Tools, devices, and applications Steve uses to move, talk, and play
Steve uses many different tools to live and engage in life. The blessings of technology to improve our quality of life is significant. We want to share about what we use and how it impacts our lives.
Steve relies on evolving health tools—from breathing aids to nutrition—to stay alive and well as his needs rapidly change.
Living with ALS means more than survival—Steve values grooming, style, communication, and entertainment for a fulfilling lifestyle.
Computer tools and software helped Steve keep working early in ALS and continue to support his productivity today.
Our Frankfort home has all essentials on the first floor with wood floors for the power chair, plus smart upgrades and tweaks after moving in.
ALS progression requires tools for moving and transfers—helping Steve stay mobile at home and beyond, never stuck.
Steve’s stages of ALS
We are using these stages to help you understand when these tools and apps were most effective for Steve.
early stage
July 2021 – November 2022
From first symptoms to walker
Key points
• No ventilation
• Able to walk without help
• Limited upper limb function
Middle stage
November 2022 – August 2023
From walker to power chair
Key points
• Limited ventilation with an NIV
• Help needed to transfer
• Limited upper and lower limb function
• Work transitions
• Supplemental nutrition through feeding tube
late stage
August 2023 – Current
Power chair
Key points
• 50% to full time ventilation
• From NIV to tracheostomy
• Lift transfers
• Loss of limb function
• Most nutrition through feeding tube
