Papers by Heather Buchanan
Quality of Life Research, Jan 1, 2011
Background Existing research suggests that family caregivers of persons with Huntington's disease... more Background Existing research suggests that family caregivers of persons with Huntington's disease face a unique series of problems, linked to the complex nature of the disease. There is little research that explicitly investigates the impact of HD on the quality of life (QoL) of the family caregiver. The purpose of this study was to explore the quality of life issues for family carers of Huntington's disease patients in a focus group setting.
Community dentistry and oral epidemiology, 2013
The reliable assessment of children's dental anxiety can have many benefits for the dental team, ... more The reliable assessment of children's dental anxiety can have many benefits for the dental team, service providers and dental public health practitioners. This study aimed to identify and evaluate self-report measures, which are available to assess children's dental anxiety. Systematic searches of the literature between 1998 and 2011 were conducted to identify relevant studies. The properties of each measure (reliability and validity) were assessed, and measures were evaluated against a theoretical framework of dental anxiety. Executing the search strategy generated 498 articles and of these 60 studies met all of the inclusion criteria. Seven ‘trait’ and two ‘state’ measures of dental anxiety had been employed to assess children's dental anxiety over the past decade. Reliability and validity estimates for the most widely used measures were good; however, many questionnaires had a limited focus in the aspects of anxiety they assessed. The paper summarizes the measures of children's dental anxiety which may be most useful for a number of different purposes and populations.
Journal of Huntington's disease, 2013
The carer impact of neurodegenerative disorders such as Huntington's disease (HD) is vast. At... more The carer impact of neurodegenerative disorders such as Huntington's disease (HD) is vast. Attempts to measure carer QoL in neurodegenerative disorders include the three-dimensional (Practical aspects of Caregiving, PC; Satisfaction with Life, SL; Feelings about Living with Huntington's disease, FL) Huntington's Disease Quality of Life Battery for Carers (HDQoL-C) and the unidimensional Alzheimer's…
International Journal of Web Based Communities, 2010
... Institute of Work, Health & Organisations, University of Nottingh... more ... Institute of Work, Health & Organisations, University of Nottingham, Jubilee Campus, Wollaton Road, Nottingham, NG8 1BB, UK E-mail: [email protected] E-mail:[email protected] E-mail: [email protected] *Corresponding ...
Journal of Huntington's disease, 2013
Neurotherapeutics, 2008
This activity has been planned and implemented in accordance with the Essential Areas and Policie... more This activity has been planned and implemented in accordance with the Essential Areas and Policies of the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians. The University of Rochester School of Medicine and Dentistry designates this educational activity for a maximum of 4.75 credits in the AMA PRA Category 1 Credit™ system. Physicians should claim credit only commensurate with the extent of their participation in the activity.
British Journal of Neuroscience Nursing, 2006
Abstract The purpose of this article is to provide a current update and extended overview on a se... more Abstract The purpose of this article is to provide a current update and extended overview on a series of studies that aimed to systematically investigate the factors that enhance and compromise the lives of Huntington's disease spousal carers by using the theoretical construct of quality of life. Three exploratory studies provided evidence that spousal carers have specific difficulties maintaining their quality of life while continuing in a primary care-giving role. These initial findings prepared the way for the development of a disease- ...
Patient Education and Counseling, 2007
Quality of Life Research, 2012
Existing research suggests that family caregivers of persons with Huntington&... more Existing research suggests that family caregivers of persons with Huntington's disease face a unique series of problems, linked to the complex nature of the disease. There is little research that explicitly investigates the impact of HD on the quality of life (QoL) of the family caregiver. The purpose of this study was to explore the quality of life issues for family carers of Huntington's disease patients in a focus group setting. Participants were recruited via a Huntington's Disease Association (HDA) family conference day. Six semi-directed focus groups (n = 47) explored disease-specific aspects of QoL that were deemed important to family carers of this carer group. Data were analysed using Interpretative Phenomenological Analysis (IPA). Analysis of the focus group data identified four superordinate themes: 'Levels of Support', 'Dissatisfaction with Caregiving Role', 'Practical Aspects of Caring' and 'Feelings and Emotional Well-being'. These data provide evidence that QoL is compromised in many ways for HD family carers. The carers in this study often negated their own needs as their caregiving role overwhelmed them and 'took over' their lives.
Quality of Life Research, 2013
Existing research suggests that family caregivers of persons with Huntington's Disease (HD) face ... more Existing research suggests that family caregivers of persons with Huntington's Disease (HD) face a distinct series of problems, linked to the complex nature of the disease. In 2007, Aubeeluck & Buchanan [1], developed and validated a diseasespecific quality of life measure that can be used to explore caregivers quality of life and assess the efficacy of therapeutic interventions. This current study builds on this previous research through the validation of French and Italian translations of the Huntington's Disease Quality of Life Battery for carers (HDQoL-C). Three hundred and one family carers completed the translated versions of the HDQoL-C with Factor Analysis demonstrating good internal consistency, reliability and congruent validity.
Patient Education and Counseling, 2010
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Papers by Heather Buchanan