The Foundation wouldn’t be here without the extraordinarily talented staff, volunteer team, and dedicated scleroderma community. Much of our success to date can be attributed to the special connections members of our community have forged with one another over the years, including those diagnosed with scleroderma, and those who diagnose and treat the disease.
Boost Your Health
When volunteering, folks find a treasure trove of meaning and gratitude, creating a stress-busting symphony of good vibes.
Gives You Purpose
Volunteers are the unsung heroes of daily life, adding a sprinkle of purpose to their days by sharing their time and skills in areas close to their hearts
Nurture New and Existing Relationships
Dig into volunteering and watch your social circle blossom! Bond over shared passions and watch friendship bloom like a garden in springtime.
Support of Mission
I understand the National Scleroderma Foundation has a clearly stated mission and purpose, approved by the Board of Directors. All Foundation activities support that mission and all volunteers who work on behalf of the Foundation understand and are dedicated to the mission and vision. The mission and vision are responsive to the needs of the community we serve.
The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families, and support networks.
Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.
Values and Culture
- The National Scleroderma Foundation operates in accordance with the highest professional standards in all relationships.
- The Foundation leads with trust and integrity supporting the goals defined by its mission, vision, and values.
- The Foundation fosters a climate that encourages innovation, creativity and diligence among staff and volunteers across the organization.
- The Foundation fully embraces responsibility and accountability for the stewardship of the resources entrusted to it.
- The National Scleroderma Foundation seeks to promote gender equality and increase diversity, in all its forms. We know that our greatest strengths come from the people who make up our team.
Volunteer Commitment
As a valued volunteer of the National Scleroderma Foundation, I am committed to the following.
- Respect the members of the community we serve.
- Acting responsibly within and towards the community.
- Demonstrating integrity, transparency, and accountability in my actions, words, and service.
- Understanding the consequences of my actions.
- Maintaining strict confidentiality when it comes to peoples’ contact, financial, and/or donor information when volunteering for special events.
- Treating every individual within the community whether fellow volunteers, paid staff, contractors, consultants, or donors with dignity, respect, and grace.
EVENTS/WALKS – Help with our signature Stepping Out to Cure Scleroderma walks – planning, logistics, fundraising, media/PR/Comms/photography
CHAPTER ADVISORY COMMITTEE: Be a part of a committed group to provide advice and guidance on a chapter’s Annual Work Plan. Roles vary by chapter but committee responsibilities include: Advocacy & Awareness, Support, Volunteer Pipeline, Communications, Fundraising
SUPPORT GROUP FACILITATOR: Help foster a supportive environment, whether in a face-to-face, telephone, or web-based group. In-depth training is provided.
AWARENESS & ADVOCACY: Procure proclamations and schedule “light ups” of local landmarks for June National Scleroderma Month, participate in lobby days, make phone calls for legislatures for advocacy, respond to calls to action
EDUCATION: Assist chapter leaders in developing education events for lunch & learns and support groups