We conclude by advocating a posthuman disability studies that responds directly to contemporary complexities around the human whilst celebrating moments of difference and disruption

Political Theology, 2018

Disability & Society, 2011