Abstract This article is concerned with the ultimate objectives of genetic biobanks set up to pro... more Abstract This article is concerned with the ultimate objectives of genetic biobanks set up to promote the public interestbeing the sharing of samples and data for medical researchand the consequences for personal privacy of realising them. Our aim is to chart the ...
Report of a deliberative research project on the public's attitudes towards data sharing. It focu... more Report of a deliberative research project on the public's attitudes towards data sharing. It focuses particularly on a) the public's opinion about data sharing with the private and third sector; b) the acceptability of different methods for sharing benefits gained from the use of their data; and c) the appeal of different methods for empowering citizens in decision making about the use of their data.
Developments in Medical Law in the United Kingdom in 2005 and 2006
European Journal of Health Law, 2006
This article highlights and summarises the key developments in medical law in the jurisdictions o... more This article highlights and summarises the key developments in medical law in the jurisdictions of the United Kingdom in 2005 and to April 2006. Topics are mental health and mental capacity, data protection, freedom of information and the impact on health data, the Human Tissue Act, genetic research databanks, Human Fertilisation and Embryology Act--Review of the legislation, consultations and related case law, developments in embryo and embryonic stem cell research, clinical trials and human subject research, medical futility, and physician assisted dying.
In recent years, there has been a rise in the creation of DNA databases promising a range of heal... more In recent years, there has been a rise in the creation of DNA databases promising a range of health benefits to individuals and populations. This development has been accompanied by an interest in, and concern for the ethical, legal and social aspects of such collections. In terms of policy solutions, much of the focus of these debates has tended to be on issues of consent, confidentiality and research governance. However, there are broader concerns, such as those associated with commercialisation, which cannot be adequately addressed by these means. In this article, we focus on the healthwealth benefits that DNA databases promise. As in previous studies, our qualitative research on public/s and stakeholders' views of DNA databases show the prospect of utilising donated samples and information derived for ends that are wealth-related (i.e. for private profit), irrespective of whether there is an associated health-related benefit, arouses considerable reaction. While health-wealth benefits are not mutually exclusive ideals, the tendency has been to cast 'public' benefits as exclusively health-related, while 'private' commercial benefits for funders and/or researchers are held out as a necessary pay-off. We argue for a less polarised approach that reconsiders what is meant by 'public benefits' and questions the exclusivity of commercial interests. We 2 believe accommodation can be achieved via the mobilisation of a grass roots solution known as 'benefit-sharing' or a 'profit pay-off'. We propose a sociologically informed model that has a pragmatic, legal framework which responds seriously to public concerns.
Abstract This article is concerned with the ultimate objectives of genetic biobanks set up to pro... more Abstract This article is concerned with the ultimate objectives of genetic biobanks set up to promote the public interestbeing the sharing of samples and data for medical researchand the consequences for personal privacy of realising them. Our aim is to chart the ...
Report of a deliberative research project on the public's attitudes towards data sharing. It focu... more Report of a deliberative research project on the public's attitudes towards data sharing. It focuses particularly on a) the public's opinion about data sharing with the private and third sector; b) the acceptability of different methods for sharing benefits gained from the use of their data; and c) the appeal of different methods for empowering citizens in decision making about the use of their data.
Developments in Medical Law in the United Kingdom in 2005 and 2006
European Journal of Health Law, 2006
This article highlights and summarises the key developments in medical law in the jurisdictions o... more This article highlights and summarises the key developments in medical law in the jurisdictions of the United Kingdom in 2005 and to April 2006. Topics are mental health and mental capacity, data protection, freedom of information and the impact on health data, the Human Tissue Act, genetic research databanks, Human Fertilisation and Embryology Act--Review of the legislation, consultations and related case law, developments in embryo and embryonic stem cell research, clinical trials and human subject research, medical futility, and physician assisted dying.
In recent years, there has been a rise in the creation of DNA databases promising a range of heal... more In recent years, there has been a rise in the creation of DNA databases promising a range of health benefits to individuals and populations. This development has been accompanied by an interest in, and concern for the ethical, legal and social aspects of such collections. In terms of policy solutions, much of the focus of these debates has tended to be on issues of consent, confidentiality and research governance. However, there are broader concerns, such as those associated with commercialisation, which cannot be adequately addressed by these means. In this article, we focus on the healthwealth benefits that DNA databases promise. As in previous studies, our qualitative research on public/s and stakeholders' views of DNA databases show the prospect of utilising donated samples and information derived for ends that are wealth-related (i.e. for private profit), irrespective of whether there is an associated health-related benefit, arouses considerable reaction. While health-wealth benefits are not mutually exclusive ideals, the tendency has been to cast 'public' benefits as exclusively health-related, while 'private' commercial benefits for funders and/or researchers are held out as a necessary pay-off. We argue for a less polarised approach that reconsiders what is meant by 'public benefits' and questions the exclusivity of commercial interests. We 2 believe accommodation can be achieved via the mobilisation of a grass roots solution known as 'benefit-sharing' or a 'profit pay-off'. We propose a sociologically informed model that has a pragmatic, legal framework which responds seriously to public concerns.
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Papers by Graeme Laurie