Conference Presentations by Joanne Brooke
The needs of lesbian, gay, bisexual and transsexual (LGBT) who are affected by dementia: A compre... more The needs of lesbian, gay, bisexual and transsexual (LGBT) who are affected by dementia: A comprehensive scoping review.
Joanna Semlyen, Department of Psychology, London Metropolitan University
Joanne Brooke, College of Nursing , Midwifery and Healthcare, University of West London
Purpose:
Our aim was to undertake a comprehensive scoping review of the literature to explore the needs of people who identify as lesbian, gay, bisexual or transgender (LGBT) and are affected by dementia.
Background:
In the UK it is estimated that 850,000 people are currently living with dementia and this is expected to rise to over 1 million by the year 2025 with reports suggesting 5-7% of the population identify as LGBT. Evidence suggests that the LGBT population both delay in accessing healthcare and experience heteronormative services creating inequalities in experiencing good appropriate dementia care and support. There is a need to determine existing knowledge about the needs of the LGBT population who are affected by dementia in order to inform future practice, research and policy.
Methods:
Four databases were systematically searched along with article bibliographies. Only studies exploring LGBT populations and dementia were included, no further predetermined criteria was applied.
Results:
Of the 3737 papers identified xx papers were included. The focus of studies ranged from an emphasis on LGBT partners and/or carers of people with dementia, staff and residents attitudes to LGBT people, and service provision and education around LGBT issues.
Conclusion:
Early findings indicate a need for a more open discussion about individual needs regarding sexuality and dementia, across all health and care settings regarding dementia care. There is some awareness of the LGBT population in long term care provision and their specific needs are beginning to be addressed, however education of policy providers, managers, staff and other residents is still required.
Papers by Joanne Brooke
Nutrients
Background: Nutritional interventions such as the use of prebiotics can promote eubiosis of gut m... more Background: Nutritional interventions such as the use of prebiotics can promote eubiosis of gut microbiome and maintain glucose homeostasis in patients with type 2 diabetes (T2D). However, it would appear that results of the effects of prebiotics on the community of microbes in the gut are not consistent. Aim: To examine the effect of prebiotics and oral antidiabetic agents on gut microbiome in patients with T2D. Methods: The PRISMA Extension Statement for Systematic Reviews and Network Meta-analyses was used to conduct this review. Searches were carried out in EMBASE, EBSCO-host databases, Google Scholar and the reference lists of articles for studies that are relevant to the research question, from database inception to 15 August 2022. The search strategy was based on PICOS framework. Network Meta-analysis which allows the estimation of relative treatment effects by combing both direct trial evidence (e.g., treatment A vs. treatment B) and indirect evidence was conducted. Furtherm...
Abstract: The aim of this article is to review the association between diabetes mellitus, cogniti... more Abstract: The aim of this article is to review the association between diabetes mellitus, cognitive decline and dementia, including the effects of cognitive decline and dementia on self management of diabetes. This is a literature review of primary research articles. A number of contemporary research articles that met the inclusion criteria were selected for this review paper. These articles were selected using a number of search strategies and electronic databases, such as EBSCOhost Research and SwetsWise databases. The duration of diabetes, glycated haemoglobin levels and glycaemic fluctuations were associated with cognitive decline and dementia. Similarly, hypoglycaemia was significantly related to increased risk of developing cognitive decline and dementia. Furthermore, cognitive decline and dementia were associated with poorer diabetes management. There is evidence of the association between diabetes, cognitive decline and dementia including the shared pathogenesis between diab...
Frontiers in Communication
In March 2020, Public Health England provided social distancing and shielding guidance for all ad... more In March 2020, Public Health England provided social distancing and shielding guidance for all adults aged 70 and over in response to the COVID-19 pandemic. This article seeks to provide insight into the lived experiences of older people during this period of household isolation. To do so, we analysed the metaphors used by 13 older adults during interviews discussing their experiences of household isolation, focusing on how these metaphors relate to a loss of agency. We found that participants negotiated their sense of agency through the use of metaphors involving physical force, movement, space, and animation of COVID-19. Metaphors were particularly used to discuss negative emotional impacts of the pandemic. Perceptions of a loss of agency were sometimes redressed through the use of comforting metaphors involving patterns and structure. In addition, participants explicitly rejected or refashioned dominant public metaphors that circulated as part of Government campaigns and wider pu...
Purpose: Our aim was to undertake a comprehensive scoping review of the literature to explore the... more Purpose: Our aim was to undertake a comprehensive scoping review of the literature to explore the needs of people who identify as lesbian, gay, bisexual or transgender (LGBT) and are affected by dementia. Background: In the UK it is estimated that 850,000 people are currently living with dementia and this is expected to rise to over 1 million by the year 2025 with reports suggesting 5-7% of the population identify as LGBT. Evidence suggests that the LGBT population both delay in accessing healthcare and experience heteronormative services creating inequalities in experiencing good appropriate dementia care and support. There is a need to determine existing knowledge about the needs of the LGBT population who are affected by dementia in order to inform future practice, research and policy. Methods: Four databases were systematically searched along with article bibliographies. Only studies exploring LGBT populations and dementia were included, no further predetermined criteria was app...
Jeremy Hunt's recent announcement for a safer 7 day dementia service outlines some basic prin... more Jeremy Hunt's recent announcement for a safer 7 day dementia service outlines some basic principles to improve dementia care, none of which are new, but are these principles realistic in the current climate of the NHS and does it address the real issues of providing safer care for people with dementia? I suggest not. Patients with dementia often have admissions to acute hospitals that are unavoidable, which highlights the lack of care in the community, possibly due to cuts in the social care budget. Patients with dementia have longer lengths of stay and are more likely to die in hospital than patients without dementia, this is because they are also older, frailer and have complex comorbidities. The focus on reducing hospital stay by a consultant review once a day every day of the week, does not address the issues of care provided by the multidisciplinary team or the difficulty in accessing community intermediate care, again due to cuts in the social care budget. The National Dem...
Background Healthcare assistants (HCAs) provide care for people with dementia in acute hospital s... more Background Healthcare assistants (HCAs) provide care for people with dementia in acute hospital settings; current training focuses on QCF qualifications and dementia awareness. Specialist roles for HCAs are beginning to emerge. The ‘Care Crew’ at Royal Berkshire Hospital is a team of HCAs lead by a band 4 assistant practitioner. The structure of the Care Crew involves the development of HCAs to become recognised and valued members of a team, working independently to provide support and care for people with challenging behaviours, including those with dementia. Methods Care Crew members receive a programme of training and support from the Practice Educator in Dementia. Patients are referred to the Care Crew by nurses from 8 wards including elderly care, renal and bone fragility unit. The Care Crew provide one-to-one support and group activities. One-to-one support can be provided for any patient who is distressed, confused, unsettled, presents with challenging or aggressive behaviour...
Nursing Older People, May 18, 2022
Nutrients, 2022
Background: Patients who are critically ill with COVID-19 could have impaired nutrient absorption... more Background: Patients who are critically ill with COVID-19 could have impaired nutrient absorption due to disruption of the normal intestinal mucosa. They are often in a state of high inflammation, increased stress and catabolism as well as a significant increase in energy and protein requirements. Therefore, timely enteral nutrition support and the provision of optimal nutrients are essential in preventing malnutrition in these patients. Aim: This review aims to evaluate the effects of enteral nutrition in critically ill patients with COVID-19. Method: This systematic review and meta-analysis was conducted based on the preferred reporting items for systematic review and meta-Analysis framework and PICO. Searches were conducted in databases, including EMBASE, Health Research databases and Google Scholar. Searches were conducted from database inception until 3 February 2022. The reference lists of articles were also searched for relevant articles. Results: Seven articles were included...
Dementia in Prison, 2020
We present results for the 2-jettiness differential distribution for boosted top quark pairs prod... more We present results for the 2-jettiness differential distribution for boosted top quark pairs produced in e + e − collisions in the peak region accounting for QCD large-logarithm resummation at next-tonext-to-next-to-leading logarithmic (N 3 LL) order and fixed-order corrections to matrix elements at next-to-next-to-leading order (NNLO) calculated in the framework of soft-collinear effective theory and boosted heavy quark effective theory. Electroweak and finite-width effects are included at leading order. We study the perturbative convergence of the cross section in the pole and MSR mass schemes, with and without soft gap subtractions. We find that there is a partial cancellation between the pole mass and soft function renormalons. When renormalon subtractions concerning the top mass and the soft function are implemented, the perturbative uncertainties are, however, systematically smaller and an improvement in the stability of the peak position is observed. We find that the top MSR mass may be determined with perturbative uncertainties well below 100 MeV from the peak position of the 2-jettiness distribution. This result has important applications for Monte Carlo top quark mass calibrations.
Eating and drinking problems among patients with dementia are too often overlooked in hospitals, ... more Eating and drinking problems among patients with dementia are too often overlooked in hospitals, as dementia care specialist Joanne Brooke discovered from personal experience.
Key learning points: –Definition of dementia, causes and treatment –Impact of dementia on the per... more Key learning points: –Definition of dementia, causes and treatment –Impact of dementia on the person with the condition and their family/carers –Current guidelines on caring and supporting people with dementia and their family/carers
Background: Focus group discussions for data collection in nursing research has increased. Data f... more Background: Focus group discussions for data collection in nursing research has increased. Data from focus groups provides rich in-depth understanding of a phenomenon, which can inform clinical practice. Guidance on facilitating focus groups has been developed, however there is a lack of guidance on techniques of translating, analysing and presenting focus group data from countries with linguistic differences Aim: To explore contemporary examples of translating, analysing and presenting focus group data from countries with linguistic differences and provide an in-depth example of the decision making process from one study with focus group data from two countries. Methods: A discussion paper to guide recommendations for focus group data analysis from countries with linguistic differences. Discussion: The experience from undertaking focus groups across two countries and contemporary nursing research has highlighted the need for a clear rationale and transparency in the reporting of translating, analysing and presentation of data. Detailed and transparent reporting needs to include not only the translation process, but when this occurred, either pre or post analysis, and when or if the data was amalgamated. Implications for research/practice: There is a clear need for evidence-based guidance on the reporting of translation, transcription and analysis of focus group data from countries with linguistic difficulties.
Paramedic students are learning more about dementia care, but how many intend to work in the fiel... more Paramedic students are learning more about dementia care, but how many intend to work in the field? Joanne Brooke and Marlon Stiell’s study produced some worrying findings. Dementia requires a person-centred, holistic approach to care which considers the unique challenges faced by each individual. It is essential that health care professionals are competent in a range of skills to support and care for people with dementia as this will form a major part of their role in many cases (Clissett et al 2014). Care of people with dementia has been included in many undergraduate programmes for health care professionals such as nursing and medicine (Alushi et al 2015), but has only recently been acknowledged in paramedic science programmes (Ross 2012).
Dementia (London, England), 2017
Dementia-friendly wards are recent developments to improve care for patients with dementia in acu... more Dementia-friendly wards are recent developments to improve care for patients with dementia in acute hospitals. This qualitative study used focus groups to understand the impact of dementia friendly ward environments on nurses experiences of caring for acutely unwell patients with dementia. Qualified nurses and health care assistants working in an acute NHS Trust in England discussed their perceptions and experiences of working in a dementia-friendly ward environment. Four themes developed from the thematic analysis: (1) 'It doesn't look like a hospital': A changed environment, (2) 'More options to provide person-centred care': No one size fits all, (3) 'Before you could not see the patients': A constant nurse presence and (4) 'The ward remains the same': Resistance to change. Recommendations and implementations for practice are discussed.
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Conference Presentations by Joanne Brooke
Joanna Semlyen, Department of Psychology, London Metropolitan University
Joanne Brooke, College of Nursing , Midwifery and Healthcare, University of West London
Purpose:
Our aim was to undertake a comprehensive scoping review of the literature to explore the needs of people who identify as lesbian, gay, bisexual or transgender (LGBT) and are affected by dementia.
Background:
In the UK it is estimated that 850,000 people are currently living with dementia and this is expected to rise to over 1 million by the year 2025 with reports suggesting 5-7% of the population identify as LGBT. Evidence suggests that the LGBT population both delay in accessing healthcare and experience heteronormative services creating inequalities in experiencing good appropriate dementia care and support. There is a need to determine existing knowledge about the needs of the LGBT population who are affected by dementia in order to inform future practice, research and policy.
Methods:
Four databases were systematically searched along with article bibliographies. Only studies exploring LGBT populations and dementia were included, no further predetermined criteria was applied.
Results:
Of the 3737 papers identified xx papers were included. The focus of studies ranged from an emphasis on LGBT partners and/or carers of people with dementia, staff and residents attitudes to LGBT people, and service provision and education around LGBT issues.
Conclusion:
Early findings indicate a need for a more open discussion about individual needs regarding sexuality and dementia, across all health and care settings regarding dementia care. There is some awareness of the LGBT population in long term care provision and their specific needs are beginning to be addressed, however education of policy providers, managers, staff and other residents is still required.
Papers by Joanne Brooke
Joanna Semlyen, Department of Psychology, London Metropolitan University
Joanne Brooke, College of Nursing , Midwifery and Healthcare, University of West London
Purpose:
Our aim was to undertake a comprehensive scoping review of the literature to explore the needs of people who identify as lesbian, gay, bisexual or transgender (LGBT) and are affected by dementia.
Background:
In the UK it is estimated that 850,000 people are currently living with dementia and this is expected to rise to over 1 million by the year 2025 with reports suggesting 5-7% of the population identify as LGBT. Evidence suggests that the LGBT population both delay in accessing healthcare and experience heteronormative services creating inequalities in experiencing good appropriate dementia care and support. There is a need to determine existing knowledge about the needs of the LGBT population who are affected by dementia in order to inform future practice, research and policy.
Methods:
Four databases were systematically searched along with article bibliographies. Only studies exploring LGBT populations and dementia were included, no further predetermined criteria was applied.
Results:
Of the 3737 papers identified xx papers were included. The focus of studies ranged from an emphasis on LGBT partners and/or carers of people with dementia, staff and residents attitudes to LGBT people, and service provision and education around LGBT issues.
Conclusion:
Early findings indicate a need for a more open discussion about individual needs regarding sexuality and dementia, across all health and care settings regarding dementia care. There is some awareness of the LGBT population in long term care provision and their specific needs are beginning to be addressed, however education of policy providers, managers, staff and other residents is still required.