Aplastic Anemia and MDS International Foundation (AAMDSIF) Return to top.

Aplastic Anemia and MDS International Foundation

Serving the aplastic anemia, myelodysplastic disease syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure disease communities, AAMDSIF empowers patients and their families, invests in research that speeds the search for new treatments and potential cures, promotes high-quality care by educating healthcare providers, and ensures our patients’ voices are heard through awareness and advocacy.

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Quick Links: Resources for You

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The AAMDS International Foundation has been an integral part of our life since Mario’s diagnosis 13 years ago. We have gained knowledge, support and, most importantly, developed lasting relationships. We continue to depend on them to provide cutting-edge information and patient and family support.

AAMDSIF Events and Inspiration

Patient and Family Conferences»

Friday, March 7, 2025 - 5:30pm

The time is now to save your seat for the 2025 Patient and Family Conference in Rockville, MD! Plan to attend on March 8, 2025, in Rockville, MD....

March for Marrow and Community Fundraisers»

Saturday, April 5, 2025 - 8:00am

March for Marrow TX is back! Welcome to our third in-person March for Marrow TX, The Woodlands, since 2019! Our 15th Annual March for Marrow will be...

Stories of Hope»

Patrick McLaughlin

“You must go to Children’s Hospital now.” Ninth grader Patrick McLaughlin was surprised, but followed his mom’s lead, who calmly drove to...

Professional Conferences»

March 6, 2025

2025 AAMDSIF Bone Marrow Failure Summit: Translating Science to Advance Patient Outcomes Since it was founded in 1983, AAMDSIF has...

Online Library

Webinars »

February 18, 2025

In this webinar, Dr. Taha Bat discusses research most relevant to patients reported over the past year on the biology and treatment on...

Conference Materials »

Saturday, October 19, 2024 - 7:30am

Due to the impact on the Tampa, Florida community and surrounding areas by Hurricanes Helene and Milton, the AAMDSIF Tampa Patient and Family...

Research Articles »

Originally published: November 18, 2024

This study describes the health-related quality of life (HRQoL) and symptom-specific functional impairment of patients with paroxysmal nocturnal...

Graphic - Your Donation Helps Us Build Community Together

Your Support Powers Our Community

“With over 17 years experience supporting and advocating for patients at the Aplastic Anemia and MDS International Foundation, I've seen firsthand how important community support is when facing the challenges of a rare disease. Every contribution enables AAMDSIF to continue providing free and accessible programs that strengthen our community. Together, we can make a real difference in our community!”

Help strengthen our community today »