The issue of the well-being and quality of life assessment of autistic people– especially of auti... more The issue of the well-being and quality of life assessment of autistic people– especially of autistic adults – and of their families, representing in most of the cases the main caregivers, is still underexplored both in medical and in social disciplines. In this research, this issue has been analysed under the lens of capability approach. In the first phase, the study involved 56 families of 59 autistic adults. Totally, we interviewed 86 individuals resident in Italy, in the territory of Turin city and province. In the second phase, the study involved 30 autism support workers, mainly professional educators with whom the issues analysed with the families have been further deepened. According to the respondents, work, identity and social relations are the most important opportunities (capabilities) enabling people to live a dignified life. Autistic adults often miss these opportunities in their life. The findings from the study encourage to rethink inteventions targeting people with autism moving from cure to care in order to transform the autistic person from a patient in need of medical treatments to an agent seeking for his/her own well-being.
The issue of the well-being and quality of life assessment of autistic people– especially of auti... more The issue of the well-being and quality of life assessment of autistic people– especially of autistic adults – and of their families, representing in most of the cases the main caregivers, is still underexplored both in medical and in social disciplines. In this research, this issue has been analysed under the lens of capability approach. In the first phase, the study involved 56 families of 59 autistic adults. Totally, we interviewed 86 individuals resident in Italy, in the territory of Turin city and province. In the second phase, the study involved 30 autism support workers, mainly professional educators with whom the issues analysed with the families have been further deepened. According to the respondents, work, identity and social relations are the most important opportunities (capabilities) enabling people to live a dignified life. Autistic adults often miss these opportunities in their life. The findings from the study encourage to rethink inteventions targeting people with autism moving from cure to care in order to transform the autistic person from a patient in need of medical treatments to an agent seeking for his/her own well-being.
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