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Academic Institutions

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  • Akron Children’s
  • Besta Institute
  • Binghamton University
  • Boston University
  • Brigham and Womens Hospital
  • Brighton and Sussex Medical School
  • Broad Institute
  • Case Western Reserve University
  • Charité University of Medicine, Berlin
  • Children’s Hospital of Philadelphia
  • Children’s National Health System
  • Children’s National Heart Institute
  • Cincinnati Children’s Hospital Medical Center
  • City University, London
  • Cleveland Clinic
  • Colorado State University
  • Columbia University
  • Diderot University Paris
  • Duke University
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  • Emory University 
  • Erciyes University
  • Federal University of Rio Grande do Sul
  • Gazi University
  • George Washington University
  • Hadassah Medical Center
  • Harvard University
  • Heidelberg University Hospital
  • Helmholtz Centre Munich
  • Houston Methodist Hospital
  • Hôpitaux Universitaires de Genève
  • Imperial College London
  • Indiana University School of Medicine
  • Johns Hopkins University
  • Karolinska University
  • Keio University
  • King’s College, London
  • Kyorin University

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  • Leiden University Medical Center
  • Lund University
  • Massachusetts General Hospital
  • Mayo Clinic
  • McGill University
  • Medical University of Innsbruck
  • Monash University
  • Mt Sinai
  • Nagoya University Hospital
  • Newcastle University
  • New York University
  • North Shore University Health System
  • Northwestern University
  • OULU Finland
  • Paris Brain Institute
  • Paris Descartes University-Necker Hospital
  • Queen Mary University of London
  • Radboud University
  • Showa University
  • Sorbonne University
  • Southern Illinois University
  • St. Marianna University
  • Stanford University
  • State Univ of New York – Buffalo
  • Stony Brook Medicine
  • Thomas Jefferson University
  • Tufts University
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  • UBonn Venusberg Campus

  • UMass Memorial

  • UNC Institute for Drug Safety Sciences

  • Univ College London Institute of Neurology

  • Univeristy of California San Francisco

  • University of Kansas
  • University College Cork, Ireland
  • University College London Hospital

  • University Hospital of Brussels

  • University Hospital of Liege

  • University of Alabama – Birmingham

  • University of Arizona

  • University of Arkansas

  • University of Birmingham, England

  • University of Bonn

  • University of Bristol

  • University of British Columbia

  • University of Calgary

  • University of California, Davis

  • University of California – Irvine

  • University of California – San Diego

  • University of California-San Francisco

  • University of Cambridge

  • University of Capetown

  • University of Chicago

  • University of Cologne

  • University of Colorado Denver

  • University of Florida

  • University of Genoa

  • University of Glasgow

  • University of Gothenburg

  • University of Hasslet

  • University of Helsinki

  • University of Illinois

  • University of Iowa

  • University of Leicester, UK

  • University of Leuven

  • University of Liverpool

  • University of Louisville

  • University of Lübeck

  • University of Manitoba

  • University of Maryland

  • University of Melbourne

  • University of Miami

  • University of Michigan

  • University of Minnesota

  • University of Missouri Kansas City 

  • University of Montreal

  • University of Munich

  • University of North Carolina

  • University of Oxford

  • University of Pennsylvania

  • University of Pittsburgh

  • University of Plymouth

  • University of Rochester Medical Center

  • University of Sheffield

  • University of Siena, Italy

  • University of Southern California

  • University of St. Andrews

  • University of Tampere

  • University of Texas

  • University of Toronto

  • University of Turku

  • University of Tübingen

  • University of Ulm

  • University of Utah

  • University of Virginia

  • University of Washington

  • University of Wurzburg

  • University of Zurich

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  • Vanderbilt University Medical Center

  • Virginia Commonwealth University

  • Washington University

  • Washington University

  • Western Washington University

  • Yale University

Pharmaceutical Companies

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  • Abbott Molecular

  • AbbVie

  • Acceleron

  • AceLink Therapeutics Inc

  • Actelion Pharmaceuticals Ltd

  • Aeglea BioTherapeutics, Inc.

  • Agios Pharmaceuticals Inc.

  • AKCEA Therapeutics

  • Alere

  • Allergan

  • Alnylam

  • Amgen, Inc

  • Annexon

  • Apellis Pharmaceuticals, Inc.

  • Applied Therapeutics

  • argenx

  • Astellas Pharma US, Inc.

  • AstraZeneca Pharmaceuticals LP

  • Audentes Therapeutics

  • Avidity Biosciences

  • AVROBIO

  • Baxter Healthcare Corporation

  • Bayer Pharma AG

  • Bayer US LLC

  • Becton Dickinson Diagnostic Systems

  • Biogen

  • Biohaven Pharmaceuticals, Inc.

  • BioMarin

  • BioMereiux

  • Biophytis

  • bluebird bio, Inc.

  • Boehringer Ingelheim Pharmaceuticals, Inc

  • Bridgebio

  • Bristol-Myers Squibb Company

  • Cabaletta Bio, Inc.

  • Calico Life Sciences

  • CareDx

  • Catabasis Pharmaceuticals

  • Celgene

  • Cepheid

  • Cerevel Therapeutics

  • Chiesi

  • CorrectorBio

  • Crown Bioscience, Inc

  • CSL Behring

  • CTI BioPharma

  • Cyclerion

  • Cydan Corporation

  • Daiichi Sankyo

  • Denali Therapeutics Inc.

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  • Edgewise Therapeutics
  • Eisai, Inc

  • Eli Lilly & Company

  • EMD Serono Research and Development Institute, Inc.

  • Entrada Therapeutics

  • Epirium Bio

  • EscapeBIo

  • Fulcrum Therapeutics

  • Galapagos NV

  • GE Healthcare

  • Genentech, Inc

  • Gilead Sciences

  • GlaxoSmithKline Corporation

  • Global BloodTherapeutics

  • Handl Therapeutics

  • Hansa Medical

  • Harmony Biosciences, LLC

  • Healx

  • Hoffman-La Roche, Inc

  • Horizon Pharma, Inc.

  • IMARA Therapeutics

  • Imbria Pharmaceuticals

  • Immucor, Inc.

  • imvaria

  • Infant Bacterial Therapeutics

  • Innate Immunotherapeutics

  • Inoviv

  • Integral Medicines

  • Ionis Pharmaceuticals, Inc.

  • Ironwood Pharmaceuticals, Inc
  • IXICO
  • Janssen Pharmaceutical Companies of Johnson & Johnson

  • Jazz Pharmaceuticals, Inc.

  • Johnson & Johnson Pharmaceutical Services

  • Kadmon Corporation

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  • LoQus23

  • Lundbeck

  • Lysogene

  • Magnus Therapeutics

  • Mallinckrodt Pharmaceuticals

  • MeiraGTx

  • Merck Sharp & Dohme Corporation

  • Metabolic Solutions Development

  • Millenium: The Takeda Oncology Company

  • MindMed, Inc.

  • Mironid

  • Mitsubishi Tanabe Pharma Corporation

  • Momenta Pharmaceuticals

  • Natera

  • Navitorpharma

  • Nephrogen

  • Nestlé Health Science

  • Neubase Therapeutics

  • NeuExcell Therapeutics

  • Neurametrix

  • Neurocrine Biosciences, Inc.

  • Neuroma

  • Novartis Pharmaceuticals Corporation

  • Novo Nordisk

  • NS Pharma

  • One Lambda, Inc.

  • OrbiMed

  • Otsuka

  • Ovid Therapeutics, Inc.

  • Oxford Brain Diagnostics

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  • PellaPharm, Inc.

  • Perspectum

  • Pfizer, Inc

  • PharmaStat

  • Prilenia

  • ProventionBio, Inc

  • PTC Therapeutics

  • Qiagen

  • Quantigen

  • Reata

  • Regeneron

  • REGENXBIO

  • Regulus Therapeutics

  • Relay Therapeutics

  • Roche

  • Sage

  • Sangamo Therapeutics

  • Sanofi-Aventis US, Inc

  • Santhera Pharmaceuticals, Inc.

  • Sarepta Therapeutics, Inc.

  • Sequella, Inc.

  • Servier Pharmaceuticals

  • Shire Pharmaceuticals, Inc

  • Sparrow Pharmaceuticals

  • SRI International

  • Summit (Oxford) Limited

  • Sunovion Pharmaceuticals, Inc.

  • Takeda Pharmaceuticals North America, Inc

  • Talaris Therapeutics

  • TEVA Pharmaceutical Industries, Ltd.

  • Thermofisher

  • Transplant Genomics

  • Triplet Tx

  • Trove Therapeutics

  • UCB Pharma

  • Ultragenyx Pharmaceutical

  • uniQure

  • Vaccinex

  • Veloxis

  • Vertex Pharmaceutical

  • VICO Therapeutics

  • Voyager Therapeutics

  • vTv Therapeutics

  • Wave Life Science

  • XORTX

Patient Groups

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Alzheimer’s Association

Alzheimer’s Drug Discovery Foundation

Alzheimer’s Research UK

Astarte Ventures

Ataxia Charlevoix-Saguenay Foundation

Ataxia UK

Breakthrough T1d

BLISS

CHDI Foundation

Congenital Muscle Disease International Registry

Cure CMD

CureDuchenne

Cure Parkinson’s Trust

Davis Phinney Foundation

Desmoid Tumor Research Foundation (DTRF)

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Epilepsy Foundation

European Huntington’s Disease Network

European Huntington Association

Families Blossoming

Foundation for Angelman Syndrome Therapeutics Australia

Foundation for Prader-Willi Research

Friedreich’s Ataxia Research Alliance

HNRNPH2-Related Disorders

Huntington’s Disease Society of America

Huntington’s Disease Youth Organization

Huntington Society of Canada

Huntington Study Group

International Niemann-Pick Disease Registry

International Parkinson and Movement Disorders Society

International Pemphigus and Perphigoid Foundation (IPPF)

Italian MS Society

KHI Patient Family Partnership Council

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March of Dimes

MitoAction

National Ataxia Foundation

National MS Society of UK

National Multiple Sclerosis Society

National Multiple Sclerosis Society of Canada

National PKU Alliance

NEC Society

NICU Parent Network

Once Upon a Preemie

Parent Project Muscular Dystrophy

Parkinson’s Canada

Parkinson’s Disease Foundation

Parkinson’s UK

PKD Charity

PKD Foundation

PMD Alliance

Preemie World

Speaking for Moms and Babies, Inc.

Sturge-Weber Foundation

The Michael J Fox Foundation

TSC Alliance

United Mitochondrial Disease Foundation (UMDF)

USAgainstAlzheimer’a

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