Registry development
Example organisations in this function
-
HOPE for Epilepsy
info: HOPE for Epilepsy -
Alport Research Hub
info: Alport Research Hub -
Relapsing Polychondritis Awareness and Support
info: Relapsing Polychondritis Awareness and Support -
Costello Medical
info: Costello Medical -
Alport UK and the Alport Syndrome Alliance
info: Alport UK and the Alport Syndrome Alliance -
The Renal Ciliopathies National Network (CILIAREN) Node
info: The Renal Ciliopathies National Network (CILIAREN) Node -
Hereditary Brain Aneurysm Support (HBA Support)
info: Hereditary Brain Aneurysm Support (HBA Support) -
LifeArc Centre for Rare Respiratory Diseases
info: LifeArc Centre for Rare Respiratory Diseases -
The Voltage Gated Calcium Channel Collective (VGCCC)
info: The Voltage Gated Calcium Channel Collective (VGCCC) -
CPA Research Foundation
info: CPA Research Foundation