National Scleroderma Foundation

Our Mission The National Scleroderma Foundation’s mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Our vision is to be a relentless force in finding a cure and improving the lives of people affected by scleroderma.
Find Your Best Path

Where to Start

More than 300,000 Americans live with some type of scleroderma. Today, the face of scleroderma includes people of all ages, genders, and backgrounds. Scleroderma can affect young parents, children, grandparents, and teenagers. Thanks to the passion and dedication of countless volunteers, scientists, and supporters, we’re advancing our mission faster than ever.
Find What You Need

One of the most challenging things about scleroderma is that it presents differently in each person. Find the right resources for you.
Find Support

Share and learn from others, at different places in their journey, through ‘Living with Scleroderma Groups’ for adults, children, and those who care for them.
Find Resources

No matter what type of scleroderma or where you or your child are on your journey, the Scleroderma Foundation can help you find your best path.
Find a Scleroderma Center

Find the right specialists to make up your team. Locate designated scleroderma centers, specialists, clinical trials, studies, and get help navigating the healthcare system.
Connect Locally The Foundation can connect you with others living with scleroderma through our nationwide network of chapters, in addition to more than 100 support groups.
HOPE Line The National Scleroderma Foundation’s HOPE Line (800-722.HOPE/4673) is a free service offering support for people living with scleroderma, caregivers, families and the public. Anyone can contact the HOPE Line during the hours of (8:30am-5pm ET) to speak with a team member. Callers can leave a voicemail after hours. All inquiries will receive a response within 2 business days. You can also email us at [email protected]
Get Involved Find a Walk Near You Stepping Out to Cure Scleroderma walks give you a way to get involved and help advance the mission.
Join a Walk
Learn More about Scleroderma Learn about scleroderma, the facts, the latest research, and treatments through our Fact Sheet.
Fact Sheets
Support the Mission The need is great, and the path forward is challenging. You can help make a difference in the lives of people with scleroderma today by supporting our mission.
Donate Now
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Featured News Read the latest news and information from the Foundation.
March 3, 2025 2025 National Scleroderma Conference Registration Opens

We’re excited to announce that registration for the 2025 National Scleroderma Conference is now open. This year’s conference will…
February 14, 2025 National Scleroderma Foundation Announces 2025 Research Grant Awardees

The National Scleroderma Foundation is excited to announce its 2025 Scleroderma Research Grant awardees. The National Scleroderma Foundation fosters…
February 10, 2025 Rare Disease Day: Shining a Light on Rare Diseases

On February 28, we join the global community in recognizing Rare Disease Day, a time to raise awareness and…
February 5, 2025 Advancing Lung Transplant Advocacy: National Scleroderma Foundation Joins Key Roundtable

The National Scleroderma Foundation’s senior director of mission delivery, Kate Anastasia, and member of our patient advisory board, Nikhil…
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Join Us for a Foundation Event Upcoming Events
March 6, 2025, 7:30 p.m. ET Young Adult Support Group – Ages 18-30s
March 8, 2025, 10:00 a.m. PT Cheri Woo Scleroderma Education Seminar, Portland, OR
March 11, 2025, 6:30 p.m. MT Parent Support Group of Children/Teens with Scleroderma
March 15, 2025, 9:00 a.m. ET Amy K. Parrish Education Forum, Charleston, SC
Research Initiatives

The Foundation’s peer-reviewed research grant program is a leader in scleroderma research. Learn more about how this program accelerates the search for better treatments, and ultimately, a cure.

Research Funded by the Foundation