Over 90% of deaf children are born to hearing parents who have limited knowledge about deafness a... more Over 90% of deaf children are born to hearing parents who have limited knowledge about deafness and require comprehensive support and information to support and communicate with their deaf child. However, little is known about the systems that support hearing families with deaf children. We performed a scoping review to provide an overview of current literature on the topic. The protocol of the scoping review was prepared using the PRISMA statement guidelines for scoping reviews. Relevant search terms were used to identify eligible studies following discussion with the study's steering group. Databases searched were CINAHL, Medline, ProQuest Central and ASSIA, as well as grey literature from relevant journals and online sources. Included were studies published from 2000 to 2021 and available in English. A search of databases identified 1274 articles. After excluding duplicates, screening titles and abstracts and full texts, 65 papers matched the identified inclusion criteria. Results included 1 RCT, 7 comparative studies, 6 literature reviews, 4 PhD theses, and 47 further empirical studies. There is limited quality evidence on what supports hearing parents with deaf children. It is evident that further studies are needed to ensure comprehensive support is accessible and effective for hearing parents of deaf children.
Traditional ideas of mental health nursing are challenged in contemporary healthcare settings by ... more Traditional ideas of mental health nursing are challenged in contemporary healthcare settings by developments focused on more partnership and collaboration with people using mental health services. Yet service users have reported limited involvement in planning their own care. The purpose of this research was to explore accounts from multiple perspectives about service user involvement in mental health nursing processes. Qualitative research interviews and focus groups with mental health nursing students (n=18), qualified nurses (n=17) and service users (n=13) were conducted, audio-recorded and transcribed verbatim. Participants' transcribed talk was thematically analysed to examine understandings about service user involvement and mental health nursing. Nursing work was often described as task-focused, with limited collaboration with service users in areas like care planning. Service user involvement was seldom mentioned by nurses themselves, indicating it did not form an important part of mental health nursing processes. Mental health nurses appear to be complicit in care processes that do not include involvement of service users and may discourage novice practitioners from attempts at engagement.
Talking about mental health nursing: a qualitative analysis of nurses' and service users' account... more Talking about mental health nursing: a qualitative analysis of nurses' and service users' accounts.. Doctoral thesis, Swansea University.
Journal of Psychiatric and Mental Health Nursing, Aug 15, 2010
As people frequently encounter others in mental distress, there is a need for appro- priate knowl... more As people frequently encounter others in mental distress, there is a need for appro- priate knowledge and skills to provide support. Mental Health First Aid, a 12-h mental health promotion programme was developed to address this. • There has been little research into basic mental health training programmes gener- ally, in terms of their usefulness. The views of instructors delivering these programmes are also important, as this may provide information about the most effective way of delivering mental health training programmes to a wide audience. • In this study, instructors delivering the Mental Health First Aid programme in Wales were asked to give their views and experiences of delivering the programme. • These instructors said it was important they had the necessary skills and support to enable them to deliver the programme effectively.
Journal of Psychiatric and Mental Health Nursing, Feb 1, 2012
Service user involvement is an important part of pre-registration nursing pro- grammes, as it can... more Service user involvement is an important part of pre-registration nursing pro- grammes, as it can give students the opportunity to learn from users about their experiences of health and illness, but so far there have been limited studies in this area. • This literature review provides an opportunity to explore how service user involve- ment in classroom settings can impact on student learning, and describes methods of best practice.
The involvement of service users and carers in nurse education is increasing, with the new standa... more The involvement of service users and carers in nurse education is increasing, with the new standards for pre-registration nurse education in the UK, which require nurse education providers to demonstrate how they are involving users and carers in the planning, delivery, teaching and evaluation of nursing curricula (Nursing and Midwifery Council, 2010). A travel scholarship provided the opportunity to explore best practice in this area, focussing on identifying support systems and processes that enable user involvement. The scholarship was undertaken in the UK and Ireland during a 4 week study tour between June and July 2011, during which I visited 15 universities, and met with nurse education staff, users and carers involved in nurse education programmes. Prerequisite processes, the spectrum and variety of involvement activities, quality assurance and evaluation; and sustainability of user involvement in nurse education are reported in this paper. Service users and carers are an under-utilised resource, and as experts by experience have much to offer students and staff by increased involvement in nurse education programmes. The importance of values, enthusiasm and relationships, the cornerstones that strengthen user involvement; often sustain such partnerships.
This reflection explores my journey working with Deaf communities around improving mental health ... more This reflection explores my journey working with Deaf communities around improving mental health and learning how Deaf people are affected by health inequalities. It includes information on why Deaf people are at risk of mental health problems and how we can work together to improve mental health services particularly for Deaf people.
Journal of Psychiatric and Mental Health Nursing, Mar 13, 2011
As more people are experiencing mental distress, there is a need for increased basic mental healt... more As more people are experiencing mental distress, there is a need for increased basic mental health training programmes for the public and people who work in voluntary and statutory organizations. Mental Health First Aid is an example of a basic mental health training programme and is now available in at least 16 countries internationally. • There has been little research into basic mental health training programmes gener- ally, and information from instructors delivering these programmes may provide information about the most effective way of delivering mental health training programmes to a wide audience. • In this study, instructors delivering the Mental Health First Aid programme in Wales were asked to give their views and experiences of delivering the programme. These instructors found challenges in marketing and recruiting people to the programme and said it was important they had the necessary skills and support to enable them to deliver the programme effectively.
New Nursing and Midwifery Council (NMC) standards require nurse education institutions to prove t... more New Nursing and Midwifery Council (NMC) standards require nurse education institutions to prove that patients, clients, carers and other health service users have helped shape the curriculum.
Pre-registration nursing programmes have been criticized for not adequately preparing nurses to w... more Pre-registration nursing programmes have been criticized for not adequately preparing nurses to work with children and young people with mental health issues. This article highlights the importance of developing strategies across traditional branch boundaries to remedy this curricula deficit. In 2007, the School of Health Science at Swansea University began an interprofessional initiative between mental health and child branches and designed a 2-day child and adolescent mental health services (CAMHS) workshop in collaboration with a local specialist CAMHS nurse. The purpose of the workshop was to raise students' awareness of child and adolescent mental health issues, to provide the opportunity for students to meet local CAMHS providers and to promote interprofessional practice. This workshop has been delivered successfully for the past 2 years, has been favourably evaluated by students, and is now a regular part of the curriculum. The authors believe that the inter-branch workshop may provide a template for other higher education institutions with large undergraduate populations to promote learning around child and adolescent mental health issues in a unique way.
This chapter explores the subject of meaningful service user involvement, and relates to involvem... more This chapter explores the subject of meaningful service user involvement, and relates to involvement activities in both individual care and treatment in mental health services, as well as involvement in the planning and delivery of those services. The term service user refers to people who use services in health or social car
Good progress At Swansea University, the academic staff’s preparations for a new pre-registration... more Good progress At Swansea University, the academic staff’s preparations for a new pre-registration curriculum are progressing well, with interim discussions informed by the views of user and carer colleagues. One carer told the curriculum group: ‘Parents and carers face daily barriers raising children and young people with disabilities. If they are listened to and their experiences are understood, all our services would provide better outcomes. Small changes by nursing staff can make profound differences to our quality of life’ NS
This paper captures the experiences of the faculty members of a relatively new graduate social wo... more This paper captures the experiences of the faculty members of a relatively new graduate social work program situated in the largely rural state of Haryana India in reframing the foundation year practicum through community-based and engaged action learning in small villages. Located within Bhagat Phool Singh Vishwavidyalaya (BPSMV), north India's first all women public university, the mission of which is to enhance women's engagement in the greater society through post-secondary, professional and character education, the department is educating social workers for community engagement in social development and in the development of women as an empowered group in society, particularly at the village level. Over a three-year period, the faculty has successfully launched and sustained action learning as an alternative to the traditional practicum in social work education, enhanced civic engagement among students and faculty in three rural villages, and further developed community social work as a principal focus of social work education in India. The paper offers a rationale for action learning in the graduate social work curriculum, describes and documents the department's strategy of action learning, and lays out lessons learned from action learning as a central focus of pedagogy, research, and service within BPSMV Department of Social Work and the rural villages it serves.
medRxiv (Cold Spring Harbor Laboratory), Dec 28, 2023
Deaf awareness aims to promote understanding about Deaf and hard of hearing people, with the goal... more Deaf awareness aims to promote understanding about Deaf and hard of hearing people, with the goal of reducing barriers between Deaf and hearing populations; and is particularly pertinent for health professional students as they need to learn to communicate effectively with a range of population groups. This scoping review aims to provide an overview of literature examining Deaf awareness programs provided to health professional students during their initial training. We searched four medical and public health databases and registers using terms related to Deaf awareness. We used the PRISMA-ScR reporting standards checklist for scoping reviews. We identified 10,198 citations, with 15 studies included in the final review. Searches were performed during August to September 2022, and April 2023. Studies were included provided they examined Deaf awareness content or programs within health professional education. Data were extracted by two independent reviewers who screened all abstracts using Rayyan software, followed by discussion to achieve knowledge synthesis and agreement. In all, a total of 15 articles from six countries were identified across health professional student disciplines including pharmacy, nursing, audiology, inter-professional and medical programs. The review found sparse evidence of research into Deaf awareness programs delivered to health professional students, with delivery often solely to small groups of students, indicating why so few students can access information about how to communicate effectively with Deaf and hard of hearing patients during their initial training programs. This scoping reviewed showed evidence of promising benefits for health professional students undertaking Deaf and hard of hearing awareness programs during their undergraduate education. The importance of communicating with Deaf and hard of hearing patients and attaining Deaf cultural competencies for health professional students should be investigated in future research.
Proceedings of the 2021 European Symposium on Usable Security
Young people are increasingly becoming responsible for the security of their devices, yet do not ... more Young people are increasingly becoming responsible for the security of their devices, yet do not appear to have the knowledge to protect themselves online. In this paper, we explore young people's knowledge of cybersecurity through a series of workshops with secondary school children, and co-design cybersecurity lessons aimed at engaging this demographic. We find that technical demonstrations are an effective way of engaging young people's curiosity in the subject, and that group activities aimed at exploring the subject are preferred methods. We also find that while knowledgeable about cybersecurity theory (e.g. passwords), their actual behaviours did not reflect best practice. We discuss the role of schools in cybersecurity education and how to best embed this content in the curriculum to maximise the engagement of students, including a focus on teaching about cybersecurity protective tools. CCS CONCEPTS • Security and privacy ~ Human and societal aspects of security and privacy ~ Social aspects of security and privacy.
Over 90% of deaf children are born to hearing parents who have limited knowledge about deafness a... more Over 90% of deaf children are born to hearing parents who have limited knowledge about deafness and require comprehensive support and information to support and communicate with their deaf child. However, little is known about the systems that support hearing families with deaf children. We performed a scoping review to provide an overview of current literature on the topic. The protocol of the scoping review was prepared using the PRISMA statement guidelines for scoping reviews. Relevant search terms were used to identify eligible studies following discussion with the study's steering group. Databases searched were CINAHL, Medline, ProQuest Central and ASSIA, as well as grey literature from relevant journals and online sources. Included were studies published from 2000 to 2021 and available in English. A search of databases identified 1274 articles. After excluding duplicates, screening titles and abstracts and full texts, 65 papers matched the identified inclusion criteria. Results included 1 RCT, 7 comparative studies, 6 literature reviews, 4 PhD theses, and 47 further empirical studies. There is limited quality evidence on what supports hearing parents with deaf children. It is evident that further studies are needed to ensure comprehensive support is accessible and effective for hearing parents of deaf children.
Traditional ideas of mental health nursing are challenged in contemporary healthcare settings by ... more Traditional ideas of mental health nursing are challenged in contemporary healthcare settings by developments focused on more partnership and collaboration with people using mental health services. Yet service users have reported limited involvement in planning their own care. The purpose of this research was to explore accounts from multiple perspectives about service user involvement in mental health nursing processes. Qualitative research interviews and focus groups with mental health nursing students (n=18), qualified nurses (n=17) and service users (n=13) were conducted, audio-recorded and transcribed verbatim. Participants' transcribed talk was thematically analysed to examine understandings about service user involvement and mental health nursing. Nursing work was often described as task-focused, with limited collaboration with service users in areas like care planning. Service user involvement was seldom mentioned by nurses themselves, indicating it did not form an important part of mental health nursing processes. Mental health nurses appear to be complicit in care processes that do not include involvement of service users and may discourage novice practitioners from attempts at engagement.
Talking about mental health nursing: a qualitative analysis of nurses' and service users' account... more Talking about mental health nursing: a qualitative analysis of nurses' and service users' accounts.. Doctoral thesis, Swansea University.
Journal of Psychiatric and Mental Health Nursing, Aug 15, 2010
As people frequently encounter others in mental distress, there is a need for appro- priate knowl... more As people frequently encounter others in mental distress, there is a need for appro- priate knowledge and skills to provide support. Mental Health First Aid, a 12-h mental health promotion programme was developed to address this. • There has been little research into basic mental health training programmes gener- ally, in terms of their usefulness. The views of instructors delivering these programmes are also important, as this may provide information about the most effective way of delivering mental health training programmes to a wide audience. • In this study, instructors delivering the Mental Health First Aid programme in Wales were asked to give their views and experiences of delivering the programme. • These instructors said it was important they had the necessary skills and support to enable them to deliver the programme effectively.
Journal of Psychiatric and Mental Health Nursing, Feb 1, 2012
Service user involvement is an important part of pre-registration nursing pro- grammes, as it can... more Service user involvement is an important part of pre-registration nursing pro- grammes, as it can give students the opportunity to learn from users about their experiences of health and illness, but so far there have been limited studies in this area. • This literature review provides an opportunity to explore how service user involve- ment in classroom settings can impact on student learning, and describes methods of best practice.
The involvement of service users and carers in nurse education is increasing, with the new standa... more The involvement of service users and carers in nurse education is increasing, with the new standards for pre-registration nurse education in the UK, which require nurse education providers to demonstrate how they are involving users and carers in the planning, delivery, teaching and evaluation of nursing curricula (Nursing and Midwifery Council, 2010). A travel scholarship provided the opportunity to explore best practice in this area, focussing on identifying support systems and processes that enable user involvement. The scholarship was undertaken in the UK and Ireland during a 4 week study tour between June and July 2011, during which I visited 15 universities, and met with nurse education staff, users and carers involved in nurse education programmes. Prerequisite processes, the spectrum and variety of involvement activities, quality assurance and evaluation; and sustainability of user involvement in nurse education are reported in this paper. Service users and carers are an under-utilised resource, and as experts by experience have much to offer students and staff by increased involvement in nurse education programmes. The importance of values, enthusiasm and relationships, the cornerstones that strengthen user involvement; often sustain such partnerships.
This reflection explores my journey working with Deaf communities around improving mental health ... more This reflection explores my journey working with Deaf communities around improving mental health and learning how Deaf people are affected by health inequalities. It includes information on why Deaf people are at risk of mental health problems and how we can work together to improve mental health services particularly for Deaf people.
Journal of Psychiatric and Mental Health Nursing, Mar 13, 2011
As more people are experiencing mental distress, there is a need for increased basic mental healt... more As more people are experiencing mental distress, there is a need for increased basic mental health training programmes for the public and people who work in voluntary and statutory organizations. Mental Health First Aid is an example of a basic mental health training programme and is now available in at least 16 countries internationally. • There has been little research into basic mental health training programmes gener- ally, and information from instructors delivering these programmes may provide information about the most effective way of delivering mental health training programmes to a wide audience. • In this study, instructors delivering the Mental Health First Aid programme in Wales were asked to give their views and experiences of delivering the programme. These instructors found challenges in marketing and recruiting people to the programme and said it was important they had the necessary skills and support to enable them to deliver the programme effectively.
New Nursing and Midwifery Council (NMC) standards require nurse education institutions to prove t... more New Nursing and Midwifery Council (NMC) standards require nurse education institutions to prove that patients, clients, carers and other health service users have helped shape the curriculum.
Pre-registration nursing programmes have been criticized for not adequately preparing nurses to w... more Pre-registration nursing programmes have been criticized for not adequately preparing nurses to work with children and young people with mental health issues. This article highlights the importance of developing strategies across traditional branch boundaries to remedy this curricula deficit. In 2007, the School of Health Science at Swansea University began an interprofessional initiative between mental health and child branches and designed a 2-day child and adolescent mental health services (CAMHS) workshop in collaboration with a local specialist CAMHS nurse. The purpose of the workshop was to raise students' awareness of child and adolescent mental health issues, to provide the opportunity for students to meet local CAMHS providers and to promote interprofessional practice. This workshop has been delivered successfully for the past 2 years, has been favourably evaluated by students, and is now a regular part of the curriculum. The authors believe that the inter-branch workshop may provide a template for other higher education institutions with large undergraduate populations to promote learning around child and adolescent mental health issues in a unique way.
This chapter explores the subject of meaningful service user involvement, and relates to involvem... more This chapter explores the subject of meaningful service user involvement, and relates to involvement activities in both individual care and treatment in mental health services, as well as involvement in the planning and delivery of those services. The term service user refers to people who use services in health or social car
Good progress At Swansea University, the academic staff’s preparations for a new pre-registration... more Good progress At Swansea University, the academic staff’s preparations for a new pre-registration curriculum are progressing well, with interim discussions informed by the views of user and carer colleagues. One carer told the curriculum group: ‘Parents and carers face daily barriers raising children and young people with disabilities. If they are listened to and their experiences are understood, all our services would provide better outcomes. Small changes by nursing staff can make profound differences to our quality of life’ NS
This paper captures the experiences of the faculty members of a relatively new graduate social wo... more This paper captures the experiences of the faculty members of a relatively new graduate social work program situated in the largely rural state of Haryana India in reframing the foundation year practicum through community-based and engaged action learning in small villages. Located within Bhagat Phool Singh Vishwavidyalaya (BPSMV), north India's first all women public university, the mission of which is to enhance women's engagement in the greater society through post-secondary, professional and character education, the department is educating social workers for community engagement in social development and in the development of women as an empowered group in society, particularly at the village level. Over a three-year period, the faculty has successfully launched and sustained action learning as an alternative to the traditional practicum in social work education, enhanced civic engagement among students and faculty in three rural villages, and further developed community social work as a principal focus of social work education in India. The paper offers a rationale for action learning in the graduate social work curriculum, describes and documents the department's strategy of action learning, and lays out lessons learned from action learning as a central focus of pedagogy, research, and service within BPSMV Department of Social Work and the rural villages it serves.
medRxiv (Cold Spring Harbor Laboratory), Dec 28, 2023
Deaf awareness aims to promote understanding about Deaf and hard of hearing people, with the goal... more Deaf awareness aims to promote understanding about Deaf and hard of hearing people, with the goal of reducing barriers between Deaf and hearing populations; and is particularly pertinent for health professional students as they need to learn to communicate effectively with a range of population groups. This scoping review aims to provide an overview of literature examining Deaf awareness programs provided to health professional students during their initial training. We searched four medical and public health databases and registers using terms related to Deaf awareness. We used the PRISMA-ScR reporting standards checklist for scoping reviews. We identified 10,198 citations, with 15 studies included in the final review. Searches were performed during August to September 2022, and April 2023. Studies were included provided they examined Deaf awareness content or programs within health professional education. Data were extracted by two independent reviewers who screened all abstracts using Rayyan software, followed by discussion to achieve knowledge synthesis and agreement. In all, a total of 15 articles from six countries were identified across health professional student disciplines including pharmacy, nursing, audiology, inter-professional and medical programs. The review found sparse evidence of research into Deaf awareness programs delivered to health professional students, with delivery often solely to small groups of students, indicating why so few students can access information about how to communicate effectively with Deaf and hard of hearing patients during their initial training programs. This scoping reviewed showed evidence of promising benefits for health professional students undertaking Deaf and hard of hearing awareness programs during their undergraduate education. The importance of communicating with Deaf and hard of hearing patients and attaining Deaf cultural competencies for health professional students should be investigated in future research.
Proceedings of the 2021 European Symposium on Usable Security
Young people are increasingly becoming responsible for the security of their devices, yet do not ... more Young people are increasingly becoming responsible for the security of their devices, yet do not appear to have the knowledge to protect themselves online. In this paper, we explore young people's knowledge of cybersecurity through a series of workshops with secondary school children, and co-design cybersecurity lessons aimed at engaging this demographic. We find that technical demonstrations are an effective way of engaging young people's curiosity in the subject, and that group activities aimed at exploring the subject are preferred methods. We also find that while knowledgeable about cybersecurity theory (e.g. passwords), their actual behaviours did not reflect best practice. We discuss the role of schools in cybersecurity education and how to best embed this content in the curriculum to maximise the engagement of students, including a focus on teaching about cybersecurity protective tools. CCS CONCEPTS • Security and privacy ~ Human and societal aspects of security and privacy ~ Social aspects of security and privacy.
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Papers by Julia Terry