Aim The aim is to get a picture about what the various kinds of library users – clinicians, resea... more Aim The aim is to get a picture about what the various kinds of library users – clinicians, researchers, technical staff, students, and patients as well – think about the various library services impact on patient care. Methods We used two different ways to get preliminary, partial and indirect results about our aim: • a survey carried out by our Continuing Education Service in 2010 among the CRO health personnel for knowing the Staff education needs and including 10 questions related to the perceived usefulness of some core library services. • the evaluation forms filled by the heath personnel participating in two different Continuing Education on-the-job courses held by our library in 2012-2013: the first one is a training course related to the library information resources (two editions); the second one a program devoted to improve the patients-physicians/health care workers relationship, i.e. the institutional Patient Education Program. These forms included some questions relate...
Aim The aim is to get a picture about what the various kinds of library users – clinicians, resea... more Aim The aim is to get a picture about what the various kinds of library users – clinicians, researchers, technical staff, students, and patients as well – think about the various library services impact on patient care. Methods We used two different ways to get preliminary, partial and indirect results about our aim: • a survey carried out by our Continuing Education Service in 2010 among the CRO health personnel for knowing the Staff education needs and including 10 questions related to the perceived usefulness of some core library services. • the evaluation forms filled by the heath personnel participating in two different Continuing Education on-the-job courses held by our library in 2012-2013: the first one is a training course related to the library information resources (two editions); the second one a program devoted to improve the patients-physicians/health care workers relationship, i.e. the institutional Patient Education Program. These forms included some questions relate...
In Italy, educational programs for cancer patients are currently provided by the national governm... more In Italy, educational programs for cancer patients are currently provided by the national government, scientific societies, and patient advocate organizations. Several gaps limit their effectiveness, including the lack of coordinated efforts, poor involvement of patient feedback in the planning of programs, as well as a lack of resources on innovative cancerrelated topics. This process is parallel to a strong shift in the attitude of patients towards health in general and taking charge of their own health conditions in particular. The National Cancer Institute in the USA and the Organization of European Cancer Institutes encourage comprehensive cancer centers in providing educational programs conceived to overcome these gaps. The goal of this paper is to identify and describe the key elements necessary to develop a global patient education program and provide recommendations for strategies with practical examples for implementation in the daily activities of cancer institutes. A multidisciplinary committee was established for patient education, including patient representatives as equal partners, to define, implement, verify, and evaluate the fundamental steps for establishing a comprehensive education program. Six essential topics were identified for the program: appropriate communication of cancer epidemiology, clinical trial information, new therapeutic technologies, support in the use of medicines, psycho-oncological interventions, age-personalized approaches, and training programs for healthcare providers. Integration of these topics along with patient feedback is the key to a successful model for educational programs. An integrated educational program can transform a comprehensive cancer center to an institution that provides research and care for and with patients.
Journal of the Medical Library Association : JMLA, 2014
The criteria for determining whether resources are included in consumer health library collection... more The criteria for determining whether resources are included in consumer health library collections are summarized in institutional collection development policies (CDPs). Evidence suggests that CDPs do not adequately capture all of these criteria. The aim of this study was to describe the resource review experience of librarians and compare it to what is described in CDPs. A phenomenological approach was used to explore and describe the process. Four consumer health librarians independently evaluated cancer-related consumer health resources and described their review process during a semi-structured telephone interview. Afterward, these librarians completed online questionnaires about their approaches to collection development. CDPs from participating libraries, interview transcripts, and questionnaire data were analyzed. Researchers summarized the findings, and participating librarians reviewed results for validation. Librarians all utilized similar criteria, as documented in their CDPs; however, of thirteen criteria described in the study, only four were documented in CDPs. CDPs for consumer health libraries may be missing important criteria that are considered integral parts of the collection development process. A better understanding of the criteria and contextual factors involved in the collection development process can assist with establishing high-quality consumer health library collections.
designed and developed for the quality assessment of health information materials from a linguist... more designed and developed for the quality assessment of health information materials from a linguistic, textual and documentary point of view.
Aim The aim is to get a picture about what the various kinds of library users – clinicians, resea... more Aim The aim is to get a picture about what the various kinds of library users – clinicians, researchers, technical staff, students, and patients as well – think about the various library services impact on patient care. Methods We used two different ways to get preliminary, partial and indirect results about our aim: • a survey carried out by our Continuing Education Service in 2010 among the CRO health personnel for knowing the Staff education needs and including 10 questions related to the perceived usefulness of some core library services. • the evaluation forms filled by the heath personnel participating in two different Continuing Education on-the-job courses held by our library in 2012-2013: the first one is a training course related to the library information resources (two editions); the second one a program devoted to improve the patients-physicians/health care workers relationship, i.e. the institutional Patient Education Program. These forms included some questions relate...
Aim The aim is to get a picture about what the various kinds of library users – clinicians, resea... more Aim The aim is to get a picture about what the various kinds of library users – clinicians, researchers, technical staff, students, and patients as well – think about the various library services impact on patient care. Methods We used two different ways to get preliminary, partial and indirect results about our aim: • a survey carried out by our Continuing Education Service in 2010 among the CRO health personnel for knowing the Staff education needs and including 10 questions related to the perceived usefulness of some core library services. • the evaluation forms filled by the heath personnel participating in two different Continuing Education on-the-job courses held by our library in 2012-2013: the first one is a training course related to the library information resources (two editions); the second one a program devoted to improve the patients-physicians/health care workers relationship, i.e. the institutional Patient Education Program. These forms included some questions relate...
In Italy, educational programs for cancer patients are currently provided by the national governm... more In Italy, educational programs for cancer patients are currently provided by the national government, scientific societies, and patient advocate organizations. Several gaps limit their effectiveness, including the lack of coordinated efforts, poor involvement of patient feedback in the planning of programs, as well as a lack of resources on innovative cancerrelated topics. This process is parallel to a strong shift in the attitude of patients towards health in general and taking charge of their own health conditions in particular. The National Cancer Institute in the USA and the Organization of European Cancer Institutes encourage comprehensive cancer centers in providing educational programs conceived to overcome these gaps. The goal of this paper is to identify and describe the key elements necessary to develop a global patient education program and provide recommendations for strategies with practical examples for implementation in the daily activities of cancer institutes. A multidisciplinary committee was established for patient education, including patient representatives as equal partners, to define, implement, verify, and evaluate the fundamental steps for establishing a comprehensive education program. Six essential topics were identified for the program: appropriate communication of cancer epidemiology, clinical trial information, new therapeutic technologies, support in the use of medicines, psycho-oncological interventions, age-personalized approaches, and training programs for healthcare providers. Integration of these topics along with patient feedback is the key to a successful model for educational programs. An integrated educational program can transform a comprehensive cancer center to an institution that provides research and care for and with patients.
Journal of the Medical Library Association : JMLA, 2014
The criteria for determining whether resources are included in consumer health library collection... more The criteria for determining whether resources are included in consumer health library collections are summarized in institutional collection development policies (CDPs). Evidence suggests that CDPs do not adequately capture all of these criteria. The aim of this study was to describe the resource review experience of librarians and compare it to what is described in CDPs. A phenomenological approach was used to explore and describe the process. Four consumer health librarians independently evaluated cancer-related consumer health resources and described their review process during a semi-structured telephone interview. Afterward, these librarians completed online questionnaires about their approaches to collection development. CDPs from participating libraries, interview transcripts, and questionnaire data were analyzed. Researchers summarized the findings, and participating librarians reviewed results for validation. Librarians all utilized similar criteria, as documented in their CDPs; however, of thirteen criteria described in the study, only four were documented in CDPs. CDPs for consumer health libraries may be missing important criteria that are considered integral parts of the collection development process. A better understanding of the criteria and contextual factors involved in the collection development process can assist with establishing high-quality consumer health library collections.
designed and developed for the quality assessment of health information materials from a linguist... more designed and developed for the quality assessment of health information materials from a linguistic, textual and documentary point of view.
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Papers by Chiara Mis