Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year.
About Rare Diseases
The National Institutes of Health Office of Rare Diseases Research (ORDR) maintains a list of rare (orphan) diseases, which are each generally considered to have a prevalence of fewer than 200,000 affected individuals in the United States. Listed rare diseases affecting the functional GI and motility disorders community include:
- Achalasia
- Cyclic vomiting syndrome (CVS)
- Hirschsprung’s disease
- Intestinal pseudo-obstruction
- Levator syndrome
- Rumination disorder
- Short bowel syndrome
