Background Most research in leadership in nursing care focuses on hospital settings. Organization... more Background Most research in leadership in nursing care focuses on hospital settings. Organizations providing care for a growing population of older people, however, have been missed out in these studies. Leadership is considered to be a necessary condition to successful care innovation. This study focuses on leadership in care for older people, as this setting is in need of quality improvement. Aims and objectives To gain insight into leadership manifestations within a care innovation program in organizations providing care for older people. Design Multi-case study. Methods Data collection involved: semi structured interviews with four project managers and five project members; observations of daily activities of three project managers and four care innovation meetings in three nursing homes and one hospital ward with older people. Analysis proceeded using codes, schemes and memos. Results Personal leadership dimensions involved: personal ambition; leading position; self-assurance; ...
An interactive web tool has been developed for facilitating shared decision-making in dementia-ca... more An interactive web tool has been developed for facilitating shared decision-making in dementia-care networks. The DecideGuide provides a chat function for easier communication between network members, a deciding together function for step-by-step decision-making, and an individual opinion function for eight dementia-related life domains. The aim of this study was to gain insight in the user friendliness of the DecideGuide, user acceptance and satisfaction, and participants' opinion of the DecideGuide for making decisions. A 5-month field study included four dementia-care networks (19 participants in total). The data derived from structured interviews, observations, and information that participants logged in the DecideGuide. Structured interviews took place at the start, middle, and end of the field study with people with dementia, informal caregivers, and case managers. Four observations of case managers' home visits focused on members' responses and use of the tool. (1) The user friendliness of the chat and individual opinion functions was adequate for case managers and most informal caregivers. Older participants, with or without dementia, had some difficulties using a tablet and the DecideGuide. The deciding together function does not yet provide adequate instructions for all. The user interface needs simplification. (2) User acceptance and satisfaction: everybody liked the chat's easy communication, handling difficult issues for discussion, and the option of individual opinions. (3) The DecideGuide helped participants structure their thoughts. They felt more involved and shared more information about daily issues than they had done previously. Participants found the DecideGuide valuable in decision-making. The chat function seems powerful in helping members engage with one another constructively. Such engagement is a prerequisite for making shared decisions. Regardless of participants' use of the tool, they saw the DecideGuide's added value.
People with dementia are confronted with many decisions. However, they are often not involved in ... more People with dementia are confronted with many decisions. However, they are often not involved in the process of the decision-making. Shared Decision-Making (SDM) enables involvement of persons with dementia in the decision-making process. In our study, we develop a supportive IT application aiming to facilitate the decisionmaking process in care networks of people with dementia. A key feature in the development of this SDM tool is the participation of all network members during the design and development process, including the person with dementia. In this paper, we give insight into the first phases of this design and development process in which we conducted extensive user studies and translated wishes and needs of network members into user requirements.
Background: Involving people with dementia in research is not self-evident. Inclusion of people w... more Background: Involving people with dementia in research is not self-evident. Inclusion of people with dementia in the development process of user-friendly, supportive IT applications may be especially useful to improve the quality of these applications and may be beneficial to the person with dementia. The aim of this study was to gain insight into the involvement of people with dementia in developing supportive IT applications. The focus of involvement was on phase, methods, role and impact on the quality of the IT application and on the person with dementia. Method: A systematic search was undertaken using Cochrane Library, PubMED, PsycInfo, EMBASE, and CINAHL. Publications were selected using the following inclusion criteria: publications had to address a development process of an IT application involving people with dementia. The BMJ checklist was used to assess the quality of the included publications. Results: Twenty-six publications relating to 15 IT programs met the inclusion criteria. People with dementia were mainly involved in the exploratory and technical development phases. The methods most frequently used to involve the participants were interviews, observations and usability try-outs. In most studies, participants were objects of study and informants. People with dementia provided useful feedback and gave valuable recommendations for researchers and designers regarding the development of user-friendly, supportive, IT applications. Involvement in all phases may have empowering effects on people with dementia. Conclusion: To develop valuable, user-friendly, supportive IT applications that increase the quality of life of people with dementia involvement in all phases of the development process is of great importance. (M. Span), [email protected] (M. Hettinga), [email protected] (M. Vernooij-Dassen), [email protected] (J. Eefsting), [email protected] (C. Smits).
International Journal on Advances in Life Sciences
The aim of this study is to identify design issues (both weaknesses and strengths) that should be... more The aim of this study is to identify design issues (both weaknesses and strengths) that should be considered for designing a user-friendly design of an interactive web tool that facilitates shares decision making in care networks of people with dementia. Our research questions are: 1) What design issues can be identified? and 2) What is the unique contribution of people with dementia to the design? This study, with its iterative participatory design based on the CeHRes roadmap included six separate focus group sessions with people with dementia, informal caregivers, and case managers; a cognitive walkthrough with researchers; and usability tests with case managers, older adults, informal caregivers, and people with dementia. The design issues were: a screen design based on pleasant and harmonious colors, the use of clear and uniform buttons throughout the interface, the use of multiple-choice questions with smileys as answering options, a foldable menu bar that is closed (for people...
Background Most research in leadership in nursing care focuses on hospital settings. Organization... more Background Most research in leadership in nursing care focuses on hospital settings. Organizations providing care for a growing population of older people, however, have been missed out in these studies. Leadership is considered to be a necessary condition to successful care innovation. This study focuses on leadership in care for older people, as this setting is in need of quality improvement. Aims and objectives To gain insight into leadership manifestations within a care innovation program in organizations providing care for older people. Design Multi-case study. Methods Data collection involved: semi structured interviews with four project managers and five project members; observations of daily activities of three project managers and four care innovation meetings in three nursing homes and one hospital ward with older people. Analysis proceeded using codes, schemes and memos. Results Personal leadership dimensions involved: personal ambition; leading position; self-assurance; ...
An interactive web tool has been developed for facilitating shared decision-making in dementia-ca... more An interactive web tool has been developed for facilitating shared decision-making in dementia-care networks. The DecideGuide provides a chat function for easier communication between network members, a deciding together function for step-by-step decision-making, and an individual opinion function for eight dementia-related life domains. The aim of this study was to gain insight in the user friendliness of the DecideGuide, user acceptance and satisfaction, and participants' opinion of the DecideGuide for making decisions. A 5-month field study included four dementia-care networks (19 participants in total). The data derived from structured interviews, observations, and information that participants logged in the DecideGuide. Structured interviews took place at the start, middle, and end of the field study with people with dementia, informal caregivers, and case managers. Four observations of case managers' home visits focused on members' responses and use of the tool. (1) The user friendliness of the chat and individual opinion functions was adequate for case managers and most informal caregivers. Older participants, with or without dementia, had some difficulties using a tablet and the DecideGuide. The deciding together function does not yet provide adequate instructions for all. The user interface needs simplification. (2) User acceptance and satisfaction: everybody liked the chat's easy communication, handling difficult issues for discussion, and the option of individual opinions. (3) The DecideGuide helped participants structure their thoughts. They felt more involved and shared more information about daily issues than they had done previously. Participants found the DecideGuide valuable in decision-making. The chat function seems powerful in helping members engage with one another constructively. Such engagement is a prerequisite for making shared decisions. Regardless of participants' use of the tool, they saw the DecideGuide's added value.
People with dementia are confronted with many decisions. However, they are often not involved in ... more People with dementia are confronted with many decisions. However, they are often not involved in the process of the decision-making. Shared Decision-Making (SDM) enables involvement of persons with dementia in the decision-making process. In our study, we develop a supportive IT application aiming to facilitate the decisionmaking process in care networks of people with dementia. A key feature in the development of this SDM tool is the participation of all network members during the design and development process, including the person with dementia. In this paper, we give insight into the first phases of this design and development process in which we conducted extensive user studies and translated wishes and needs of network members into user requirements.
Background: Involving people with dementia in research is not self-evident. Inclusion of people w... more Background: Involving people with dementia in research is not self-evident. Inclusion of people with dementia in the development process of user-friendly, supportive IT applications may be especially useful to improve the quality of these applications and may be beneficial to the person with dementia. The aim of this study was to gain insight into the involvement of people with dementia in developing supportive IT applications. The focus of involvement was on phase, methods, role and impact on the quality of the IT application and on the person with dementia. Method: A systematic search was undertaken using Cochrane Library, PubMED, PsycInfo, EMBASE, and CINAHL. Publications were selected using the following inclusion criteria: publications had to address a development process of an IT application involving people with dementia. The BMJ checklist was used to assess the quality of the included publications. Results: Twenty-six publications relating to 15 IT programs met the inclusion criteria. People with dementia were mainly involved in the exploratory and technical development phases. The methods most frequently used to involve the participants were interviews, observations and usability try-outs. In most studies, participants were objects of study and informants. People with dementia provided useful feedback and gave valuable recommendations for researchers and designers regarding the development of user-friendly, supportive, IT applications. Involvement in all phases may have empowering effects on people with dementia. Conclusion: To develop valuable, user-friendly, supportive IT applications that increase the quality of life of people with dementia involvement in all phases of the development process is of great importance. (M. Span), [email protected] (M. Hettinga), [email protected] (M. Vernooij-Dassen), [email protected] (J. Eefsting), [email protected] (C. Smits).
International Journal on Advances in Life Sciences
The aim of this study is to identify design issues (both weaknesses and strengths) that should be... more The aim of this study is to identify design issues (both weaknesses and strengths) that should be considered for designing a user-friendly design of an interactive web tool that facilitates shares decision making in care networks of people with dementia. Our research questions are: 1) What design issues can be identified? and 2) What is the unique contribution of people with dementia to the design? This study, with its iterative participatory design based on the CeHRes roadmap included six separate focus group sessions with people with dementia, informal caregivers, and case managers; a cognitive walkthrough with researchers; and usability tests with case managers, older adults, informal caregivers, and people with dementia. The design issues were: a screen design based on pleasant and harmonious colors, the use of clear and uniform buttons throughout the interface, the use of multiple-choice questions with smileys as answering options, a foldable menu bar that is closed (for people...
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Papers by Marijke Span