Papers by Guylaine Le Dorze
Disability and Rehabilitation
Dementia
Families providing care to relatives with Alzheimer's disease are quickly destabilized by changes... more Families providing care to relatives with Alzheimer's disease are quickly destabilized by changes that disrupt communication. This pilot mixed-design study aimed to provide a quantitative and qualitative evaluation of a communication-based training program for carers of people with early-stage Alzheimer's disease (AD). Five participants received three training sessions. The use of communication strategies by participants and their effectiveness were evaluated before and after the training, and a focus group was conducted to gather participants' impressions about the impacts of the training on communication with the person they cared for. The AID-COM program appears to have met expectations.
Aphasiology
Increasing the intensity and comprehensiveness of aphasia services: Identification of key factors... more Increasing the intensity and comprehensiveness of aphasia services: Identification of key factors influencing implementation across six countries.
International journal of stroke : official journal of the International Stroke Society, Jan 10, 2018
Background A core outcome set (COS; an agreed, minimum set of outcomes) was needed to address the... more Background A core outcome set (COS; an agreed, minimum set of outcomes) was needed to address the heterogeneous measurement of outcomes in aphasia treatment research and to facilitate the production of transparent, meaningful, and efficient outcome data. Objective The Research Outcome Measurement in Aphasia (ROMA) consensus statement provides evidence-based recommendations for the measurement of outcomes for adults with post-stroke aphasia within phases I-IV aphasia treatment studies. Methods This statement was informed by a four-year program of research, which comprised investigation of stakeholder-important outcomes using consensus processes, a scoping review of aphasia outcome measurement instruments, and an international consensus meeting. This paper provides an overview of this process and presents the results and recommendations arising from the international consensus meeting. Results Five essential outcome constructs were identified: Language, communication, patient-reported...
Disability and rehabilitation, Jan 12, 2017
This study synthesised the findings of three separate consensus processes exploring the perspecti... more This study synthesised the findings of three separate consensus processes exploring the perspectives of key stakeholder groups about important aphasia treatment outcomes. This process was conducted to generate recommendations for outcome domains to be included in a core outcome set for aphasia treatment trials. International Classification of Functioning, Disability, and Health codes were examined to identify where the groups of: (1) people with aphasia, (2) family members, (3) aphasia researchers, and (4) aphasia clinicians/managers, demonstrated congruence in their perspectives regarding important treatment outcomes. Codes were contextualized using qualitative data. Congruence across three or more stakeholder groups was evident for ICF chapters: Mental functions; Communication; and Services, systems, and policies. Quality of life was explicitly identified by clinicians/managers and researchers, while people with aphasia and their families identified outcomes known to be determinan...
Disability and rehabilitation, Jan 27, 2017
After rehabilitation, it is not clear the extent to which persons living with a disability return... more After rehabilitation, it is not clear the extent to which persons living with a disability return to their former activities in the community, such as going to shopping malls. Rehabilitation professionals are faced with the challenge to adequately prepare their clients to resume community participation. The purpose of this study was to identify rehabilitation strategies aimed at preparing clients to engage in activities in shopping malls. Twenty-two participants including 16 rehabilitation clinicians and 6 persons living with a disability participated in four nominal group sessions. Participants were questioned on current or potential rehabilitation strategies carried out to enhance participation in shopping malls for persons living with a disability. Discussions were audio-recorded and qualitative content analysis was conducted. Participants mentioned strategies that were either carried out by the clinician, or in collaboration with other parties. The latter type of strategies was ...
American journal of speech-language pathology, 2016
The purpose of this article is to identify outcome constructs that aphasia researchers consider e... more The purpose of this article is to identify outcome constructs that aphasia researchers consider essential to measure in all aphasia treatment research. Purposively sampled researchers were invited to participate in a 3-round e-Delphi exercise. In Round 1, an open-ended question was used to elicit important outcome constructs; responses were analyzed using inductive content analysis. In Rounds 2 and 3, participants rated the importance of each outcome using a 9-point rating scale. Outcomes reaching predefined consensus criteria were further analyzed using International Classification of Functioning, Disability and Health coding. Eighty researchers commenced Round 1, with 72 completing the entire survey. High response rates (≥ 85%) were achieved in subsequent rounds. Consensus was reached on 6 outcomes: (a) language functioning in modalities relevant to study aims, (b) impact of treatment from the perspective of the person with aphasia (PWA), (c) communication-related quality of life,...
Brain injury, 2017
To understand how employment services (ES) are provided to persons with brain injuries (PWBIs) in... more To understand how employment services (ES) are provided to persons with brain injuries (PWBIs) in Ontario, Canada, and the impact service delivery has on competitive-employment outcomes. A mixed-method case study of one community-based agency that provides specialized services to PWBIs. Relationships between demographic, service-related variables and employment outcomes (2009-2014) were analysed using chi-squares and analyses of variance. In addition, 14 interviews were conducted and analysed using thematic analysis. PWBIs accessed services on average of 16 years post injury; 64% secured at least one competitive-employment job, which was how employment success was defined in this study. Average job tenure was 368 days, and average job intensity was 3.8 hours/day. Employment success was significantly associated (p < 0.05) with use of job development, job coaching, case management and job retention services. Interviews revealed that PWBIs were provided five services: job goal(s) id...
Work (Reading, Mass.), 2017
Misperceptions regarding persons with brain injuries (PWBI) can lead to stigmatization, workplace... more Misperceptions regarding persons with brain injuries (PWBI) can lead to stigmatization, workplace discrimination and, in turn, influence PWBIs full vocational integration. In this study we explored how stigma may influence return-to-work processes, experiences of stigma and discrimination at the workplace for persons with (moderate to severe) brain injuries, and strategies that can be employed to manage disclosure. Exploratory qualitative study; used in-depth interviews and an inductive thematic analytical approach in data analysis. Ten PWBI and five employment service providers participated. PWBI discussed their work experiences, relationships with supervisors and co-workers and experiences of stigma and/or discrimination at work. Employment service providers discussed their perceptions regarding PWBI's rights and abilities to work, reported incidents of workplace discrimination, and how issues related to stigma, discrimination and disclosure are managed. Three themes were iden...
Http Dx Doi Org 10 1080 02687030344000238, Sep 9, 2010
Background : Aphasia changes the links an individual has with his/her social milieu. However, inf... more Background : Aphasia changes the links an individual has with his/her social milieu. However, information about these changes is sparse as most research on aphasia has been centred on understanding this language disorder and testing treatment methods. Moreover, information about the psycho-social consequences of severe aphasia is even rarer. Aims : To determine the consequences of severe aphasia as experienced
Vie Et Vieillissement, 2003
Handbook of Qualitative Research in Communication Disorders, 2013
Annals of Leisure Research, 2013
The neurological consequences following a traumatic brain injury (TBI) greatly affect the person&... more The neurological consequences following a traumatic brain injury (TBI) greatly affect the person's daily life as well as that of the supporting relatives who often feel powerless. The social integration of people suffering from TBI is a long-term situation. TBI often involves communication and behavioural disorders that become limitations to social participation. In general, interventions focus on reducing the individual's difficulties and do not consider strengthening their potential. Leisure, notably arts, has been found to assist in adapting to the loss of autonomy and enhancing social reintegration. This paper proposes a new approach focused on strengthening potential through artistic recreational activities as a medium for improving communication between a person with a TBI and his/her relative. A pre-experimental study was conducted with a group of dyads of persons with TBI and their significant other (n=5 dyads). Unexpected quantitative changes were found on the Perception of Relationship and Activities Scale, more specifically on the sharing pleasant events sub-scale which decreased for the significant other group, as well as decreases on the feelings, values and feasibility of this sub-scale. However, the qualitative results revealed interesting impacts of the programme on self-realization and relationships. These data will allow us to further test the programme in an experimental study.
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Papers by Guylaine Le Dorze